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Social Media Posts About Cancer: Five Timepoints

6 mei 2026 bijgewerkt door: UNC Lineberger Comprehensive Cancer Center
The main purpose of this trial was to evaluate the impact of user interface designs on intervening with cancer misinformation on social media. The investigators conducted a randomized clinical trial with a sample of 294 US adults (ages 18-65) who previously had a cancer diagnosis or were a cancer caregiver. This registration record only covers the 5 timepoint trial under the same IRB number.

Studie Overzicht

Gedetailleerde beschrijving

This 5 timepoint trial aimed to determine whether user interface designs encouraged intervening and reduced sharing of cancer misinformation on social media. The investigators enrolled 294 adults, ages 18-65, who had received a cancer diagnosis or were a cancer caregiver. Participants completed 5 online surveys, space approximately 2 business days apart. In the first survey, participant were randomized to 1 of 3 trial arms, described below. During each online survey, participants interacted with a simulated social media platform, branded as Invibe. Participants had passive exposure to stimuli cancer misinformation posts and cancer support posts in social media feeds. Participants also had forced exposure to stimuli posts in the online survey after interacting with Invibe. The investigators recorded social media behavior on Invibe and assessed self-reported measures in the online survey.

This study was preregister on AsPredicted.com on March 24, 2025, prior to data collection and data analysis (https://aspredicted.org/te3su2.pdf).

Studietype

Ingrijpend

Inschrijving (Werkelijk)

294

Fase

  • Niet toepasbaar

Contacten en locaties

In dit gedeelte vindt u de contactgegevens van degenen die het onderzoek uitvoeren en informatie over waar dit onderzoek wordt uitgevoerd.

Studie Locaties

    • North Carolina
      • Chapel Hill, North Carolina, Verenigde Staten, 27599
        • University of North Carolina at Chapel Hill

Deelname Criteria

Onderzoekers zoeken naar mensen die aan een bepaalde beschrijving voldoen, de zogenaamde geschiktheidscriteria. Enkele voorbeelden van deze criteria zijn iemands algemene gezondheidstoestand of eerdere behandelingen.

Geschiktheidscriteria

Leeftijden die in aanmerking komen voor studie

  • Volwassen
  • Oudere volwassene

Accepteert gezonde vrijwilligers

Ja

Beschrijving

Inclusion Criteria:

  • Are ages 18-65
  • Received a cancer diagnosis or have been a cancer caregiver
  • Used social media
  • Were willing to complete all five study timepoints
  • Resided in the United States

Exclusion Criteria:

- Were unable to scroll to see posts on Invibe in the screener survey

Studie plan

Dit gedeelte bevat details van het studieplan, inclusief hoe de studie is opgezet en wat de studie meet.

Hoe is de studie opgezet?

Ontwerpdetails

  • Primair doel: Ander
  • Toewijzing: Gerandomiseerd
  • Interventioneel model: Parallelle opdracht
  • Masker: Geen (open label)

Wapens en interventies

Deelnemersgroep / Arm
Interventie / Behandeling
Experimenteel: Social cue prompts and policy
Participants are exposed to the social cue prompts and policy intervention with cancer misinformation posts.
Cancer misinformation posts are shown with a prompt above the post caption that read, "This post has been flagged as false and potentially harmful by [47 or 48] people on Invibe. If you want to report, click the flag below." The social media launch screen had an overlaid policy for removing flagged posts: "We are committed to working with you and others on Invibe to reduce false and potentially harmful information. When a post is flagged by 50 people, we remove it until we verify the information. Please help us make the Invibe experience a good one for all."
Experimenteel: Standard prompts
Participants are exposed to the standard prompts intervention with cancer misinformation posts.
Cancer misinformation posts are shown with a prompt above the post caption that read, "This post has been flagged as false and potentially harmful. If you want to report, click the flag below."
Geen tussenkomst: Control
Participants do not see prompts on cancer misinformation posts.

Wat meet het onderzoek?

Primaire uitkomstmaten

Uitkomstmaat
Maatregel Beschrijving
Tijdsspanne
Flagging
Tijdsspanne: Up to 2 weeks
Measured with intervening behavior, defined as the flag icon selected. Response options were no (coded as 0) or yes (coded as 1). Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks
Willingness to flag
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item: "How willing are you to flag this post?" Responses ranged from "not at all" (coded as 1) to "extremely" (5). Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks

Secundaire uitkomstmaten

Uitkomstmaat
Maatregel Beschrijving
Tijdsspanne
Disliking
Tijdsspanne: Up to 2 weeks
Measured with intervening behavior, defined as the thumbs down icon selected. Response options were no (coded as 0) or yes (coded as 1). Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks
Liking
Tijdsspanne: Up to 2 weeks
Measured with intervening behavior, defined as the heart icon selected. Response options were no (coded as 0) or yes (coded as 1). Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks
Willingness to dislike
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item: "How willing are you to dislike (thumbs down) this post?" Responses ranged from "not at all" (coded as 1) to "extremely" (5). Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks
Willingness to like
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item: "How willing are you to like (heart) this post?" Responses ranged from "not at all" (coded as 1) to "extremely" (5). Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks
Willingness to comment
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item: "How willing are you to comment on this post?" Responses ranged from "not at all" (coded as 1) to "extremely" (5). Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks
Willingness to share
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item: "How likely are you to share or tell someone about this post?" Responses ranged from "not at all" (coded as 1) to "extremely" (5). Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks
Comment valence
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item: "What type of comment would you write on this post?" Response options were "comment to agree" (share), "comment to disagree" (intervene), "other," or "I would not comment." Assessed 15 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at each timepoint approximately 2 business days apart, starting on the day of enrollment.
Up to 2 weeks
Sharing recipient
Tijdsspanne: Up to 2 weeks
Measured with 1 self-report survey item: "Who would you share about this post with?" Response options were "someone with cancer," "someone who is a cancer caregiver," "health-care provider," "other," or "no one." Assessed 6 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at first timepoint and last timepoint approximately 2 weeks apart.
Up to 2 weeks
Sharing channel
Tijdsspanne: Up to 2 weeks
Measured with 1 self-report survey item: "How would you share about this post?" Response options were "private message on social media," "text message," "in person," "repost on your social media," "other," and "none of these ways." Assessed 6 times. Assessed for 2 cancer misinformation posts and 1 cancer support post at timepoint 1 and timepoint 5 approximately 2 weeks apart.
Up to 2 weeks
Past week intervening behavior
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item: "In the last 7 days, did you take action against false and potentially harmful cancer posts from social media? Select all that apply." Response options included muted accounts, flagged posts, disliked posts, commented to correct posts, chatted with others to disagree with posts information, encouraged someone to flag or report a posts, other or did not do anything. Assessed 1 time. Assessed at timepoint 4 approximately a week after the day of enrollment
Up to 2 weeks
Past week intervening platform
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item per reported interpersonal intervening behavior: "Who did you [intervening behavior]? Select all that apply." Response options were "someone with cancer," "someone who is a cancer caregiver," "health-care provider," "other," or "no one." Assessed up to 2 times. Assessed at timepoint 4 approximately a week after the day of enrollment.
Up to 2 weeks
Past week intervening topic
Tijdsspanne: Up to 2 weeks
Measured with 1 self-reported survey item per reported intervening behavior: "What was the [source for intervening] about? Select all that apply." Response options were "to adopt a new mindset," "diet and nutrition advice," "physical activity advice," "advice to stop clinical care," "to seek treatment outside the US," or "other." Assessed up to 6 times. Assessed at timepoint 4 approximately a week after the day of enrollment.
Up to 2 weeks

Medewerkers en onderzoekers

Hier vindt u mensen en organisaties die betrokken zijn bij dit onderzoek.

Onderzoekers

  • Hoofdonderzoeker: Allison J Lazard, PhD, UNC Lineberger Comprehensive Cancer Center

Publicaties en nuttige links

De persoon die verantwoordelijk is voor het invoeren van informatie over het onderzoek stelt deze publicaties vrijwillig ter beschikking. Dit kan gaan over alles wat met het onderzoek te maken heeft.

Studie record data

Deze datums volgen de voortgang van het onderzoeksdossier en de samenvatting van de ingediende resultaten bij ClinicalTrials.gov. Studieverslagen en gerapporteerde resultaten worden beoordeeld door de National Library of Medicine (NLM) om er zeker van te zijn dat ze voldoen aan specifieke kwaliteitscontrolenormen voordat ze op de openbare website worden geplaatst.

Bestudeer belangrijke data

Studie start (Werkelijk)

31 maart 2025

Primaire voltooiing (Werkelijk)

12 mei 2025

Studie voltooiing (Werkelijk)

12 mei 2025

Studieregistratiedata

Eerst ingediend

6 mei 2026

Eerst ingediend dat voldeed aan de QC-criteria

6 mei 2026

Eerst geplaatst (Werkelijk)

15 mei 2026

Updates van studierecords

Laatste update geplaatst (Werkelijk)

15 mei 2026

Laatste update ingediend die voldeed aan QC-criteria

6 mei 2026

Laatst geverifieerd

1 mei 2026

Meer informatie

Termen gerelateerd aan deze studie

Andere studie-ID-nummers

  • 25-0269-5TP

Plan Individuele Deelnemersgegevens (IPD)

Bent u van plan om gegevens van individuele deelnemers (IPD) te delen?

JA

Beschrijving IPD-plan

Researcher may request de-identified data from participants 1 year after publication.

IPD delen Ondersteunend informatietype

  • MVO

Informatie over medicijnen en apparaten, studiedocumenten

Bestudeert een door de Amerikaanse FDA gereguleerd geneesmiddel

Nee

Bestudeert een door de Amerikaanse FDA gereguleerd apparaatproduct

Nee

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