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Usage of Health Information Exchange (HIE) Technologies

20. december 2012 opdateret af: Weill Medical College of Cornell University

Patient Adoption and Use of Health Information Exchange (HIE) Technologies

The purpose of this research study is to describe the usage of consumers and providers when using a novel technology designed to give consumers the ability to manage and access their health information. This is a quantitative descriptive analysis study.

Studieoversigt

Status

Afsluttet

Betingelser

Intervention / Behandling

Detaljeret beskrivelse

New York State has awarded grants to several regional health information exchange organizations (RHIOs), organizations established to create the technical and policy infrastructure needed to exchange health data between providers, payers, and public health agencies within a particular geographic region, to build an interoperable system for people to manage their own health information. Two of these grant recipients are the Brooklyn Health Information Exchange (BHIX) and Long Island Patient Information Xchange (LIPIX).

Since no off-the shelf technology currently exists to create such a system, BHIX is working with a commercial vendor to develop a unique system that is tailored toward the needs of their consumers and providers, while LIPIX is developing their own unique system in-house. Both BHIX's and LIPIX's interoperable personal health management systems will offer various features to consumers and providers in their community. Consumers may be able to perform tasks such as viewing their lab results, scheduling an appointment, or sending a message directly to their physician through a SMS. Conversely, the PHR can also allow physicians to engage in communications with their patient, release data to their patient(s) (e.g. lab test result); and view patient inputted-data.

The usage patterns of these personal health managements systems is not well understood (Ralson et al., 2009; Kim et al., 2007). Understanding consumers and providers' use of these interoperable systems can help aid in improving current systems and developing future systems.

Specific Aims

The specific aims of this study are to describe the usage of BHIX's and LIPIX's novel interoperable personal health management systems, specifically:

  1. To quantify adoption of and frequency of use of novel technological platforms designed to give consumers (patients) access to RHIO-based health information exchange (HIE) data;
  2. To quantify usage of HIE-specific data elements within these platforms;
  3. To explore associations between usage and user demographics/clinical characteristics;
  4. To explore trends in usage over time.

Undersøgelsestype

Observationel

Tilmelding (Forventet)

7800

Kontakter og lokationer

Dette afsnit indeholder kontaktoplysninger for dem, der udfører undersøgelsen, og oplysninger om, hvor denne undersøgelse udføres.

Studiesteder

  • Forenede Stater
    • New York
      • Brooklyn, New York, Forenede Stater, 11219
        • Brooklyn Health Information Exchange (BHIX)
      • New York, New York, Forenede Stater, 10065
        • Weill Cornell Medical College
      • Rockville Centre, New York, Forenede Stater, 11570
        • Long Island Patient Information Xchange (LIPIX)

Deltagelseskriterier

Forskere leder efter personer, der passer til en bestemt beskrivelse, kaldet berettigelseskriterier. Nogle eksempler på disse kriterier er en persons generelle helbredstilstand eller tidligere behandlinger.

Berettigelseskriterier

Aldre berettiget til at studere

18 år og ældre (Voksen, Ældre voksen)

Tager imod sunde frivillige

Ingen

Køn, der er berettiget til at studere

Alle

Prøveudtagningsmetode

Ikke-sandsynlighedsprøve

Studiebefolkning

Consumers (patients and their proxies) and their healthcare providers who are being exposed to a novel interoperable personal health management system in the Brooklyn community.

Beskrivelse

Inclusion Criteria:

  • Consumers: Consumers (patients or their designated proxies)who are 18 years of age or older and who have registered for either BHIX's personal health record system or LIPIX's secure messaging system.
  • Providers: Healthcare Providers who are authorized to view Health Information Exchange data of BHIX or LIPIX.

Exclusion Criteria:

  • Anyone that does not fall into the above inclusion category.

Studieplan

Dette afsnit indeholder detaljer om studieplanen, herunder hvordan undersøgelsen er designet, og hvad undersøgelsen måler.

Hvordan er undersøgelsen tilrettelagt?

Design detaljer

Kohorter og interventioner

Gruppe / kohorte
Intervention / Behandling
Consumers
Consumers (patients or their designated proxies) who have registered to use the personal health management technology platform offered by the Brooklyn Health Information Xchange (BHIX) or Long Island Patient Information Xchange (LIPIX).
Andet: Personal Health Management System
BHIX and LIPIX are offering novel personal health management system to members of its community. These community members, also referred to as consumers, will include patients & their designated proxies. BHIX's system will allow patients to perform various tasks, including, but not limited to, viewing medications, medical allergies and lab results. LIPIX's system is primarily a mechanism forc consumers/patients to communicate directly with their physician through a secure messaging portal. Healthcare providers of these patients, who are affiliated with BHIX, will also be able to view the data entered by consumers in this personal health management system through the RHIO's health information exchange. Thus, the intervention of a personal health management system is being offered to both groups, however in different forms.
Providers
Providers who are authorized to view the data entered by consumers in either (1) BHIX's personal health management system, along with BHIX health information exchange data; OR LIPIX's secure messaging system (SMS), along with LIPIX health information exchange data.
Andet: Personal Health Management System
BHIX and LIPIX are offering novel personal health management system to members of its community. These community members, also referred to as consumers, will include patients & their designated proxies. BHIX's system will allow patients to perform various tasks, including, but not limited to, viewing medications, medical allergies and lab results. LIPIX's system is primarily a mechanism forc consumers/patients to communicate directly with their physician through a secure messaging portal. Healthcare providers of these patients, who are affiliated with BHIX, will also be able to view the data entered by consumers in this personal health management system through the RHIO's health information exchange. Thus, the intervention of a personal health management system is being offered to both groups, however in different forms.

Hvad måler undersøgelsen?

Primære resultatmål

Resultatmål
Foranstaltningsbeskrivelse
Tidsramme
Understand Usage Patterns of a Novel Health Information Exchange (HIE) Technology Platform
Tidsramme: 1 year
To describe & quantify the usage of a novel Health Information Exchange (HIE) technology platform in order to understand usage patterns, e.g. frequency of system use; frequency of data element use within theses platforms; associations between usage and user demographics/clinical characteristics. This information can be useful in helping to improve current systems and develop future systems.
1 year

Sekundære resultatmål

Resultatmål
Foranstaltningsbeskrivelse
Tidsramme
Understand Trends in Usage over Time
Tidsramme: 1 year
To describe trends in the usage of a novel HIE technology platform over time. This information can be useful in helping to improve current systems and develop future systems.
1 year

Samarbejdspartnere og efterforskere

Det er her, du vil finde personer og organisationer, der er involveret i denne undersøgelse.

Sponsor

Weill Medical College of Cornell University

Samarbejdspartnere

Maimonides Medical Center
New York State Department of Health

Efterforskere

  • Studiestol: Jessica S Ancker, MPH, PhD, Weill Medical College of Cornell University
  • Ledende efterforsker: Melissa C Miller, MPH, Weill Medical College of Cornell University
  • Ledende efterforsker: Alison Edwards, MStat, Weill Medical College of Cornell University
  • Ledende efterforsker: Yolanda Barron, MS, Weill Medical College of Cornell University

Datoer for undersøgelser

Disse datoer sporer fremskridtene for indsendelser af undersøgelsesrekord og resumeresultater til ClinicalTrials.gov. Studieregistreringer og rapporterede resultater gennemgås af National Library of Medicine (NLM) for at sikre, at de opfylder specifikke kvalitetskontrolstandarder, før de offentliggøres på den offentlige hjemmeside.

Studer store datoer

Studiestart

1. april 2011

Primær færdiggørelse (Faktiske)

1. august 2012

Studieafslutning (Faktiske)

1. oktober 2012

Datoer for studieregistrering

Først indsendt

29. november 2010

Først indsendt, der opfyldte QC-kriterier

29. november 2010

Først opslået (Skøn)

30. november 2010

Opdateringer af undersøgelsesjournaler

Sidste opdatering sendt (Skøn)

24. december 2012

Sidste opdatering indsendt, der opfyldte kvalitetskontrolkriterier

20. december 2012

Sidst verificeret

1. december 2012

Mere information

Begreber relateret til denne undersøgelse

Nøgleord

Andre undersøgelses-id-numre

  • C023699-16

Disse oplysninger blev hentet direkte fra webstedet clinicaltrials.gov uden ændringer. Hvis du har nogen anmodninger om at ændre, fjerne eller opdatere dine undersøgelsesoplysninger, bedes du kontakte register@clinicaltrials.gov. Så snart en ændring er implementeret på clinicaltrials.gov, vil denne også blive opdateret automatisk på vores hjemmeside .

Kliniske forsøg med Health Records, Personal

Kliniske forsøg med Personal Health Management System

Søg i lignende forsøg

Sponsorer og samarbejdspartnere

Medicinske tilstande

Narkotikainterventioner

CROs by country

CROs in Saudi Arabia

Betingelser

Sjældne sygdomme

Narkotikainterventioner

Kosttilskud

Sponsor / samarbejdspartnere

Placeringer

Abonner