When Distance is an Act of Love: Exploring the Use of Video Diaries for Family Members of Intensive Care Patients
Due to Covid-19, intensive care (ICU) patients are not allowed visitors or have severely restricted visiting. After being admitted to ICU most patients are unconscious or extremely weak and therefore cannot speak on a phone or video call to a family member. Before these visiting restrictions, family members of patients admitted to ICU as a result of being critically ill were already known to suffer significant psychological distress and may now face increased distress given they are unable to visit a loved one.
Previous research demonstrates that keeping a paper diary has been found to be helpful for ICU patients and families. When lockdown measures were announced, NHS Scotland introduced video diaries as an emergency measure to try to support communication with families and reduce distress. vCreate is an NHS Trusted secure video messaging service that helps patients, families and clinical teams stay connected throughout their care journey. The use of video diaries may have a positive impact for family members but there is a risk that they could also have negative effects for some people. There is a need to explore both ICU healthcare professionals and family members' experiences of using video diaries. At the same time it is also important to test the feasibility and acceptability of measures of distress and psychological well-being on family members during and after their experience of video diaries. In doing so, some initial recommendations about video diaries can be made and a larger subsequent study planned to test their effect on family members and healthcare professionals.
調査の概要
研究の種類
入学 (予想される)
連絡先と場所
研究連絡先
- 名前:Sheila Rodgers, PhD
- 電話番号:0131650100
- メール:v1srodg3@ed.ac.uk
研究連絡先のバックアップ
- 名前:Eddie Donaghy, PhD
- 電話番号:07766 772645
- メール:Eddie.donaghy@ed.ac.uk
研究場所
-
-
Lothian
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Edinburgh、Lothian、イギリス、EH8 9AG
- 募集
- University of Edinburgh
-
コンタクト:
- Sheila Rodgers, PhD
- 電話番号:+44131650100
- メール:v1srodg3@ed.ac.uk
-
コンタクト:
- Eddie Donaghy, PhD
- 電話番号:+447766772645
- メール:Eddie.donaghy@ed.ac.uk
-
-
参加基準
適格基準
就学可能な年齢
健康ボランティアの受け入れ
受講資格のある性別
サンプリング方法
調査対象母集団
説明
Inclusion Criteria:
- (i) Family Members in Lothian aged ≥16 years receiving a video diary for an ICU patient who stays in ICU for ≥24 hours or more. If the patient dies, family members will be invited to continue in the study.
(ii) ICU healthcare staff in NHS Lothian who have experience of using the video diary to support family members during lockdown.
Exclusion Criteria:
Prisoners Family members lacking capacity to consent Family members aged under 16 years
研究計画
研究はどのように設計されていますか?
デザインの詳細
コホートと介入
グループ/コホート |
|---|
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Healthcare professionals
No intervention.
Gathering data on their experiences of using video diaries.
|
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Family members of ICU patients
No intervention.
Gathering data on their experiences of using video diaries.
|
この研究は何を測定していますか?
主要な結果の測定
結果測定 |
メジャーの説明 |
時間枠 |
|---|---|---|
|
Qualitative experiences
時間枠:3 months
|
The principal aim of this study is to explore the experiences of family members and healthcare professionals in using video diaries during the lockdown and no/very restricted hospital visiting.
|
3 months
|
二次結果の測定
結果測定 |
メジャーの説明 |
時間枠 |
|---|---|---|
|
WEMWBS
時間枠:3 months
|
(Warwick-Edinburgh Mental Well-being Scale) is a tool that measures psychological well-being.
|
3 months
|
|
CORE-OM
時間枠:3 months
|
CORE-OM (Clinical Outcomes in Routine Evaluation-Outcome Measure) is a self report of a non-proprietary, pan-theoretical (not allied to any particular modality) measure of global psychological distress.
|
3 months
|
|
Daily Distress Thermometer
時間枠:3 months
|
The Daily Distress thermometer is an adaptation of the National Comprehensive Cancer Network Distress Thermometer and Problem list.
|
3 months
|
協力者と研究者
出版物と役立つリンク
研究記録日
主要日程の研究
研究開始 (実際)
一次修了 (予想される)
研究の完了 (予想される)
試験登録日
最初に提出
QC基準を満たした最初の提出物
最初の投稿 (実際)
学習記録の更新
投稿された最後の更新 (実際)
QC基準を満たした最後の更新が送信されました
最終確認日
詳しくは
本研究に関する用語
追加の関連 MeSH 用語
その他の研究ID番号
- CAHSS2010/07
個々の参加者データ (IPD) の計画
個々の参加者データ (IPD) を共有する予定はありますか?
医薬品およびデバイス情報、研究文書
米国FDA規制医薬品の研究
米国FDA規制機器製品の研究
この情報は、Web サイト clinicaltrials.gov から変更なしで直接取得したものです。研究の詳細を変更、削除、または更新するリクエストがある場合は、register@clinicaltrials.gov。 までご連絡ください。 clinicaltrials.gov に変更が加えられるとすぐに、ウェブサイトでも自動的に更新されます。