of Caregiver Family Members for the Disabled in Bukhara

Relationship Between Burdens and Healthy Lifestyle Behaviors of Caregiver Family Members for the Disabled in Bukhara

The responsibilities of caring for a disabled family member may cause caregivers to develop risky behaviors for caregiver's health. Therefore, we aimed to examine the relationship between caregiver burdens and healthy lifestyle behaviors of family members caring for a disabled child.

Study Overview

• Status: Completed
• Conditions: Caregiver Burden
• Intervention / Treatment: Other: Questionnaire

Detailed Description

In the study, family members living in Bukhara, Uzbekistan, and caring for a disabled person under the age of 24 were evaluated. Caregiver burden was evaluated with the Caregiver Burden Scale and healthy lifestyle behaviors were evaluated with the Healthy Lifestyle Behaviors Scale II. The fact that there is no earlier study on caregivers of disabled people in Uzbekistan and no research in the literature examining the relationship between caregiving burden and healthy lifestyle behaviors in individuals with disabled children, make this study unique.

• Study Type: Observational
• Enrollment (Actual): 155

Contacts and Locations

Study Locations

• Turkey
  • Trabzon, Turkey, 61000
    • Karadeniz Technical University

Participation Criteria

Eligibility Criteria

• Ages Eligible for Study: ADULT; OLDER_ADULT; CHILD
• Accepts Healthy Volunteers: N/A
• Genders Eligible for Study: All

• Sampling Method: Non-Probability Sample

Study Population

Caregiver Family Member with disabled children

Description

Inclusion Criteria:

• Volunteering to participate in the study
• Having a disabled child to take care of
• Being literate

Exclusion Criteria:

• The age of the disabled person being cared for is over 24 years old.

Study Plan

How is the study designed?

What is the study measuring?

Primary Outcome Measures

Outcome Measure	Measure Description	Time Frame
Socio-demographic information	Age, height, body weight, employment status, income status, marital status	Two months
Number of child	Number of healthy and disabled children	Two months
Assessment of the child age	Age	Two months
Assessment of the child	Gender	Two months
Caregiver Burden Scale	The scale has a Likert-type rating ranging from 0 to 4 as "never, rarely, sometimes, quite often, almost always". A minimum of 0 and a maximum of 88 points can be obtained from the scale. The items in the scale are generally related to the social and emotional domain, and a high score indicates a high level of distress.	Two months

Secondary Outcome Measures

Outcome Measure	Measure Description	Time Frame
Healthy Lifestyle Behaviors Scale II	The scale is scored as "never (1)-regularly (4)". The lowest score for the whole scale is 52 and the highest score is 208. The high scores obtained from the scale indicate how high the individual applies the specified health behaviors.	Two months

Collaborators and Investigators

• Sponsor: Karadeniz Technical University

Study record dates

Study Major Dates

• Study Start (ACTUAL): November 26, 2021
• Primary Completion (ACTUAL): December 30, 2021
• Study Completion (ACTUAL): March 30, 2022

Study Registration Dates

• First Submitted: April 11, 2022
• First Submitted That Met QC Criteria: April 22, 2022
• First Posted (ACTUAL): April 28, 2022

Study Record Updates

• Last Update Posted (ACTUAL): April 28, 2022
• Last Update Submitted That Met QC Criteria: April 22, 2022
• Last Verified: April 1, 2022

More Information

Terms related to this study

• Keywords: caregiver burden; healthy lifestyle; handicapped
• Additional Relevant MeSH Terms: Behavioral Symptoms; Stress, Psychological; Caregiver Burden
• Other Study ID Numbers: KTU-SBU-FTR-01

Plan for Individual participant data (IPD)

• Plan to Share Individual Participant Data (IPD)?: NO

Drug and device information, study documents

• Studies a U.S. FDA-regulated drug product: No
• Studies a U.S. FDA-regulated device product: No