Clinical Trials Sponsored by Cockayne Syndrome Network (Share and Care)

Total 8 results

  • Sanford Health
    National Ataxia Foundation; Beyond Batten Disease Foundation; Pitt Hopkins Research... and other collaborators
    Recruiting
    Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford (CoRDS)
    Mitochondrial Diseases | Retinitis Pigmentosa | Myasthenia Gravis | Eosinophilic Gastroenteritis | Multiple System Atrophy | Leiomyosarcoma | Leukodystrophy | Anal Fistula | Spinocerebellar Ataxia Type 3 | Friedreich Ataxia | Kennedy Disease | Lyme Disease | Hemophagocytic Lymphohistiocytosis | Spinocerebellar Ataxia... and other conditions
    United States, Australia
  • Baxalta now part of Shire
    American Thrombosis and Hemostasis Network; UDC Rare Bleeding and Clotting...
    Completed
    Ceprotin Treatment Registry
    Protein C Deficiency
    United States, United Kingdom, Germany, Italy, Netherlands, Austria
  • University of Minnesota
    National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK); National... and other collaborators
    Completed
    Neurobehavioral Phenotypes in MPS III
    Hurler Syndrome | Sanfilippo Syndrome Type A | Sanfilippo Syndrome Type B
    United States
  • University of British Columbia
    Eli Lilly and Company; Merck Sharp & Dohme LLC; Pfizer; Canadian Institutes of... and other collaborators
    Recruiting
    National Active Surveillance Network and Pharmacogenomics of Adverse Drug Reactions in Children
    Adverse Drug Reaction (ADR)
    Canada
  • Foundation Medicine
    The Cleveland Clinic; Rush University Medical Center; St. Luke's Hospital and... and other collaborators
    Completed
    Outcomes of FoundationOne Directed Therapy in Cancer of Unknown Primary
    Neoplasms, Unknown Primary | CUP | Metastatic Disease | Poorly Differentiated Adenocarcinoma | Poorly Differentiated Carcinoma | Squamous Carcinoma Poorly Differentiated
    United States
  • University of Massachusetts, Worcester
    Massachusetts General Hospital; Washington University School of Medicine; Yale... and other collaborators
    Completed
    REASON 1 Trial: Sonography in Cardiac Arrest
    Cardiac Arrest | Pulseless Electrical Activity | Asystole
    United States, Canada
  • Romolo Gaspari
    Johns Hopkins University; University of Manitoba; University of Colorado, Denver and other collaborators
    Recruiting
    Vfib by ECG or Echo During Cardiac Arrest (REASON3-2021)
    Cardiac Arrest
    United States
  • Beth Israel Deaconess Medical Center
    Medical University of South Carolina; Johns Hopkins University; University Health... and other collaborators
    Recruiting
    Statins In Intracerbral Hemorrhage (SATURN)
    Intracerebral Hemorrhage
    United States

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