Connect® MM- The Multiple Myeloma Disease Registry
December 12, 2023 updated by: Celgene
The purpose of the Connect® MM Registry is to explore the natural history and real world management of patients with newly diagnosed symptomatic multiple myeloma (MM) and provide unique insights into the management of MM and the impact of this hematologic disorder on patients.
Study Overview
Status
Active, not recruiting
Conditions
Study Type
Observational
Enrollment (Actual)
3011
Contacts and Locations
This section provides the contact details for those conducting the study, and information on where this study is being conducted.
Study Locations
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San Juan, Puerto Rico, 00918
- Auxilio Cancer Center
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Alabama
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Huntsville, Alabama, United States, 35801
- The Cancer Center of Huntsville
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Tuscaloosa, Alabama, United States, 35401
- DCH Health System
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Arizona
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Tucson, Arizona, United States, 85704
- US Oncology - Arizona Oncology Associates - Rudasill
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Arkansas
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Fort Smith, Arkansas, United States, 72903
- St. Edward Mercy Medical Center
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Hot Springs, Arkansas, United States, 71913
- Genesis Cancer Center
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Jonesboro, Arkansas, United States, 72401
- Clopton Clinic Hematology/Oncology
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Little Rock, Arkansas, United States, 72205
- Little Rock Hematology Oncology Associates, PA
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California
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Anaheim, California, United States, 92801
- Pacific Cancer Medical Center, Inc
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Berkeley, California, United States, 94704
- Alta Bates Summit Comprehensive Cancer Center
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Campbell, California, United States, 95008
- Southbay Oncology Hematology Partners
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Corona, California, United States, 92879
- Compassionate Cancer Care Medical Group (Corona)
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Escondido, California, United States, 92025
- Southwest Cancer Care
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Fountain Valley, California, United States, 92708
- Compassionate Cancer Care Medical Group (Fountain Valley)
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Fullerton, California, United States, 92835
- Virginia K. Crosson Cancer Center
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Lancaster, California, United States, 93534
- TORI - Antelope Valley Cancer Center
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Monterey, California, United States, 94930
- Monterey Bay Oncology
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Northridge, California, United States, 91328
- TORI - North Valley Hematology/Oncology
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Oakland, California, United States, 94609
- Hematology Oncology Associates
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Palm Springs, California, United States, 92262
- Comprehensive Cancer Center
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Pleasant Hill, California, United States, 94523
- Bay Area Cancer Research Group, LLC
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Pomona, California, United States, 91767
- New Hope Cancer & Research Institute
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Riverside, California, United States, 92501
- Campassionate Cancer Care Medical Group (Riverside)
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Roseville, California, United States, 95661
- Capitol Hematology Oncology Medical Group - Sutter Roseville
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Santa Maria, California, United States, 93454
- TORI - Central Coast Medical Oncology
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Santa Rosa, California, United States, 95403
- Redwood Regional Medical Group, Inc.
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Stockton, California, United States, 95204
- Stockton Hematology Oncology Medical Group, Inc.
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West Hollywood, California, United States, 90069
- Institute for Myeloma and Bone Cancer Research
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Colorado
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Aurora, Colorado, United States, 80012
- US Oncology- Rocky Mountain Cancer Center-Aurora
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Boulder, Colorado, United States, 80303
- US Oncology - Rocky Mountain Cancer Center-Boulder
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Colorado Springs, Colorado, United States, 80907
- US Oncology- Rocky Mountain Cancer Center at the Pavillion
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Colorado Springs, Colorado, United States, 80909
- US Oncology - Rocky Mountain Cancer Center-Colorado Springs
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Denver, Colorado, United States, 80218
- US Oncology - Rocky Mountain Cancer Center-Midtown
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Denver, Colorado, United States, 80220
- US Oncology - Rocky Mountain Cancer Center-Rose
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Grand Junction, Colorado, United States, 80501
- TORI - St. Mary's Advanced Medical Pavilion
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Lakewood, Colorado, United States, 80228
- US Oncology - Rocky Mountain Cancer Center-Lakewood
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Littleton, Colorado, United States, 80120-4413
- US Oncology - Rocky Mountain Cancer Center-Littleton
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Lone Tree, Colorado, United States, 80124
- US Oncology - Rocky Mountain Cancer Center-Sky Ridge
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Longmont, Colorado, United States, 80501
- US Oncology - Rocky Mountain Cancer Center-Longmont
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Parker, Colorado, United States, 80138
- US Oncology - Rocky Mountain Cancer Center-Parker
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Thornton, Colorado, United States, 80260
- US Oncology - Rocky Mountain Cancer Center-Thornton
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Connecticut
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Fairfield, Connecticut, United States, 06824
- Medical Specialists of Fairfield
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Manchester, Connecticut, United States, 06040
- Medical Oncology and Blood Disorders, LLP
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New Britain, Connecticut, United States, 06050
- Hospital of Central Connecticut
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Stamford, Connecticut, United States, 06902-3628
- Hematology Oncology, PC
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Delaware
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Newark, Delaware, United States, 19713
- Delaware Clinical & Laboratory Physicians, PA
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Florida
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Boynton Beach, Florida, United States, 33435
- Collaborative Research Group
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Boynton Beach, Florida, United States, 33426
- University Cancer Institute
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Boynton Beach, Florida, United States, 33426
- Hematology Oncology Associates
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Coral Springs, Florida, United States, 33065
- Flora Research Associates
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Deerfield Beach, Florida, United States, 33441
- Archbold Cancer Center
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Deerfield Beach, Florida, United States, 33441
- Flora Research Associates
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Fort Lauderdale, Florida, United States, 33308
- Broward Oncology Associates, PA
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Gainesville, Florida, United States, 32605
- Florida Cancer Specialists & Research Institute
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Hollywood, Florida, United States, 33021
- Memorial Cancer Institute
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Hudson, Florida, United States, 34667
- US Oncology - Florida Cancer Institute - New Hope-Hudson
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Jacksonville, Florida, United States, 32256
- Integrated Community Oncology Network, LLC
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Lakeland, Florida, United States, 33805
- Watson Clinic
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Lecanto, Florida, United States, 34461
- Cancer & Blood Disease Center
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New Port Richey, Florida, United States, 34652
- Pasco Hernando Oncology Associates (Kumar)
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New Port Richey, Florida, United States, 34655
- US Oncology - Florida Cancer Institute - New Hope-New Port Richey
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Pensacola, Florida, United States, 32504
- Sacred Heart Medical Oncology Group
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Rockledge, Florida, United States, 32955
- Cancer Care Centers of Brevard
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The Villages, Florida, United States, 32159
- Florida Hospital Waterman-Lake County Oncology & Hematology
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Weston, Florida, United States, 33331
- Cleveland Clinic Florida
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Georgia
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Albany, Georgia, United States, 31701
- Phoebe Putney Memorial Hospital
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Atlanta, Georgia, United States, 30318
- Peachtree Hematology-Oncology Consultants
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Atlanta, Georgia, United States, 30331
- Georgia Cancer Specialists
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Savannah, Georgia, United States, 31404
- Summit Cancer Care
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Hawaii
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Honolulu, Hawaii, United States, 96813
- Straub Clinic and Hospital
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Illinois
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Arlington Heights, Illinois, United States, 60005
- Cancer Care & Hematology Specialists of Chicagoland, PC
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Chicago, Illinois, United States, 60612
- Rush University Medical Center
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Chicago, Illinois, United States, 60612
- John H. Stroger, Jr. Hospital of Cook County
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Chicago, Illinois, United States, 60637
- Univeristy of Chicago Medical Center, Section of Hematology/Oncology
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Elmhurst, Illinois, United States, 60126
- Elmhurst Memorial Hospital
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Evanston, Illinois, United States, 60201
- Northshore University Health System
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Harvey, Illinois, United States, 60426
- Ingalls Cancer Research Center
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Joliet, Illinois, United States, 60435
- Joliet Oncology
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Moline, Illinois, United States, 61265
- Medical Arts Associates, Ltd
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Niles, Illinois, United States, 60714
- Oncology Specialists, S.C.
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Peoria, Illinois, United States, 61615
- Illinois Cancer Care
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Skokie, Illinois, United States, 60076
- Orchard Research
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Urbana, Illinois, United States, 61801
- Carle Cancer Center
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Indiana
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Beech Grove, Indiana, United States, 46107
- St. Francis Cancer Research
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Beech Grove, Indiana, United States, 46107
- Indiana Blood and Marrow Transplant, LLC
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Goshen, Indiana, United States, 46526
- Center for Cancer Care @ Goshen Health Systems
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Indianapolis, Indiana, United States, 46202
- Indiana University Cancer Center Clinical Research Office
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Munster, Indiana, United States, 46321
- Cancer Research-Munster
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New Albany, Indiana, United States, 47150
- Cancer Care Center Inc.
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Newburgh, Indiana, United States, 47630
- Oncology Hematology Associates of SW IN
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South Bend, Indiana, United States, 46601
- Northern Indiana Cancer Research Consortium
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Iowa
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Ames, Iowa, United States, 50010
- McFarland Clinic
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Bettendorf, Iowa, United States, 52722
- Hematology Oncology Associates of the Quad Cities
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Cedar Rapids, Iowa, United States, 52402
- Iowa Blood and Cancer Care of PCI
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Sioux City, Iowa, United States, 51101
- Siouxland Hematology-Oncology Associates, LLP
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Waterloo, Iowa, United States, 50702
- Covenant Clinic
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Waterloo, Iowa, United States, 50701
- Cedar Valley Medical Specialists
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Kansas
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Wichita, Kansas, United States, 67214
- Cancer Center of Kansas, PA
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Kentucky
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Louisville, Kentucky, United States, 40207
- Baptist Hospital East
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Louisiana
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Baton Rouge, Louisiana, United States, 70809
- Mary Bird Perkins Cancer Center
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Maryland
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Westminster, Maryland, United States, 21157
- Alliance Hematology Oncology, PA
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Massachusetts
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Hyannis, Massachusetts, United States, 02601
- Capecod Hospital/Davenport Mugar Cancer Center
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Worcester, Massachusetts, United States, 01608
- Fallon Clinic
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Michigan
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Bay City, Michigan, United States, 48706
- Michigan State University/Bay Regional Medical Center
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Flint, Michigan, United States, 48503
- Genesys Hurley Cancer Institute
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Flint, Michigan, United States, 48532
- Michigan State University/McLaren Regional Medical Center
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Kalamazoo, Michigan, United States, 49007
- West Michigan Cancer Center
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Lansing, Michigan, United States, 48910
- Michigan State University/Breslin Cancer Center
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Lapeer, Michigan, United States, 48446
- Michigan State University/Lapeer Regional Medical Center
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Mount Clemens, Michigan, United States, 48043
- Michigan State University/Mount Clemens Regional Medical Center
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Novi, Michigan, United States, 48375
- Newland Medical Associates
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Owosso, Michigan, United States, 48867
- Michigan State University/Memorial Cancer Center
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Southfield, Michigan, United States, 48075
- Newland Medical Associates
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Minnesota
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Duluth, Minnesota, United States, 55805
- Duluth Clinic Cancer Center
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Saint Louis Park, Minnesota, United States, 55426
- Park Nicollet Institute - Louisiana Ave.
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Mississippi
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Jackson, Mississippi, United States, 39202
- Jackson Oncology Associates
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Missouri
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Chesterfield, Missouri, United States, 63017
- St. Louis Cancer Care, LLP
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Jefferson City, Missouri, United States, 65109
- Capitol Comprehensive Cancer Care Clinic
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Saint Joseph, Missouri, United States, 64507
- St. Joseph Oncology
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Saint Louis, Missouri, United States, 63141
- St. John's Mercy Medical Center
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Saint Louis, Missouri, United States, 63110
- University Hematology Oncology, Inc.
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Saint Louis, Missouri, United States, 63110
- Washington University in St. Louis, Division of Oncology, Section of Bone Marrow Transplantation & Leukemia
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Saint Louis, Missouri, United States, 63136
- Hematology Oncology Consultants, Inc
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Springfield, Missouri, United States, 65807
- St. John's Medical Research Institute
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Montana
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Missoula, Montana, United States, 59802
- Montana Cancer Institute Foundation
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Nebraska
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Lincoln, Nebraska, United States, 68510
- Southeast Nebraska Hematology & Oncology Consultants, PC
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Lincoln, Nebraska, United States, 68506
- Nebraska Hematology Oncology, PC
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Nevada
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Henderson, Nevada, United States, 89052
- TORI - Comprehensive Cancer Centers of NV
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Las Vegas, Nevada, United States, 89106
- Southern Nevada Cancer Research Foundation
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Reno, Nevada, United States, 89502
- VA Sierra Nevada Healthcare System
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New Jersey
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Belleville, New Jersey, United States, 07109
- Essex Oncology of North Jersey, PA
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Cherry Hill, New Jersey, United States, 08003
- The Center for Cancer and Hematologic Disease
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Englewood, New Jersey, United States, 07432
- Drs. Forte, Schleider, Attas & Condemi, PA
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Morristown, New Jersey, United States, 07962
- Hematology-Oncology Associates of Northern NJ dba Carol G. Simon
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Somerville, New Jersey, United States, 08876
- Steeplechase Cancer Center
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New York
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Albany, New York, United States, 12206
- US Oncology - New York Oncology Hematology, PC-Albany
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Albany, New York, United States, 12208
- US Oncology - Albany Medical Cancer Center
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Amsterdam, New York, United States, 12010
- US Oncology - Amsterdam Community Cancer Program
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Bronx, New York, United States, 10469
- Eastchester Center for Cancer Care
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Bronx, New York, United States, 10467
- Bronx River Medical Associates
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Buffalo, New York, United States, 14215
- Jonah Cancer Care Center & ECMC
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Hudson, New York, United States, 12534
- US Oncology - Cavell Cancer Treatment Program
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Johnson City, New York, United States, 13790
- Broome Oncology
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Lake Success, New York, United States, 11042
- Arena Oncology Associates, PC
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Latham, New York, United States, 12110-0610
- US Oncology - New York Oncology Hematology, PC-Latham
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Rexford, New York, United States, 12148
- US Oncology - New York Oncology Hematology, PC-Rexford
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Syracuse, New York, United States, 14222
- SUNY Upstate Medical University - Adult Program
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Troy, New York, United States, 12180
- US Oncology - Troy Cancer Treatment Program
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North Carolina
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Cary, North Carolina, United States, 27518
- US Oncology - Cancer Centers of North Carolina - Cary
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Durham, North Carolina, United States, 27705
- DUMC Division of Cellular Therapy/ABMT
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Hickory, North Carolina, United States, 28602
- Carolina Oncology Specialists, PA
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High Point, North Carolina, United States, 27262
- Emerywood Hematology/Oncology
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Raleigh, North Carolina, United States, 27614
- US Oncology - Cancer Centers of North Carolina - Falls
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North Dakota
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Bismarck, North Dakota, United States, 58501
- Legacy Pharma Research
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Bismarck, North Dakota, United States, 58501
- Med Center One
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Fargo, North Dakota, United States, 58122
- Roger Maris Cancer Center
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Ohio
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Akron, Ohio, United States, 44304
- Summa Health System - Cancer Research Office
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Canton, Ohio, United States, 44718
- Gabrail Cancer Center Research
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Cleveland, Ohio, United States, 44106
- Cleveland VA Medical Center
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Columbus, Ohio, United States, 43219
- Mid Ohio Oncology/Hematology, Inc
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Elyria, Ohio, United States, 44035
- Hematology Oncology Center, Inc
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Wooster, Ohio, United States, 44691
- Lawrence M. Stallings MD LTD dba Trilogy Cancer Care
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Oregon
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Eugene, Oregon, United States, 97401-8122
- US Oncology - Willamette Valley Cancer Institute - Eugene
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Springfield, Oregon, United States, 97477
- US Oncology - Willamette Valley Cancer Institute - Springfield
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Pennsylvania
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Bethlehem, Pennsylvania, United States, 18015
- Oncology Hematology of Lehigh Valley
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Danville, Pennsylvania, United States, 17822
- Geisinger Medical Center
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Drexel Hill, Pennsylvania, United States, 19026
- Consultants in Medical Oncology and Hematology, PC
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Harrisburg, Pennsylvania, United States, 17111
- Andrews and Patel Associates
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Kingston, Pennsylvania, United States, 18704
- US Oncology - Medical Oncology Associates (Nahar)
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Lancaster, Pennsylvania, United States, 17605
- Lancaster Cancer Center
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Pittsburgh, Pennsylvania, United States, 15224
- The Western Pennsylvania Hospital
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Pittsburgh, Pennsylvania, United States, 15232
- UPCI Hillman Cancer Center
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Reading, Pennsylvania, United States, 19612
- Berks Hematology Oncology Associates
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Rhode Island
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Cranston, Rhode Island, United States, 02920
- Hematology & Oncology Associates of Rhode Island
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South Carolina
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Charleston, South Carolina, United States, 29403
- Charleston Hematology Oncology Associates, PA
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Easley, South Carolina, United States, 29640
- US Oncology - Cancer Centers of the Carolinas - Easley
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Greenville, South Carolina, United States, 29605
- US Oncology - Cancer Centers of the Carolinas - Butternut
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Greenville, South Carolina, United States, 29605
- US Oncology - Cancer Centers of the Carolinas - West Faris
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Greenville, South Carolina, United States, 29615
- US Oncology - Cancer Centers of the Carolinas - Eastside
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Hilton Head Island, South Carolina, United States, 29926
- SC Cancer Specialists, PA
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Seneca, South Carolina, United States, 29672
- US Oncology - Cancer Center of the Carolinas - Seneca
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Spartanburg, South Carolina, United States, 29307
- US Oncology - Cancer Centers of the Carolinas - Spartanburg
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South Dakota
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Sioux Falls, South Dakota, United States, 57105
- Avera Cancer Institute
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Sioux Falls, South Dakota, United States, 57104
- Sanford Clinic
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Tennessee
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Collierville, Tennessee, United States, 38017
- Family Cancer Center, PLLC
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Nashville, Tennessee, United States, 37203
- SCRI
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Texas
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Abilene, Texas, United States, 79606
- US Oncology - Texas Cancer Center - Abilene (South)
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Amarillo, Texas, United States, 79106
- US Oncology - Texas Oncology, PA - Amarillo
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Arlington, Texas, United States, 76014
- US Oncology - Texas Oncology - Arlington South
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Austin, Texas, United States, 78759
- Austin Cancer Centers
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Austin, Texas, United States, 78705
- US Oncology - Texas Oncology - Midtown
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Austin, Texas, United States, 78731
- US Oncology - Texas Oncology Cancer Center
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Austin, Texas, United States, 78745
- US Oncology - South Austin Cancer Center
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Austin, Texas, United States, 78758
- US Oncology - Texas Oncology North Austin
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Austin, Texas, United States, 78759
- US Oncology - Southwest Regional Cancer Center - North
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Bedford, Texas, United States, 76022
- US Oncology - Texas Oncology, PA - Bedford
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Bryan, Texas, United States, 77802
- St. Joseph Regional Cancer Center
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Cedar Park, Texas, United States, 78613
- US Oncology - Texas Oncology Cedar Park
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College Station, Texas, United States, 77802
- Scott & White Clinic
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Corpus Christi, Texas, United States, 78405
- South Texas Institute of Cancer
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Corpus Christi, Texas, United States, 78463
- Coastal Bend Cancer Center
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Dallas, Texas, United States, 75230
- US Oncology - Texas Cancer Center at Medical City
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Dallas, Texas, United States, 75231
- US Oncology -Texas Oncology, PA - Dallas
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El Paso, Texas, United States, 79902
- US Oncology - El Paso Cancer Treatment Ctr
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Fort Worth, Texas, United States, 76104
- US Oncology - Texas Oncology, PA - Forth Worth
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Fort Worth, Texas, United States, 76132
- US Oncology - Southwest Forth Worth Cancer Center
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Garland, Texas, United States, 75042
- US Oncology - Texas Oncology, PA - Garland
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Grapevine, Texas, United States, 76051
- US Oncology - Texas Oncology - Grapevine
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Houston, Texas, United States, 77030
- MD Anderson Cancer Center
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Houston, Texas, United States, 77030
- The Methodist Hospital Research Institute-AOCT
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Irving, Texas, United States, 75063
- Southlake Oncology dba Las Colinas Hematology Oncology
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Kerrville, Texas, United States, 78028
- US Oncology - San Antonio Tumor & Blood Clinic - Kerrville
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Kyle, Texas, United States, 78640
- US Oncology - Texas Oncology - Kyle
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Longview, Texas, United States, 75601
- US Oncology - Longview Cancer Center
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Lubbock, Texas, United States, 79410
- Joe Arrington Cancer Research and Treatment Center
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Midland, Texas, United States, 79701
- US Oncology - Allison Cancer Center
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Odessa, Texas, United States, 79761
- US Oncology - Texas Oncology - Odessa
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Plano, Texas, United States, 75075
- US Oncology - North Texas Regional Cancer Center
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Plano, Texas, United States, 75093
- US Oncology - Texas Oncology Plano West Cancer Center
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Round Rock, Texas, United States, 78665
- US Oncology - Texas Oncology Seton Williamson
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Round Rock, Texas, United States, 78681
- US Oncology - Texas Oncology - Round Rock Cancer Center
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San Antonio, Texas, United States, 78217
- US Oncology - Cancer Care Centers of South Texas
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San Antonio, Texas, United States, 78258-3912
- US Oncology - San Antonio Tumor & Blood Clinic - M. Oak
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San Antonio, Texas, United States, 78229
- US Oncology - HOAST - Medical Dr.
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San Marcos, Texas, United States, 78666
- US Oncology - Texas Oncology - San Marcos
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Temple, Texas, United States, 76508
- Scott & White Healthcare Department of Research
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Tyler, Texas, United States, 75701
- ETMC dba Blood and Cancer Center - East Texas
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Tyler, Texas, United States, 75701
- ETMC dba Tyler Hematology Oncology
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Waco, Texas, United States, 76712
- US Oncology - Texas Oncology Cancer Care and Research Center
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Wichita Falls, Texas, United States, 76310
- US Oncology - Texoma Cancer Center
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Utah
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American Fork, Utah, United States, 84003
- Central Utah Clinic
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Ogden, Utah, United States, 84403
- Northern Utah Associates
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Salt Lake City, Utah, United States, 84112
- University of Utah - Huntsman Cancer Institute
-
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Virginia
-
Arlington, Virginia, United States, 22205
- US Oncology - Arlington Fairfax Hematology Oncology
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Fairfax, Virginia, United States, 22031
- US Oncology - Fairfax-Northern VA Hem-Onc PC
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Gainesville, Virginia, United States, 20155
- US Oncology - Fairfax Northern Virginia Hematology-Oncology, PC-Gainesville
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Leesburg, Virginia, United States, 20176
- US Oncology - Fairfax-Northern Virgina Hem-Onc, PC-Leesburg
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Winchester, Virginia, United States, 22601
- US Oncology - Shenandoah Oncology - Winchester
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Woodbridge, Virginia, United States, 22191
- US Oncology - Fairfax-Northern Virginia Hem-Onc, PC-Woodbridge
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Washington
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Bellingham, Washington, United States, 98226
- Peace Health Medical Group
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Edmonds, Washington, United States, 98133
- US Oncology - Puget Sound Cancer Center-Edmonds
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Everett, Washington, United States, 98201
- Providence Everett Medical Center
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Kennewick, Washington, United States, 99337
- Columbia Basin Hematology and Oncology
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Seattle, Washington, United States, 98133
- US Oncology - Puget Sound Cancer Center-Seattle
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Spokane, Washington, United States, 99208
- Medical Oncology Associates PS
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Spokane, Washington, United States, 99202
- US Oncology - Cancer Care Northwest - Sherman
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Walla Walla, Washington, United States, 99362
- Providence St. Mary Regional Cancer Center
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Yakima, Washington, United States, 98902
- US Oncology - Yakima Valley Memorial Hospital/North Star Lodge
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West Virginia
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Morgantown, West Virginia, United States, 26506
- West Virginia University - Clinical Trials Research Unit
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Wisconsin
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Appleton, Wisconsin, United States, 54915
- Fox Valley Hematology & Oncology
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Green Bay, Wisconsin, United States, 54301
- St. Vincent Hospital/Green Bay Oncology
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Milwaukee, Wisconsin, United States, 53211
- CMS Water Tower Medical Commons Medical Oncology #100
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Waukesha, Wisconsin, United States, 53188
- Waukesha Memorial Hospital
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Participation Criteria
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
Eligibility Criteria
Ages Eligible for Study
18 years and older (Adult, Older Adult)
Accepts Healthy Volunteers
No
Sampling Method
Non-Probability Sample
Study Population
Patients with newly diagnosed multiple myeloma and being treated in community or academic settings in the United States
Description
Inclusion Criteria:
- Newly diagnosed with symptomatic MM within 2 months of enrollment in Connect®MM registry
- Age ≥18 years
- Willing and able to provide signed informed consent
- Agrees to complete patient assessment questionnaires either alone or with minimal assistance from caregivers and/or trained site personnel
Exclusion Criteria:
- None
Study Plan
This section provides details of the study plan, including how the study is designed and what the study is measuring.
How is the study designed?
Design Details
Cohorts and Interventions
Group / Cohort |
|---|
|
Group One: Patients enrolled between Sep2009 and Nov2011
Newly diagnosed multiple myeloma patients enrolled between Sep 2009 and Nov 2011.
|
|
Group Two: Patients enrolled between Dec2012 and mid-2016
Newly diagnosed multiple myeloma patients enrolled between Dec 2012 and mid-2016
|
What is the study measuring?
Primary Outcome Measures
Outcome Measure |
Measure Description |
Time Frame |
|---|---|---|
|
Identify and summarize patterns in therapeutic regimens
Time Frame: Minimum 8 years
|
Describe practice patterns of common first-line treatment regimens and subsequent therapeutic strategies in patients newly diagnosed with symptomatic MM in the community and academic setting
|
Minimum 8 years
|
|
Identify and summarize patterns in therapeutic regimens and patient outcomes
Time Frame: Minimum 8 years
|
Provide insight into treatment regimens and therapy sequence in clinical practice as they relate to clinical outcomes (response, overall survival, progression-free survival) in patients newly diagnosed with symptomatic MM
|
Minimum 8 years
|
Secondary Outcome Measures
Outcome Measure |
Measure Description |
Time Frame |
|---|---|---|
|
Summarize Effectiveness of Treatment Regimens
Time Frame: Minimum 8 years
|
Describe any differences in effectiveness associated with different treatment regimens, including common first-line regimens, subsequent therapeutic strategies and regional effects (such as proximity of academic centers) in patients newly diagnosed with symptomatic MM
|
Minimum 8 years
|
|
Summarize health-related quality of life (HRQoL) relation to treatment regimens/sequence and clinical outcomes
Time Frame: Minimum 8 years
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Describe the health-related quality of life (HRQoL) of patients newly diagnosed with symptomatic MM, and to explore the association with HRQoL of treatment regimens/sequence and clinical outcomes
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Minimum 8 years
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Collaborators and Investigators
This is where you will find people and organizations involved with this study.
Sponsor
Investigators
- Study Director: Amit Agarwal, MD PhD, Celgene Corporation
Publications and helpful links
The person responsible for entering information about the study voluntarily provides these publications. These may be about anything related to the study.
General Publications
- Engelhardt M, Ihorst G, Singh M, Rieth A, Saba G, Pellan M, Lebioda A. Real-World Evaluation of Health-Related Quality of Life in Patients With Multiple Myeloma From Germany. Clin Lymphoma Myeloma Leuk. 2021 Feb;21(2):e160-e175. doi: 10.1016/j.clml.2020.10.002. Epub 2020 Oct 24.
- Shah JJ, Abonour R, Gasparetto C, Hardin JW, Toomey K, Narang M, Srinivasan S, Kitali A, Zafar F, Flick ED, Rifkin RM. Analysis of Common Eligibility Criteria of Randomized Controlled Trials in Newly Diagnosed Multiple Myeloma Patients and Extrapolating Outcomes. Clin Lymphoma Myeloma Leuk. 2017 Sep;17(9):575-583.e2. doi: 10.1016/j.clml.2017.06.013. Epub 2017 Jun 17.
- Rifkin RM, Jagannath S, Durie BGM, Narang M, Terebelo HR, Gasparetto CJ, Toomey K, Hardin JW, Wagner L, Parikh K, Abouzaid S, Srinivasan S, Kitali A, Zafar F, Abonour R. Treatment Outcomes and Health Care Resource Utilization in Patients With Newly Diagnosed Multiple Myeloma Receiving Lenalidomide-only Maintenance, Any Maintenance, or No Maintenance: Results from the Connect MM Registry. Clin Ther. 2018 Jul;40(7):1193-1202.e1. doi: 10.1016/j.clinthera.2018.05.017. Epub 2018 Jul 23.
- Terebelo HR, Abonour R, Gasparetto CJ, Toomey K, Durie BGM, Hardin JW, Jagannath S, Wagner L, Narang M, Flick ED, Srinivasan S, Yue L, Kitali A, Agarwal A, Rifkin RM; CONNECT MM Registry Investigators. Development of a prognostic model for overall survival in multiple myeloma using the Connect(R) MM Patient Registry. Br J Haematol. 2019 Dec;187(5):602-614. doi: 10.1111/bjh.16139. Epub 2019 Aug 5.
- Rifkin RM, Abonour R, Terebelo H, Shah JJ, Gasparetto C, Hardin J, Srinivasan S, Ricafort R, Nagarwala Y, Durie BG. Connect MM Registry: The Importance of Establishing Baseline Disease Characteristics. Clin Lymphoma Myeloma Leuk. 2015 Jun;15(6):368-76. doi: 10.1016/j.clml.2014.12.002. Epub 2014 Dec 11.
- Rifkin RM, Abonour R, Shah JJ, Mehta J, Narang M, Terebelo H, Gasparetto C, Toomey K, Hardin JW, Lu JJ, Kenvin L, Srinivasan S, Knight R, Nagarwala Y, Durie BG. Connect MM(R) - the Multiple Myeloma Disease Registry: incidence of second primary malignancies in patients treated with lenalidomide. Leuk Lymphoma. 2016 Sep;57(9):2228-31. doi: 10.3109/10428194.2015.1132419. Epub 2016 Jan 13. No abstract available.
- Terebelo H, Srinivasan S, Narang M, Abonour R, Gasparetto C, Toomey K, Hardin JW, Larkins G, Kitali A, Rifkin RM, Shah JJ. Recognition of early mortality in multiple myeloma by a prediction matrix. Am J Hematol. 2017 Sep;92(9):915-923. doi: 10.1002/ajh.24796. Epub 2017 Jul 19.
- Jagannath S, Abonour R, Durie BGM, Gasparetto C, Hardin JW, Narang M, Terebelo HR, Toomey K, Wagner L, Srinivasan S, Kitali A, Yue L, Flick ED, Agarwal A, Rifkin RM. Heterogeneity of Second-Line Treatment for Patients With Multiple Myeloma in the Connect MM Registry (2010-2016). Clin Lymphoma Myeloma Leuk. 2018 Jul;18(7):480-485.e3. doi: 10.1016/j.clml.2018.04.007. Epub 2018 May 4.
- Jagannath S, Abonour R, Durie BGM, Narang M, Terebelo HR, Gasparetto CJ, Toomey K, Hardin JW, Wagner L, Agarwal A, Srinivasan S, Kitali A, Flick ED, Sturniolo M, Rifkin RM. Impact of post-ASCT maintenance therapy on outcomes in patients with newly diagnosed multiple myeloma in Connect MM. Blood Adv. 2018 Jul 10;2(13):1608-1615. doi: 10.1182/bloodadvances.2018017186. Erratum In: Blood Adv. 2020 Feb 11;4(3):444.
- Abonour R, Wagner L, Durie BGM, Jagannath S, Narang M, Terebelo HR, Gasparetto CJ, Toomey K, Hardin JW, Kitali A, Gibson CJ, Srinivasan S, Swern AS, Rifkin RM. Impact of post-transplantation maintenance therapy on health-related quality of life in patients with multiple myeloma: data from the Connect(R) MM Registry. Ann Hematol. 2018 Dec;97(12):2425-2436. doi: 10.1007/s00277-018-3446-y. Epub 2018 Jul 29.
- Jagannath S, Rifkin RM, Gasparetto CJ, Toomey K, Durie BGM, Hardin JW, Terebelo HR, Wagner L, Narang M, Ailawadhi S, Omel JL, Srinivasan S, He M, Ung B, Kitali A, Flick ED, Agarwal A, Abonour R; CONNECT MM Registry Investigators. Treatment Journeys of Patients With Newly Diagnosed Multiple Myeloma (NDMM): Results From The Connect MM Registry. Clin Lymphoma Myeloma Leuk. 2020 May;20(5):272-276. doi: 10.1016/j.clml.2019.10.002. Epub 2019 Oct 14. No abstract available.
- Ailawadhi S, Jagannath S, Lee HC, Narang M, Rifkin RM, Terebelo HR, Durie BGM, Toomey K, Hardin JW, Gasparetto CJ, Wagner L, Omel JL, He M, Yue L, Flick ED, Agarwal A, Abonour R; Connect MM Registry Investigators. Association between race and treatment patterns and survival outcomes in multiple myeloma: A Connect MM Registry analysis. Cancer. 2020 Oct 1;126(19):4332-4340. doi: 10.1002/cncr.33089. Epub 2020 Jul 24.
- Abonour R, Rifkin RM, Gasparetto C, Toomey K, Durie BGM, Hardin JW, Terebelo HR, Jagannath S, Narang M, Ailawadhi S, Omel JL, Lee HC, Srinivasan S, Kitali A, Agarwal A, Wagner L; CONNECT MM Registry Investigators. Effect of initial treatment on health-related quality of life in patients with newly diagnosed multiple myeloma without immediate stem cell transplant intent: results from the Connect(R) MM Registry. Br J Haematol. 2021 Apr;193(1):93-100. doi: 10.1111/bjh.17131. Epub 2020 Oct 29.
- Ailawadhi S, Jagannath S, Narang M, Rifkin RM, Terebelo HR, Toomey K, Durie BGM, Hardin JW, Gasparetto CJ, Wagner L, Omel JL, Kumar V, Yue L, Kitali A, Agarwal A, Abonour R; Connect MM Registry Investigators. Connect MM Registry as a national reference for United States multiple myeloma patients. Cancer Med. 2020 Jan;9(1):35-42. doi: 10.1002/cam4.2656. Epub 2019 Nov 7.
Study record dates
These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.
Study Major Dates
Study Start (Actual)
September 1, 2009
Primary Completion (Estimated)
December 31, 2024
Study Completion (Estimated)
August 15, 2031
Study Registration Dates
First Submitted
March 4, 2010
First Submitted That Met QC Criteria
March 4, 2010
First Posted (Estimated)
March 5, 2010
Study Record Updates
Last Update Posted (Actual)
December 18, 2023
Last Update Submitted That Met QC Criteria
December 12, 2023
Last Verified
December 1, 2023
More Information
Terms related to this study
Keywords
Additional Relevant MeSH Terms
- Cardiovascular Diseases
- Vascular Diseases
- Immune System Diseases
- Neoplasms by Histologic Type
- Neoplasms
- Lymphoproliferative Disorders
- Immunoproliferative Disorders
- Hematologic Diseases
- Hemorrhagic Disorders
- Hemostatic Disorders
- Paraproteinemias
- Blood Protein Disorders
- Multiple Myeloma
- Neoplasms, Plasma Cell
Other Study ID Numbers
- Connect ® MM
This information was retrieved directly from the website clinicaltrials.gov without any changes. If you have any requests to change, remove or update your study details, please contact register@clinicaltrials.gov. As soon as a change is implemented on clinicaltrials.gov, this will be updated automatically on our website as well.
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