Support Staff-client Interactions With Augmentative and Alternative Communication

Support Staff's Interactions With Adults With Intellectual Disability Who Use Augmentative and Alternative Communication

Sponsors

Lead Sponsor: Universitaire Ziekenhuizen Leuven

Source Universitaire Ziekenhuizen Leuven
Brief Summary

This exploratory and observational study focuses on adults with an intellectual disability (ID) and their support workers. Two groups of clients are observed: clients using Key Word Signing, and clients using aided Augmentative and Alternative Communication (AAC). Approximately half of adults with ID is estimated to experience communication difficulties. AAC supports them in their daily communication aiming at optimal participation in society. Current communication models, such as Participation Model (Beukelman & Mirenda, 2005) and International Classification of Functioning, Disability and Health (WHO, 2001), regard both client-related and environmental factors as important elements of communication. A substantial part of the environmental factors is made up of the communication partners' characteristics. In daycare and residential services for adults with ID the support worker is an important communication partner .

Detailed Description

This study aims to:

1. with regard to teaching Key Word Signing (KWS), a specific form of AAC, to support workers:

Analyse the relation between training method, support workers' attitude, and short and long term sign knowledge.

2. with regard to the use of manual signs in everyday communication between support workers and adults with ID:

- Identity the support workers' characteristics that may influence the quality/quantity of the communication between adults with ID who use manual signs and their support worker.

- Analyse the nature of this influence as well as any possible interaction effects with the clients' characteristics.

3. Assess whether an existing instrument, designed for measuring interactions between parents and children with cerebral palsy using AAC, may be used with adults client and support workers.

Overall Status Completed
Start Date March 2014
Completion Date May 2017
Primary Completion Date December 2016
Study Type Observational
Primary Outcome
Measure Time Frame
Signing rate of support workers and individuals with intellectual disabilities Three observation sessions over period of 2 weeks per participant, 2 years for all participants
Sign imitation rate support workers and individuals with intellectual disabilities Three observation sessions over period of 2 weeks per participant, 2 years for all participants
Secondary Outcome
Measure Time Frame
Explicit Attitude of direct care staff towards manual signs One testing per participant, over period of 6 months for all participants
Implicit Attitude of direct care staff working in towards manual signs One testing per participant, over period of 6 months for all participants
Communicative functions of individuals with intellectual disabilities Three observation sessions over period of 2 weeks per participant, 2 years for all participants
Enrollment 40
Condition
Eligibility

Sampling Method: Non-Probability Sample

Criteria:

Inclusion Criteria:

- uses AAC with client

- client has congenital intellectual disability

- supports client for at least 6 months

Exclusion Criteria:

- client has dementia symptoms

- client has severe, non-corrected visual impairment

- client has diagnosed autism

Gender: All

Minimum Age: N/A

Maximum Age: N/A

Healthy Volunteers: Accepts Healthy Volunteers

Overall Official
Last Name Role Affiliation
Ellen Rombouts, PhD cand. Principal Investigator KU Leuven
Location
Facility:
KULeuven | Leuven, Flanders, Belgium
Katholieke Universiteit Leuven | Leuven, Vlaams-Brabant, 3000, Belgium
KULeuven | Leuven, Vlaams-Brabant, 3000, Belgium
Location Countries

Belgium

Verification Date

November 2017

Responsible Party

Type: Sponsor

Keywords
Has Expanded Access No
Condition Browse
Arm Group

Label: support workers & AAC users

Description: Support workers who use KeyWordSigning in the communication with their client who has an intellectual disability

Label: support workers & KWS users

Description: Support workers who use aided AAC in the communication with their client who has an intellectual disability

Study Design Info

Observational Model: Cohort

Time Perspective: Cross-Sectional

Source: ClinicalTrials.gov