Dementia Champions in Homecare (DemChamp)

Developing the Role of Dementia Champions in the Homecare Sector

This is a descriptive, explorative study in which we will explore how the role of Dementia Champions in homecare services could develop, and become more widely implemented in this sector's workforce.

Study Overview

• Status: Recruiting
• Conditions: Dementia

Detailed Description

This study had three parts:

1. The investigators will start by learning from the work of other Dementia Champions working across care services to get a 'real world' in-depth understanding of what working as a Dementia Champion involves, what works well, and what can be improved. The investigators will carry out qualitative interviews with care professionals with experience of being or working with Dementia Champions. They will also speak to people affected by dementia (people living with dementia and their family carers) who have received care from services with Dementia Champions.
2. The investigators will carry out a stakeholder consultation workshop with 10 people including care professionals, people affected by dementia, and other relevant stakeholders, to build on what we have learned so far. They will commission a Science Illustrator to visually scribe the workshop discussions and produce an illustration of the Dementia Champion in homecare role.
3. The investigators will use the model created in part 2 of the study to facilitate interviews in part 3. They will speak to staff working in homecare services (managers and homecare workers) that do not have Dementia Champions in them, and people living with dementia and family members who use homecare services that do not have Dementia Champions in them. This will help the research team understand how to better establish the role of Dementia Champions and how this could work within homecare, including what would be needed to support staff in this role.

• Study Type: Observational
• Enrollment (Estimated): 80

Contacts and Locations

• Study Contact: Name: Tiffeny James, PhD; Phone Number: 0044 (+44) 207 848 1782; Email: tiffeny.james@kcl.ac.uk
• Study Contact Backup: Name: Monica Leverton, PhD; Phone Number: 0044 (+44) 207 848 1782; Email: monica.leverton@ucl.ac.uk

Study Locations

• United Kingdom
  • South Molton, United Kingdom
    • Recruiting
    • Home Instead Devon
    • Contact: Adam Crispin

Participation Criteria

Eligibility Criteria

• Ages Eligible for Study: Child; Adult; Older Adult
• Accepts Healthy Volunteers: N/A

• Sampling Method: Non-Probability Sample

Study Population

Participants from England, Scotland, Wales, or Northern Ireland who either, recruited from health or social care settings.

Description

Inclusion criteria

Part 1 (group 1 interviews):

• Staff who are or have been DCs in services that provide care and support to people affected by dementia
• Staff who work or have worked alongside DCs in services that provide care and support to people affected by dementia
• Staff with expertise in dementia e.g. those from third sector or voluntary dementia organisations
• A person living with dementia who receives or has received support or care from services with DCs embedded within the team i.e., homecare
• A current or former family carer of a person living with dementia who receives or has received support or care from services with DCs embedded within the team i.e., homecare

Part 2 (stakeholder consultation workshop):

• Homecare staff (including any DCs identified from previous study phases)
• Dementia specialists (e.g., social workers with expertise in dementia, Admiral Nurses)
• People living with dementia in receipt of homecare support
• Current or former family carers of a person living with dementia in receipt of homecare support
• Any other relevant care staff

Part 3 (group 2 interviews):

• A homecare worker, manager, or other member of homecare staff
• A person living with dementia in receipt of homecare support
• A current or former family carer of a person living with dementia in receipt of homecare

Exclusion Criteria:

• People who do not have capacity to consent to take part in this research study. The research team has experience of conducting informal assessments of capacity, using the three-stage test outlined in the Mental Capacity Act 2005 of England and Wales.

Study Plan

How is the study designed?

Design Details

• Observational Models: Case-Only
• Time Perspectives: Cross-Sectional

Number of groups / cohorts

2

Cohorts and Interventions

Group / Cohort
Group 1 interviews; Care professionals with experience of being or working with Dementia Champions, and people affected by dementia who have received care from services with Dementia Champions.
Group 2 interviews; Homecare professionals working in services where there are no Dementia Champions, and people affected by dementia who have received care from services with no Dementia Champions.

What is the study measuring?

Primary Outcome Measures

Outcome Measure	Measure Description	Time Frame
This is a qualitative study involving interviews and as such, there are no measurable outcomes. We will, however, use an interview topic guide to conduct interviews, and use the findings to produce a Model of Dementia Champions in the homecare sector	Experiences of care staff, people living with dementia, and family carers of dementia champions in homecare.	8 months

Collaborators and Investigators

• Sponsor: King's College London
• Investigators: Principal Investigator: Monica Leverton, King's College London

Study record dates

Study Major Dates

• Study Start (Actual): September 26, 2023
• Primary Completion (Estimated): October 1, 2023
• Study Completion (Estimated): December 1, 2023

Study Registration Dates

• First Submitted: December 13, 2022
• First Submitted That Met QC Criteria: January 12, 2023
• First Posted (Actual): January 13, 2023

Study Record Updates

• Last Update Posted (Actual): October 6, 2023
• Last Update Submitted That Met QC Criteria: October 5, 2023
• Last Verified: December 1, 2022

More Information

Terms related to this study

• Additional Relevant MeSH Terms: Mental Disorders; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Neurocognitive Disorders; Dementia
• Other Study ID Numbers: IRAS 320561

Plan for Individual participant data (IPD)

• Plan to Share Individual Participant Data (IPD)?: UNDECIDED
• IPD Plan Description: If participants agree to their interview data being used for future ethically approved research by King's College London then we will make this available to other King's College London researchers.

Drug and device information, study documents

• Studies a U.S. FDA-regulated drug product: No
• Studies a U.S. FDA-regulated device product: No