"Family-centered" Pediatric Rehabilitation Services in Children With Developmental Disabilities
Investigation of "Family-centered" Pediatric Rehabilitation Services Received by Children With Developmental Disabilities
Developmental disability is a severe chronic disabled condition caused by mental or physical impairments. Children with developmental disabilities may face life-long difficulties in motor functioning, self-care, condition, communication, and independent living. They often receive rehabilitation services to promote daily functions and participation in home, school, and community lives.
"Family-centered" service has been considered as "best practice" in pediatric rehabilitation. Therapists encourage children with developmental disabilities and their parents to participate in decision making and implementing process of intervention, and provide intervention plan that best fit their family needs. Research shows that for children with developmental disabilities, family-centered services can enhance children's development, decrease parenting stress, promote emotional wellness, and increase parental satisfaction to services. Though the "family-centered" concept has been considered as relevant in pediatric rehabilitation, there are still difficulties, as well as a lack of evidence regarding its implementation in practice.
Reflecting the trend of family-centered medical care, the benefits of national health insurance in Taiwan for early intervention outpatient care will emphasize on family-centered intervention. The range of benefits may include communication with parents, parental education, consultation and instructions for home programs. Besides, outcomes of family-centered intervention will be treated as an important index for monitoring the quality of medical services.
Given that there is a lack of investigation regarding the family-centered pediatric rehabilitation, the purposes of this one-year research project are to investigate the implementation of family-centered pediatric rehabilitation for children with developmental disabilities and to identify related influencing factors. This study will provide empirical evidence for family-centered services in Taiwan.
調査の概要
状態
条件
研究の種類
入学 (実際)
連絡先と場所
研究場所
-
-
-
Taoyuan、台湾、333
- Chang Gung University
-
-
参加基準
適格基準
就学可能な年齢
健康ボランティアの受け入れ
受講資格のある性別
サンプリング方法
調査対象母集団
説明
Inclusion Criteria:
- children aged 2 to 12 years.
- children with a primary diagnose or condition associated with developmental disabilities, including attention deficit hyperactivity disorder, autism, intellectual disability, Down syndrome, learning disorders, cerebral palsy, and other developmental delay.
- parents agree to participate in this study.
Exclusion Criteria:
- children with unstable physical conditions, such as cancer, having surgery within 3 months, infection, or other active medical conditions.
- children with progressive disease (e.g. neuromuscular disease) or degenerative disorders (e.g. degenerative seizures).
研究計画
研究はどのように設計されていますか？
デザインの詳細
- 観測モデル：家族ベース
- 時間の展望：断面図
コホートと介入
グループ/コホート |
|---|
|
Parent-child dyad
Children with Developmental Disabilities and their parents
|
|
Therapits
Therapists experienced in serving children with developmental disabilities
|
この研究は何を測定していますか？
主要な結果の測定
結果測定 |
時間枠 |
|---|---|
|
The Measure of Processes of Care-20
時間枠：1 year
|
1 year
|
二次結果の測定
結果測定 |
時間枠 |
|---|---|
|
Measure of Processes of Care- for Service Providers
時間枠：1 year
|
1 year
|
|
Children and Adolescent Factor Inventory
時間枠：1 year
|
1 year
|
|
Assessment of Preschool Children's Participation (APCP)
時間枠：1 year
|
1 year
|
|
Children's Assessment of Participation and Enjoyment (CAPE)
時間枠：1 year
|
1 year
|
協力者と研究者
スポンサー
捜査官
- 主任研究者：Lin-Ju Kang, PhD、Chang Gung University
研究記録日
主要日程の研究
研究開始
一次修了 (実際)
研究の完了 (実際)
試験登録日
最初に提出
QC基準を満たした最初の提出物
最初の投稿 (見積もり)
学習記録の更新
投稿された最後の更新 (実際)
QC基準を満たした最後の更新が送信されました
最終確認日
詳しくは
本研究に関する用語
追加の関連 MeSH 用語
その他の研究ID番号
- 102-3767B
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