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Usage of Health Information Exchange (HIE) Technologies

2012年12月20日 更新者:Weill Medical College of Cornell University

Patient Adoption and Use of Health Information Exchange (HIE) Technologies

The purpose of this research study is to describe the usage of consumers and providers when using a novel technology designed to give consumers the ability to manage and access their health information. This is a quantitative descriptive analysis study.

研究概览

详细说明

New York State has awarded grants to several regional health information exchange organizations (RHIOs), organizations established to create the technical and policy infrastructure needed to exchange health data between providers, payers, and public health agencies within a particular geographic region, to build an interoperable system for people to manage their own health information. Two of these grant recipients are the Brooklyn Health Information Exchange (BHIX) and Long Island Patient Information Xchange (LIPIX).

Since no off-the shelf technology currently exists to create such a system, BHIX is working with a commercial vendor to develop a unique system that is tailored toward the needs of their consumers and providers, while LIPIX is developing their own unique system in-house. Both BHIX's and LIPIX's interoperable personal health management systems will offer various features to consumers and providers in their community. Consumers may be able to perform tasks such as viewing their lab results, scheduling an appointment, or sending a message directly to their physician through a SMS. Conversely, the PHR can also allow physicians to engage in communications with their patient, release data to their patient(s) (e.g. lab test result); and view patient inputted-data.

The usage patterns of these personal health managements systems is not well understood (Ralson et al., 2009; Kim et al., 2007). Understanding consumers and providers' use of these interoperable systems can help aid in improving current systems and developing future systems.

Specific Aims

The specific aims of this study are to describe the usage of BHIX's and LIPIX's novel interoperable personal health management systems, specifically:

  1. To quantify adoption of and frequency of use of novel technological platforms designed to give consumers (patients) access to RHIO-based health information exchange (HIE) data;
  2. To quantify usage of HIE-specific data elements within these platforms;
  3. To explore associations between usage and user demographics/clinical characteristics;
  4. To explore trends in usage over time.

研究类型

观察性的

注册 (预期的)

7800

联系人和位置

本节提供了进行研究的人员的详细联系信息,以及有关进行该研究的地点的信息。

学习地点

    • New York
      • Brooklyn、New York、美国、11219
        • Brooklyn Health Information Exchange (BHIX)
      • New York、New York、美国、10065
        • Weill Cornell Medical College
      • Rockville Centre、New York、美国、11570
        • Long Island Patient Information Xchange (LIPIX)

参与标准

研究人员寻找符合特定描述的人,称为资格标准。这些标准的一些例子是一个人的一般健康状况或先前的治疗。

资格标准

适合学习的年龄

18年 及以上 (成人、年长者)

接受健康志愿者

不

有资格学习的性别

全部

取样方法

非概率样本

研究人群

Consumers (patients and their proxies) and their healthcare providers who are being exposed to a novel interoperable personal health management system in the Brooklyn community.

描述

Inclusion Criteria:

  • Consumers: Consumers (patients or their designated proxies)who are 18 years of age or older and who have registered for either BHIX's personal health record system or LIPIX's secure messaging system.
  • Providers: Healthcare Providers who are authorized to view Health Information Exchange data of BHIX or LIPIX.

Exclusion Criteria:

  • Anyone that does not fall into the above inclusion category.

学习计划

本节提供研究计划的详细信息,包括研究的设计方式和研究的衡量标准。

研究是如何设计的?

设计细节

队列和干预

团体/队列
干预/治疗
Consumers
Consumers (patients or their designated proxies) who have registered to use the personal health management technology platform offered by the Brooklyn Health Information Xchange (BHIX) or Long Island Patient Information Xchange (LIPIX).
BHIX and LIPIX are offering novel personal health management system to members of its community. These community members, also referred to as consumers, will include patients & their designated proxies. BHIX's system will allow patients to perform various tasks, including, but not limited to, viewing medications, medical allergies and lab results. LIPIX's system is primarily a mechanism forc consumers/patients to communicate directly with their physician through a secure messaging portal. Healthcare providers of these patients, who are affiliated with BHIX, will also be able to view the data entered by consumers in this personal health management system through the RHIO's health information exchange. Thus, the intervention of a personal health management system is being offered to both groups, however in different forms.
Providers
Providers who are authorized to view the data entered by consumers in either (1) BHIX's personal health management system, along with BHIX health information exchange data; OR LIPIX's secure messaging system (SMS), along with LIPIX health information exchange data.
BHIX and LIPIX are offering novel personal health management system to members of its community. These community members, also referred to as consumers, will include patients & their designated proxies. BHIX's system will allow patients to perform various tasks, including, but not limited to, viewing medications, medical allergies and lab results. LIPIX's system is primarily a mechanism forc consumers/patients to communicate directly with their physician through a secure messaging portal. Healthcare providers of these patients, who are affiliated with BHIX, will also be able to view the data entered by consumers in this personal health management system through the RHIO's health information exchange. Thus, the intervention of a personal health management system is being offered to both groups, however in different forms.

研究衡量的是什么?

主要结果指标

结果测量
措施说明
大体时间
Understand Usage Patterns of a Novel Health Information Exchange (HIE) Technology Platform
大体时间:1 year
To describe & quantify the usage of a novel Health Information Exchange (HIE) technology platform in order to understand usage patterns, e.g. frequency of system use; frequency of data element use within theses platforms; associations between usage and user demographics/clinical characteristics. This information can be useful in helping to improve current systems and develop future systems.
1 year

次要结果测量

结果测量
措施说明
大体时间
Understand Trends in Usage over Time
大体时间:1 year
To describe trends in the usage of a novel HIE technology platform over time. This information can be useful in helping to improve current systems and develop future systems.
1 year

合作者和调查者

在这里您可以找到参与这项研究的人员和组织。

调查人员

  • 学习椅:Jessica S Ancker, MPH, PhD、Weill Medical College of Cornell University
  • 首席研究员:Melissa C Miller, MPH、Weill Medical College of Cornell University
  • 首席研究员:Alison Edwards, MStat、Weill Medical College of Cornell University
  • 首席研究员:Yolanda Barron, MS、Weill Medical College of Cornell University

研究记录日期

这些日期跟踪向 ClinicalTrials.gov 提交研究记录和摘要结果的进度。研究记录和报告的结果由国家医学图书馆 (NLM) 审查,以确保它们在发布到公共网站之前符合特定的质量控制标准。

研究主要日期

学习开始

2011年4月1日

初级完成 (实际的)

2012年8月1日

研究完成 (实际的)

2012年10月1日

研究注册日期

首次提交

2010年11月29日

首先提交符合 QC 标准的

2010年11月29日

首次发布 (估计)

2010年11月30日

研究记录更新

最后更新发布 (估计)

2012年12月24日

上次提交的符合 QC 标准的更新

2012年12月20日

最后验证

2012年12月1日

更多信息

此信息直接从 clinicaltrials.gov 网站检索,没有任何更改。如果您有任何更改、删除或更新研究详细信息的请求,请联系 register@clinicaltrials.gov. clinicaltrials.gov 上实施更改,我们的网站上也会自动更新.

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