Social Media Perceptions Among Young Adults With Cancer - Aim 1: Interviews
This study used one-on-one interviews to understand young adults' with cancer positive and negative in-person social interactions and thoughts about social media messages that encourage in-person interactions with people they barely know. Young adults with cancer (ages 22-39) shared their reactions to mock social media posts and images and described recent in-person interactions with strangers and acquaintances to inform the design of intervention messages, personal stories, and behavioral tips.
Study Overview
Status
Conditions
Intervention / Treatment
Detailed Description
Participants completed a single, 60-minute semi-structured interview on Zoom following a standardized guide in three parts: 1) sharing a recent positive experience; 2) describing recent in-person interactions with acquaintances and with strangers, including emotional responses, comfort, and experiences discussing their cancer; and 3) reviewing and giving feedback on three image sets (peers experiencing loneliness, peers experiencing connectedness, and spaces where connection could occur) and two mock intervention messages shown as social media posts with a personal story, intervention text, and behavioral tips.
Study Type
Enrollment (Actual)
Contacts and Locations
Study Locations
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North Carolina
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Chapel Hill, North Carolina, United States, 27599
- University of North Carolina at Chapel Hill, Department of Radiation Oncology
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Participation Criteria
Eligibility Criteria
Ages Eligible for Study
Accepts Healthy Volunteers
Genders Eligible for Study
Sampling Method
Study Population
Participants diagnosed with cancer at ages 15-39 who are currently ages 22-39.
Description
Inclusion Criteria:
- Participants must be 22-39 years old
- Participants must have received a cancer diagnosis at ages 15-39
- Participants must also receive treatment at adult oncology facilities
- Participants must also use social media
Exclusion Criteria:
- None
Study Plan
How is the study designed?
Design Details
- Observational Models: COHORT
- Time Perspectives: PROSPECTIVE
Cohorts and Interventions
Group / Cohort |
Intervention / Treatment |
|---|---|
|
Participants joined semi-structured interview
All participants completed a 60-minute semi-structured interview on Zoom, describing recent in-person interactions with strangers and acquaintances and giving feedback on image sets and mock social media intervention messages. |
60-minute semi-structured interview with review of three image sets (loneliness, connectedness, spaces) and two mock intervention messages (connected peer general story, lonely peer cancer story). |
What is the study measuring?
Primary Outcome Measures
Outcome Measure |
Measure Description |
Time Frame |
|---|---|---|
|
Themes in Reactions to Mock Intervention Messages and Images (Semi-Structured Interview Guide; Thematic Analysis)
Time Frame: Baseline, During a single 60-minute interview
|
Using a standardized semi-structured interview guide, participants reviewed three image sets (peers experiencing loneliness, peers experiencing connectedness, and spaces where connection could occur) and two mock intervention messages formatted as social media posts. Participants described what they liked most and least, what caught their attention, whether the images and posts conveyed their intended meaning, and whether the posts might motivate in-person interactions. Interviews were audio-recorded and professionally transcribed. Two coders independently coded each transcript using a thematic analysis framework with an a priori codebook (refined after initial coding), and disagreements were resolved by consensus. |
Baseline, During a single 60-minute interview
|
Secondary Outcome Measures
Outcome Measure |
Measure Description |
Time Frame |
|---|---|---|
|
Themes in In-Person Interactions With Strangers and Acquaintances (Semi-Structured Interview Guide; Thematic Analysis)
Time Frame: Baseline, During a single 60-minute interview
|
Using a standardized semi-structured interview guide, participants described recent in-person interactions with acquaintances and with strangers (asked separately), including where the interaction occurred, how it made them feel, situations that made them comfortable, and experiences discussing their cancer. Transcripts were coded for positive and negative social interactions using the same thematic analysis approach. Themes were used to inform intervention message themes, personal stories, and behavioral tips. |
Baseline, During a single 60-minute interview
|
|
Preferred Social Media Platforms for Intervention Messages (Semi-Structured Interview Guide; Thematic Analysis)
Time Frame: Baseline, During a single 60-minute interview
|
Using a standardized semi-structured interview guide, participants were asked on which social media platforms they would expect to see posts like the mock intervention messages and whether and how they would share them. Platform preferences were coded and summarized using the same thematic analysis approach. |
Baseline, During a single 60-minute interview
|
Collaborators and Investigators
Collaborators
Investigators
- Principal Investigator: Allison J Lazard, PhD, UNC Lineberger Comprehensive Cancer Center
Publications and helpful links
Helpful Links
Study record dates
Study Major Dates
Study Start (Actual)
Primary Completion (Actual)
Study Completion (Actual)
Study Registration Dates
First Submitted
First Submitted That Met QC Criteria
First Posted (Actual)
Study Record Updates
Last Update Posted (Actual)
Last Update Submitted That Met QC Criteria
Last Verified
More Information
Terms related to this study
Keywords
Additional Relevant MeSH Terms
Other Study ID Numbers
- 23-1978-AIM1Interviews
- R01CA276176 (U.S. NIH Grant/Contract)
Plan for Individual participant data (IPD)
Plan to Share Individual Participant Data (IPD)?
IPD Plan Description
De-identified transcripts can be made available upon request secondary to ethics approval.
Drug and device information, study documents
Studies a U.S. FDA-regulated drug product
Studies a U.S. FDA-regulated device product
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