Parkinson's Disease Registry of the Muhammad Ali Parkinson Center

July 20, 2010 updated by: Muhammad Ali Parkinson Research Center

Parkinson's Disease Registry

The purpose of the Parkinson's disease Registry is to develop a national and international database of persons with Parkinson's disease (PD). The Registry will be used to facilitate the development of new therapies and healthcare services to improve the quality of life for people with PD. It will also be a means for investigators in the field of PD to quickly identify and notify subjects about other research studies for which they are eligible.

Objectives include:

  • Assess current treatment approaches and develop best-practice guidelines
  • Track the functional abilities, access to healthcare and cost of illness of people with PD over time
  • Drive the development of innovative research projects
  • Accelerate the process of informing patients of research projects for which they may be eligible

Study Overview

Status

Unknown

Conditions

Detailed Description

What do you need to know?

  • Any individual diagnosed with PD is eligible to enroll.
  • Participation in the registry is voluntary, confidential and free of charge.
  • Eligible participants will be notified about opportunities to participate in clinical trials, though they are under no obligation to enter.
  • Participants will need to complete an updated questionnaire every six months.
  • Participants may also be asked to complete additional surveys for PD research projects.
  • Any data provided will be used in scientific publications in summary form only.
  • Participant names will not be released to anyone outside the Parkinson's disease Registry management team without written authorization, nor will names be sold for advertising or fund-raising purposes.

Study Type

Observational

Enrollment (Anticipated)

20000

Contacts and Locations

This section provides the contact details for those conducting the study, and information on where this study is being conducted.

Study Locations

    • Arizona
      • Phoenix, Arizona, United States, 85013
        • Muhammad Ali Parkinson Research Center

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Eligibility Criteria

Ages Eligible for Study

  • Child
  • Adult
  • Older Adult

Accepts Healthy Volunteers

No

Genders Eligible for Study

All

Sampling Method

Non-Probability Sample

Study Population

Participants must be over 18 years old, have idiopathic Parkinson's disease diagnosed by a physician.

Description

Inclusion Criteria:

  • Clinical diagnosis of Parkinson's disease

Exclusion Criteria:

  • No clinical diagnosis of Parkinson's disease

Study Plan

This section provides details of the study plan, including how the study is designed and what the study is measuring.

How is the study designed?

Design Details

Collaborators and Investigators

This is where you will find people and organizations involved with this study.

Investigators

  • Principal Investigator: Abraham Lieberman, MD, MAPC

Study record dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Major Dates

Study Start

November 1, 2003

Study Completion (Anticipated)

December 1, 2015

Study Registration Dates

First Submitted

September 15, 2005

First Submitted That Met QC Criteria

September 15, 2005

First Posted (Estimate)

September 22, 2005

Study Record Updates

Last Update Posted (Estimate)

July 21, 2010

Last Update Submitted That Met QC Criteria

July 20, 2010

Last Verified

September 1, 2006

More Information

This information was retrieved directly from the website clinicaltrials.gov without any changes. If you have any requests to change, remove or update your study details, please contact register@clinicaltrials.gov. As soon as a change is implemented on clinicaltrials.gov, this will be updated automatically on our website as well.

Clinical Trials on Parkinson's Disease

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