Barriers to Mental Healthcare Utilization in Parkinson's Disease
Parkinson's disease (PD) is the second most common neurodegenerative disorder in the elderly. In most people, the illness is complicated by co-occurring psychiatric problems such as depression and anxiety. These non-motor concerns negatively affect the course and management of the disease, often leading to poor outcomes for both patients and their families. Despite these deleterious consequences, psychiatric symptoms in PD are both underreported by patients as well as under-recognized and under-treated by health care providers.
The primary purpose of this study is to identify and describe barriers to mental healthcare utilization for people with Parkinson's disease. Secondary objectives include the assessment of attitudes and preferences regarding the need for mental health services in the PD community and the acceptability of telehealth interventions as a method for improving access and quality of care. In order to accomplish these aims, participants will be asked to fill out an anonymous survey which will take about 15-30 minutes to complete. To best accommodate PD patients with varying levels of disability, participants will have the option to complete the survey online, on paper, or over the phone. The information obtained from this study will be used to support future treatment development efforts (i.e., phone and internet based interventions, community based trainings with local providers) intended to improve access and quality of mental health care for people with PD. To the best of the investigators knowledge, this is the first study to systematically examine barriers to mental healthcare utilization in PD in a national sample.
Aperçu de l'étude
Statut
Les conditions
Intervention / Traitement
Description détaillée
Type d'étude
Inscription (Réel)
Contacts et emplacements
Lieux d'étude
-
-
New Jersey
-
Piscataway, New Jersey, États-Unis, 08854
- Rutgers-Robert Wood Johnson Medical School
-
-
Critères de participation
Critère d'éligibilité
Âges éligibles pour étudier
Accepte les volontaires sains
Sexes éligibles pour l'étude
Méthode d'échantillonnage
Population étudiée
La description
Inclusion Criteria:
- Diagnosis of Parkinson's disease
- At least 18 years of age
Exclusion Criteria:
- Less than 18 years of age
We are looking for responses from those who have, as well as those who have not, had mental health treatment in the past.
Plan d'étude
Comment l'étude est-elle conçue ?
Détails de conception
- Modèles d'observation: Écologique ou communautaire
- Perspectives temporelles: Transversale
Cohortes et interventions
Groupe / Cohorte |
Intervention / Traitement |
|---|---|
|
People with Parkinson's disease
Individuals diagnosed with Parkinson's disease
|
No intervention.
|
Que mesure l'étude ?
Principaux critères de jugement
Mesure des résultats |
Description de la mesure |
Délai |
|---|---|---|
|
Most Commonly Reported Past Barrier to Mental Health Services: "Anyone in my Situation Would be Struggling"
Délai: Baseline
|
The purpose of this study was to assess the 3 most commonly reported past and future barriers to mental health services.
This outcome represents the most common past barrier to mental health services reported by survey respondents.
The outcome reported is the percentage of all respondents surveyed who endorsed this particular past barrier.
This barrier can best be described as low mental health literacy.
|
Baseline
|
|
2nd Most Commonly Reported Past Barrier to Mental Health Services: "Doctors Are Not Sensitive Enough to PD-related Issues"
Délai: Baseline
|
The purpose of this study was to assess the 3 most commonly reported past and future barriers to mental health services.
This outcome represents the 2nd most common past barrier to mental health services reported by survey respondents.
The outcome reported is the percentage of all respondents surveyed who endorsed this particular past barrier.
This barrier can best be described as limited knowledge of PD amongst treatment providers.
|
Baseline
|
|
3rd Most Commonly Reported Past Barrier to Mental Health Services: "Out of Pocket Cost Was Too High"
Délai: Baseline
|
The purpose of this study was to assess the 3 most commonly reported past and future barriers to mental health services.
This outcome represents the 3rd most common past barrier to mental health services reported by survey respondents.
The outcome reported is the percentage of all respondents surveyed who endorsed this particular past barrier.
This barrier can best be described as limited access.
|
Baseline
|
|
Most Commonly Reported Future Barrier to Mental Health Services: "Out of Pocket Cost Was Too High"
Délai: Baseline
|
The purpose of this study was to assess the 3 most commonly reported past and future barriers to mental health services.
This outcome represents the most common future barrier to mental health service reported by respondents to the survey described in the Methods section.
Outcome is reported as the percentage of all respondents surveyed who endorsed this particular future barrier.
This barrier can best be described as limited access.
|
Baseline
|
|
2nd Most Commonly Reported Future Barrier to Mental Health Services: "Doctors Are Not Sensitive Enough to PD-related Issues"
Délai: Baseline
|
The purpose of this study was to assess the 3 most commonly reported past and future barriers to mental health services.
This outcome represents the 2nd most commonly reported future barrier to mental health services reported by those who responded to the survey described in the Methods section.
Outcome is reported as the percentage of all respondents surveyed who endorsed this particular future barrier.
This barrier can best be described as limited knowledge of PD amongst treatment providers.
|
Baseline
|
|
3rd Most Commonly Reported Future Barrier to Mental Health Services: "Services Are Not Available in my Community"
Délai: Baseline
|
The purpose of this study was to assess the 3 most commonly reported past and future barriers to mental health services.
This outcome represents the 3rd most common future barrier to mental health service reported by respondents to the survey described in the Methods section.
Outcome is reported as the percentage of all respondents surveyed who endorsed this particular future barrier.
This barrier can best be described as limited access.
|
Baseline
|
Collaborateurs et enquêteurs
Les enquêteurs
- Chercheur principal: Roseanne D Dobkin, PhD, Rutgers, The State University of New Jersey
Publications et liens utiles
Dates d'enregistrement des études
Dates principales de l'étude
Début de l'étude
Achèvement primaire (Réel)
Achèvement de l'étude (Réel)
Dates d'inscription aux études
Première soumission
Première soumission répondant aux critères de contrôle qualité
Première publication (Estimation)
Mises à jour des dossiers d'étude
Dernière mise à jour publiée (Réel)
Dernière mise à jour soumise répondant aux critères de contrôle qualité
Dernière vérification
Plus d'information
Termes liés à cette étude
Termes MeSH pertinents supplémentaires
Autres numéros d'identification d'étude
- 0220100120
- 1K23NS052155-01A2 (Subvention/contrat des NIH des États-Unis)
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