When Distance is an Act of Love: Exploring the Use of Video Diaries for Family Members of Intensive Care Patients
Due to Covid-19, intensive care (ICU) patients are not allowed visitors or have severely restricted visiting. After being admitted to ICU most patients are unconscious or extremely weak and therefore cannot speak on a phone or video call to a family member. Before these visiting restrictions, family members of patients admitted to ICU as a result of being critically ill were already known to suffer significant psychological distress and may now face increased distress given they are unable to visit a loved one.
Previous research demonstrates that keeping a paper diary has been found to be helpful for ICU patients and families. When lockdown measures were announced, NHS Scotland introduced video diaries as an emergency measure to try to support communication with families and reduce distress. vCreate is an NHS Trusted secure video messaging service that helps patients, families and clinical teams stay connected throughout their care journey. The use of video diaries may have a positive impact for family members but there is a risk that they could also have negative effects for some people. There is a need to explore both ICU healthcare professionals and family members' experiences of using video diaries. At the same time it is also important to test the feasibility and acceptability of measures of distress and psychological well-being on family members during and after their experience of video diaries. In doing so, some initial recommendations about video diaries can be made and a larger subsequent study planned to test their effect on family members and healthcare professionals.
Panoramica dello studio
Stato
Condizioni
Tipo di studio
Iscrizione (Anticipato)
Contatti e Sedi
Contatto studio
- Nome: Sheila Rodgers, PhD
- Numero di telefono: 0131650100
- Email: v1srodg3@ed.ac.uk
Backup dei contatti dello studio
- Nome: Eddie Donaghy, PhD
- Numero di telefono: 07766 772645
- Email: Eddie.donaghy@ed.ac.uk
Luoghi di studio
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Lothian
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Edinburgh, Lothian, Regno Unito, EH8 9AG
- Reclutamento
- University of Edinburgh
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Contatto:
- Sheila Rodgers, PhD
- Numero di telefono: +44131650100
- Email: v1srodg3@ed.ac.uk
-
Contatto:
- Eddie Donaghy, PhD
- Numero di telefono: +447766772645
- Email: Eddie.donaghy@ed.ac.uk
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Criteri di partecipazione
Criteri di ammissibilità
Età idonea allo studio
Accetta volontari sani
Sessi ammissibili allo studio
Metodo di campionamento
Popolazione di studio
Descrizione
Inclusion Criteria:
- (i) Family Members in Lothian aged ≥16 years receiving a video diary for an ICU patient who stays in ICU for ≥24 hours or more. If the patient dies, family members will be invited to continue in the study.
(ii) ICU healthcare staff in NHS Lothian who have experience of using the video diary to support family members during lockdown.
Exclusion Criteria:
Prisoners Family members lacking capacity to consent Family members aged under 16 years
Piano di studio
Come è strutturato lo studio?
Dettagli di progettazione
Coorti e interventi
Gruppo / Coorte |
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Healthcare professionals
No intervention.
Gathering data on their experiences of using video diaries.
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Family members of ICU patients
No intervention.
Gathering data on their experiences of using video diaries.
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Cosa sta misurando lo studio?
Misure di risultato primarie
Misura del risultato |
Misura Descrizione |
Lasso di tempo |
|---|---|---|
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Qualitative experiences
Lasso di tempo: 3 months
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The principal aim of this study is to explore the experiences of family members and healthcare professionals in using video diaries during the lockdown and no/very restricted hospital visiting.
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3 months
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Misure di risultato secondarie
Misura del risultato |
Misura Descrizione |
Lasso di tempo |
|---|---|---|
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WEMWBS
Lasso di tempo: 3 months
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(Warwick-Edinburgh Mental Well-being Scale) is a tool that measures psychological well-being.
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3 months
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CORE-OM
Lasso di tempo: 3 months
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CORE-OM (Clinical Outcomes in Routine Evaluation-Outcome Measure) is a self report of a non-proprietary, pan-theoretical (not allied to any particular modality) measure of global psychological distress.
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3 months
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Daily Distress Thermometer
Lasso di tempo: 3 months
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The Daily Distress thermometer is an adaptation of the National Comprehensive Cancer Network Distress Thermometer and Problem list.
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3 months
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Collaboratori e investigatori
Sponsor
Pubblicazioni e link utili
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Inizio studio (Effettivo)
Completamento primario (Anticipato)
Completamento dello studio (Anticipato)
Date di iscrizione allo studio
Primo inviato
Primo inviato che soddisfa i criteri di controllo qualità
Primo Inserito (Effettivo)
Aggiornamenti dei record di studio
Ultimo aggiornamento pubblicato (Effettivo)
Ultimo aggiornamento inviato che soddisfa i criteri QC
Ultimo verificato
Maggiori informazioni
Termini relativi a questo studio
Termini MeSH pertinenti aggiuntivi
Altri numeri di identificazione dello studio
- CAHSS2010/07
Piano per i dati dei singoli partecipanti (IPD)
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Informazioni su farmaci e dispositivi, documenti di studio
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