Assessing Outcomes of Three Different Museum-based Social Prescription Programs in Autistic Adults
Exploring the Feasibility of Social Prescription in People on the Autism Spectrum
This study will examine whether visiting the National Taiwan Museum can support the social and emotional well-being of autistic adults.
The research team plans to recruit 90 autistic adults aged 18 to 50 from the Department of Psychiatry at National Taiwan University Hospital. Participants must have average-range intellectual ability and be able and willing to complete the study activities and assessments. People with serious physical or mental health conditions that would prevent full participation will not be included. Participants must also agree to audio and video recording during the activities.
After an outpatient doctor confirms eligibility, participants will complete questionnaires and choose one of three museum participation options:
- Visit the museum once independently.
- Join five guided museum visits with group discussions.
- Invite a friend to visit the museum together.
Each group will include about 30 participants.
For the guided group, each session will last about 90 minutes and include a professional museum tour, a question-and-answer period, time for independent exploration, and a group discussion. Participants will be encouraged to select exhibits that interest them, record their observations, share their thoughts, listen to others, and respond to different viewpoints.
The five planned museum themes include Taiwan's history and identity, relationships between people and nature, architecture and living spaces, human evolution and the future, and attitudes toward money and financial planning. The discussions will explore everyday topics such as stereotypes, personal values, preferred living environments, hopes for the future, and managing money.
Participants will complete questionnaires before and after the program. These questionnaires will assess areas such as autistic characteristics, social communication, empathy, sensory experiences, comfort with social touch, emotional skills, loneliness, anxiety, depression, and anxiety during social interaction. Participants will also rate how enjoyable, comfortable, safe, interesting, and socially engaging they found the museum activities.
The researchers will compare participants' results before and after the program. They will also compare the three participation options to determine whether independent visits, guided group activities, or visiting with a friend produce different outcomes.
The overall goal is to understand whether museum-based activities can be used as a form of social prescribing to improve social participation, emotional well-being, confidence, and quality of life among autistic adults.
Aperçu de l'étude
Statut
Description détaillée
This study will evaluate a museum-based social prescribing program for autistic adults with average-range intellectual functioning. Social prescribing is a person-centered approach that connects individuals with nonmedical community resources to support health, well-being, and social participation. Although social prescribing has been applied to people with chronic medical and psychiatric conditions, its effectiveness for autistic adults has not been well established. This study is being conducted through collaboration between the Department of Psychiatry at National Taiwan University Hospital and the National Taiwan Museum.
Approximately 90 autistic adults will be recruited through the outpatient services of National Taiwan University Hospital. After clinical referral and completion of baseline assessments, participants will select one of three museum participation programs, with a target enrollment of approximately 30 participants per group. Because participants choose their preferred program, assignment is nonrandomized.
The three programs are:
- **Independent Museum Visit:** Participants will visit the National Taiwan Museum once at a time of their choosing.
- **Guided Museum Program:** Participants will attend five structured group sessions, with approximately 10-15 participants per group. Each session will last approximately 90 minutes and will include a museum-guided introduction, a question-and-answer period, independent exploration of selected exhibits, and a facilitated group discussion.
- **Museum Visit With a Friend:** Participants will invite a friend or companion to visit the museum with them.
The guided program will use permanent museum exhibitions as prompts for social interaction, reflection, and discussion. Proposed themes include stereotypes and personal identity, relationships between people and nature, ideals and realities of living environments, human evolution and the future, and personal attitudes toward money and financial planning. During the discussion period, participants will share observations or photographs from the exhibits, listen to other participants, provide feedback, and express their own perspectives.
Quantitative assessments will be administered before participation and, for selected measures, after completion of the assigned museum program. Baseline assessments will characterize autism-related traits, social responsiveness, sensory processing, sensory sensitivity, attitudes toward social touch, emotional functioning, loneliness, anxiety, depression, and social interaction anxiety. Post-program assessments will focus on changes in emotional functioning, loneliness, anxiety, depression, and social interaction anxiety, as well as satisfaction with the museum experience.
Participants who complete their selected program may also be invited to take part in a focus group lasting approximately 30-60 minutes. The discussion will explore perceived benefits, difficulties, satisfaction, and recommendations for improving the program. Focus groups will be audio- and video-recorded and transcribed for qualitative analysis.
Quantitative analyses will examine within-participant changes in emotional intelligence, loneliness, anxiety, depression, and social interaction anxiety. Differences among the three participation programs will also be evaluated, including differences in activity satisfaction and changes from baseline. Exploratory analyses will examine whether baseline autism-related, social, and sensory characteristics are associated with program response. Qualitative data will be summarized thematically to identify perceived benefits and areas requiring improvement.
All research records will be identified by study code rather than participant name. Paper records will be stored in locked cabinets, and electronic files, including audio and video recordings, will be stored on password-protected computers. Study data will be retained for 20 years and then destroyed according to institutional procedures.
Type d'étude
Inscription (Estimé)
Phase
- N'est pas applicable
Contacts et emplacements
Coordonnées de l'étude
- Nom: Yi-Ling Chien, MD, PhD
- Numéro de téléphone: 266013 +866+223123456
- E-mail: ntuh.peers@gmail.com
Lieux d'étude
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Taipei, Taïwan
- Recrutement
- National Taiwan University Hospital
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Contact:
- Yi-Ling Chien, MD, PhD
- Numéro de téléphone: 266013 +886-223123456
- E-mail: ntuh.peers@gmail.com
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Critères de participation
Critère d'éligibilité
Âges éligibles pour étudier
- Adulte
Accepte les volontaires sains
La description
Inclusion Criteria:
- Meet the diagnostic criteria for autism spectrum disorder.
- Have intellectual functioning within the normal range.
- Be willing and able to participate in the study procedures.
- Be willing to attend the relevant museum activities and group discussions, when applicable.
- Agree to audio and video recording during relevant study activities.
Exclusion Criteria:
- Are unwilling to complete the required assessments.
- Have a serious physical or psychiatric condition that limits their physical stamina, emotional capacity, or ability to understand and complete the study procedures.
- Refuse audio or video recording.
Plan d'étude
Comment l'étude est-elle conçue ?
Détails de conception
- Objectif principal: Soins de soutien
- Répartition: Non randomisé
- Modèle interventionnel: Affectation parallèle
- Masquage: Aucun (étiquette ouverte)
Armes et Interventions
Groupe de participants / Bras |
Intervention / Traitement |
|---|---|
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Expérimental: Independent museum visit
Will visit the museum independently on one occasion
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Visit the museum independently on one occasion
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Expérimental: Guided museum visits and group discussions
Will attend five structured museum sessions with a group of approximately 10 to 15 participants.
Every session will consist of a guided museum visit followed by a facilitated group discussion.
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Participants will attend five structured museum sessions.
Each group will include approximately 10 to 15 participants.
Every session will consist of a guided museum visit followed by a facilitated group discussion.
|
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Expérimental: Museum visit with a friend
Will invite a friend or companion of their choice to visit the museum with them
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Participants will invite a friend or companion of their choice to visit the museum with them.
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Que mesure l'étude ?
Principaux critères de jugement
Mesure des résultats |
Description de la mesure |
Délai |
|---|---|---|
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Activity satisfaction
Délai: Change from baseline to after the intervention
|
Participants will also complete an activity evaluation based on the University College London Museum Wellbeing Questionnaire. The questionnaire contains 12 items rated on a five-point scale from "never" to "always." It assesses whether participants: Felt happy. Became absorbed in the activity. Felt comfortable and relaxed. Felt safe and secure. Enjoyed the company of others. Enjoyed talking with other people. Found the activity new and interesting. Enjoyed taking part. Found the activity arrangement engaging. Considered the activity entertaining. Felt confident while participating. Experienced a sense of physical and emotional well-being after the activity. Higher scores suggest greater satisfaction. |
Change from baseline to after the intervention
|
Mesures de résultats secondaires
Mesure des résultats |
Description de la mesure |
Délai |
|---|---|---|
|
Loneliness
Délai: Change from baseline to after the intervention
|
Measured using the UCLA Loneliness Scale, a 20-item measure of loneliness and perceived social isolation.
Participants indicate how often they experience feelings described in each item.
Higher scores indicate more loneliness.
|
Change from baseline to after the intervention
|
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Emotional intelligence
Délai: Change from baseline to after the intervention
|
The Schutte Emotional Intelligence Scale is a 33-item measure of emotional abilities.
It assesses areas such as expressing emotions, understanding one's own emotions, understanding the emotions of others, and using emotions to support problem-solving.
Higher scores suggest higher emotional intelligence and functioning.
|
Change from baseline to after the intervention
|
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Social interaction anxiety
Délai: Change from baseline to after the intervention
|
The Social Interaction Anxiety Scale is a self-report measure of anxiety experienced during interactions with other people.
Participants rate how closely each item reflects their usual experiences.
Higher scores indicate greater social interaction anxiety.
|
Change from baseline to after the intervention
|
|
Depression
Délai: Change from baseline to after the intervention
|
The Beck Depression Inventory is a 21-item questionnaire used to assess the severity of depressive symptoms.
Higher scores indicate more severe depressive symptoms.
|
Change from baseline to after the intervention
|
|
Anxiety
Délai: Change from baseline to after the intervention
|
Measured using the Beck Anxiety Inventory, a 21-item questionnaire that assesses the severity of anxiety symptoms during the previous month.
It covers physical symptoms, nervous-system responses, panic-related symptoms, and subjective feelings of anxiety.
Higher scores indicate more severe anxiety symptoms.
|
Change from baseline to after the intervention
|
Autres mesures de résultats
Mesure des résultats |
Description de la mesure |
Délai |
|---|---|---|
|
Autistic characteristics
Délai: Change from baseline to after the intervention
|
The Autism Spectrum Quotient is a 50-item questionnaire used to assess autistic characteristics.
It may be completed by the participant or an observer.
Items are rated using four response options and then converted into binary scores.
The total score ranges from 0 to 50, with higher scores indicating more pronounced autistic characteristics.
|
Change from baseline to after the intervention
|
|
Empathy
Délai: Change from baseline to after the intervention
|
The Empathy Quotient is a 40-item questionnaire used to assess empathy-related abilities.
It may be completed by the participant or an observer.
Items are rated using four response options and converted into binary scores.
Lower total scores indicate greater difficulty with empathy.
|
Change from baseline to after the intervention
|
|
Social responsiveness
Délai: Change from baseline to after the intervention
|
The Social Responsiveness Scale is a 65-item measure of autistic characteristics that can be observed in everyday social situations.
It assesses social awareness, social information processing, reciprocal social communication, social avoidance, and restricted or repetitive behavior.
It may be completed by the participant or a caregiver.
Higher scores indicate greater social and behavioral difficulties associated with autism.
|
Change from baseline to after the intervention
|
|
Sensory processing patterns
Délai: Change from baseline to after the intervention
|
The Adolescent/Adult Sensory Profile is a 60-item self-report questionnaire that assesses how individuals respond to sensory experiences in daily life. It covers visual, auditory, tactile, taste and smell, body-position, and activity-related experiences. The measure evaluates four sensory-processing patterns: Low registration. Sensation seeking. Sensory sensitivity. Sensation avoiding. |
Change from baseline to after the intervention
|
|
Sensory perception
Délai: Change from baseline to after the intervention
|
The Sensory Perception Quotient is a brief 10-item self-report measure of sensitivity across five sensory systems: vision, hearing, touch, taste, and smell.
Each sensory area is assessed using two items.
Scores from all items are summed to provide an overall sensory-perception score.
Higher scores mean greater sensory perception and sensitivity.
|
Change from baseline to after the intervention
|
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Social touch sensistivity
Délai: Change from baseline to after the intervention
|
The Social Touch Questionnaire is a 20-item self-report measure used to assess comfort or discomfort with social touch.
Items are rated on a five-point scale.
Half of the items are reverse-scored.
Total scores range from 0 to 80, with higher scores reflecting greater discomfort or avoidance related to social touch.
|
Change from baseline to after the intervention
|
Collaborateurs et enquêteurs
Parrainer
Collaborateurs
Publications et liens utiles
Publications générales
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- World Health Organization. (2022). A toolkit on how to implement social prescribing
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- Yadav UN, Paudel G, Ghimire S, Khatiwada B, Gurung A, Parsekar SS, Mistry SK. A rapid review of opportunities and challenges in the implementation of social prescription interventions for addressing the unmet needs of individuals living with long-term chronic conditions. BMC Public Health. 2024 Jan 27;24(1):306. doi: 10.1186/s12889-024-17736-2.
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- Simpson S, Furlong M, Giebel C. Exploring the enablers and barriers to social prescribing for people living with long-term neurological conditions: a focus group investigation. BMC Health Serv Res. 2021 Nov 13;21(1):1230. doi: 10.1186/s12913-021-07213-6.
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- Moffatt S, Steer M, Lawson S, Penn L, O'Brien N. Link Worker social prescribing to improve health and well-being for people with long-term conditions: qualitative study of service user perceptions. BMJ Open. 2017 Jul 16;7(7):e015203. doi: 10.1136/bmjopen-2016-015203.
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Dates d'enregistrement des études
Dates principales de l'étude
Début de l'étude (Réel)
Achèvement primaire (Estimé)
Achèvement de l'étude (Estimé)
Dates d'inscription aux études
Première soumission
Première soumission répondant aux critères de contrôle qualité
Première publication (Réel)
Mises à jour des dossiers d'étude
Dernière mise à jour publiée (Réel)
Dernière mise à jour soumise répondant aux critères de contrôle qualité
Dernière vérification
Plus d'information
Termes liés à cette étude
Mots clés
Termes MeSH pertinents supplémentaires
Autres numéros d'identification d'étude
- 202404073RINA
Plan pour les données individuelles des participants (IPD)
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Informations sur les médicaments et les dispositifs, documents d'étude
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