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Usage of Health Information Exchange (HIE) Technologies

20 december 2012 bijgewerkt door: Weill Medical College of Cornell University

Patient Adoption and Use of Health Information Exchange (HIE) Technologies

The purpose of this research study is to describe the usage of consumers and providers when using a novel technology designed to give consumers the ability to manage and access their health information. This is a quantitative descriptive analysis study.

Studie Overzicht

Toestand

Voltooid

Conditie

Interventie / Behandeling

Gedetailleerde beschrijving

New York State has awarded grants to several regional health information exchange organizations (RHIOs), organizations established to create the technical and policy infrastructure needed to exchange health data between providers, payers, and public health agencies within a particular geographic region, to build an interoperable system for people to manage their own health information. Two of these grant recipients are the Brooklyn Health Information Exchange (BHIX) and Long Island Patient Information Xchange (LIPIX).

Since no off-the shelf technology currently exists to create such a system, BHIX is working with a commercial vendor to develop a unique system that is tailored toward the needs of their consumers and providers, while LIPIX is developing their own unique system in-house. Both BHIX's and LIPIX's interoperable personal health management systems will offer various features to consumers and providers in their community. Consumers may be able to perform tasks such as viewing their lab results, scheduling an appointment, or sending a message directly to their physician through a SMS. Conversely, the PHR can also allow physicians to engage in communications with their patient, release data to their patient(s) (e.g. lab test result); and view patient inputted-data.

The usage patterns of these personal health managements systems is not well understood (Ralson et al., 2009; Kim et al., 2007). Understanding consumers and providers' use of these interoperable systems can help aid in improving current systems and developing future systems.

Specific Aims

The specific aims of this study are to describe the usage of BHIX's and LIPIX's novel interoperable personal health management systems, specifically:

  1. To quantify adoption of and frequency of use of novel technological platforms designed to give consumers (patients) access to RHIO-based health information exchange (HIE) data;
  2. To quantify usage of HIE-specific data elements within these platforms;
  3. To explore associations between usage and user demographics/clinical characteristics;
  4. To explore trends in usage over time.

Studietype

Observationeel

Inschrijving (Verwacht)

7800

Contacten en locaties

In dit gedeelte vindt u de contactgegevens van degenen die het onderzoek uitvoeren en informatie over waar dit onderzoek wordt uitgevoerd.

Studie Locaties

  • Verenigde Staten
    • New York
      • Brooklyn, New York, Verenigde Staten, 11219
        • Brooklyn Health Information Exchange (BHIX)
      • New York, New York, Verenigde Staten, 10065
        • Weill Cornell Medical College
      • Rockville Centre, New York, Verenigde Staten, 11570
        • Long Island Patient Information Xchange (LIPIX)

Deelname Criteria

Onderzoekers zoeken naar mensen die aan een bepaalde beschrijving voldoen, de zogenaamde geschiktheidscriteria. Enkele voorbeelden van deze criteria zijn iemands algemene gezondheidstoestand of eerdere behandelingen.

Geschiktheidscriteria

Leeftijden die in aanmerking komen voor studie

18 jaar en ouder (Volwassen, Oudere volwassene)

Accepteert gezonde vrijwilligers

Nee

Geslachten die in aanmerking komen voor studie

Allemaal

Bemonsteringsmethode

Niet-waarschijnlijkheidssteekproef

Studie Bevolking

Consumers (patients and their proxies) and their healthcare providers who are being exposed to a novel interoperable personal health management system in the Brooklyn community.

Beschrijving

Inclusion Criteria:

  • Consumers: Consumers (patients or their designated proxies)who are 18 years of age or older and who have registered for either BHIX's personal health record system or LIPIX's secure messaging system.
  • Providers: Healthcare Providers who are authorized to view Health Information Exchange data of BHIX or LIPIX.

Exclusion Criteria:

  • Anyone that does not fall into the above inclusion category.

Studie plan

Dit gedeelte bevat details van het studieplan, inclusief hoe de studie is opgezet en wat de studie meet.

Hoe is de studie opgezet?

Ontwerpdetails

Cohorten en interventies

Groep / Cohort
Interventie / Behandeling
Consumers
Consumers (patients or their designated proxies) who have registered to use the personal health management technology platform offered by the Brooklyn Health Information Xchange (BHIX) or Long Island Patient Information Xchange (LIPIX).
Ander: Personal Health Management System
BHIX and LIPIX are offering novel personal health management system to members of its community. These community members, also referred to as consumers, will include patients & their designated proxies. BHIX's system will allow patients to perform various tasks, including, but not limited to, viewing medications, medical allergies and lab results. LIPIX's system is primarily a mechanism forc consumers/patients to communicate directly with their physician through a secure messaging portal. Healthcare providers of these patients, who are affiliated with BHIX, will also be able to view the data entered by consumers in this personal health management system through the RHIO's health information exchange. Thus, the intervention of a personal health management system is being offered to both groups, however in different forms.
Providers
Providers who are authorized to view the data entered by consumers in either (1) BHIX's personal health management system, along with BHIX health information exchange data; OR LIPIX's secure messaging system (SMS), along with LIPIX health information exchange data.
Ander: Personal Health Management System
BHIX and LIPIX are offering novel personal health management system to members of its community. These community members, also referred to as consumers, will include patients & their designated proxies. BHIX's system will allow patients to perform various tasks, including, but not limited to, viewing medications, medical allergies and lab results. LIPIX's system is primarily a mechanism forc consumers/patients to communicate directly with their physician through a secure messaging portal. Healthcare providers of these patients, who are affiliated with BHIX, will also be able to view the data entered by consumers in this personal health management system through the RHIO's health information exchange. Thus, the intervention of a personal health management system is being offered to both groups, however in different forms.

Wat meet het onderzoek?

Primaire uitkomstmaten

Uitkomstmaat
Maatregel Beschrijving
Tijdsspanne
Understand Usage Patterns of a Novel Health Information Exchange (HIE) Technology Platform
Tijdsspanne: 1 year
To describe & quantify the usage of a novel Health Information Exchange (HIE) technology platform in order to understand usage patterns, e.g. frequency of system use; frequency of data element use within theses platforms; associations between usage and user demographics/clinical characteristics. This information can be useful in helping to improve current systems and develop future systems.
1 year

Secundaire uitkomstmaten

Uitkomstmaat
Maatregel Beschrijving
Tijdsspanne
Understand Trends in Usage over Time
Tijdsspanne: 1 year
To describe trends in the usage of a novel HIE technology platform over time. This information can be useful in helping to improve current systems and develop future systems.
1 year

Medewerkers en onderzoekers

Hier vindt u mensen en organisaties die betrokken zijn bij dit onderzoek.

Sponsor

Weill Medical College of Cornell University

Medewerkers

Maimonides Medical Center
New York State Department of Health

Onderzoekers

  • Studie stoel: Jessica S Ancker, MPH, PhD, Weill Medical College of Cornell University
  • Hoofdonderzoeker: Melissa C Miller, MPH, Weill Medical College of Cornell University
  • Hoofdonderzoeker: Alison Edwards, MStat, Weill Medical College of Cornell University
  • Hoofdonderzoeker: Yolanda Barron, MS, Weill Medical College of Cornell University

Studie record data

Deze datums volgen de voortgang van het onderzoeksdossier en de samenvatting van de ingediende resultaten bij ClinicalTrials.gov. Studieverslagen en gerapporteerde resultaten worden beoordeeld door de National Library of Medicine (NLM) om er zeker van te zijn dat ze voldoen aan specifieke kwaliteitscontrolenormen voordat ze op de openbare website worden geplaatst.

Bestudeer belangrijke data

Studie start

1 april 2011

Primaire voltooiing (Werkelijk)

1 augustus 2012

Studie voltooiing (Werkelijk)

1 oktober 2012

Studieregistratiedata

Eerst ingediend

29 november 2010

Eerst ingediend dat voldeed aan de QC-criteria

29 november 2010

Eerst geplaatst (Schatting)

30 november 2010

Updates van studierecords

Laatste update geplaatst (Schatting)

24 december 2012

Laatste update ingediend die voldeed aan QC-criteria

20 december 2012

Laatst geverifieerd

1 december 2012

Meer informatie

Termen gerelateerd aan deze studie

Trefwoorden

Andere studie-ID-nummers

  • C023699-16

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