"Family-centered" Pediatric Rehabilitation Services in Children With Developmental Disabilities
Investigation of "Family-centered" Pediatric Rehabilitation Services Received by Children With Developmental Disabilities
Developmental disability is a severe chronic disabled condition caused by mental or physical impairments. Children with developmental disabilities may face life-long difficulties in motor functioning, self-care, condition, communication, and independent living. They often receive rehabilitation services to promote daily functions and participation in home, school, and community lives.
"Family-centered" service has been considered as "best practice" in pediatric rehabilitation. Therapists encourage children with developmental disabilities and their parents to participate in decision making and implementing process of intervention, and provide intervention plan that best fit their family needs. Research shows that for children with developmental disabilities, family-centered services can enhance children's development, decrease parenting stress, promote emotional wellness, and increase parental satisfaction to services. Though the "family-centered" concept has been considered as relevant in pediatric rehabilitation, there are still difficulties, as well as a lack of evidence regarding its implementation in practice.
Reflecting the trend of family-centered medical care, the benefits of national health insurance in Taiwan for early intervention outpatient care will emphasize on family-centered intervention. The range of benefits may include communication with parents, parental education, consultation and instructions for home programs. Besides, outcomes of family-centered intervention will be treated as an important index for monitoring the quality of medical services.
Given that there is a lack of investigation regarding the family-centered pediatric rehabilitation, the purposes of this one-year research project are to investigate the implementation of family-centered pediatric rehabilitation for children with developmental disabilities and to identify related influencing factors. This study will provide empirical evidence for family-centered services in Taiwan.
Przegląd badań
Status
Typ studiów
Zapisy (Rzeczywisty)
Kontakty i lokalizacje
Lokalizacje studiów
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Taoyuan, Tajwan, 333
- Chang Gung University
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Kryteria uczestnictwa
Kryteria kwalifikacji
Wiek uprawniający do nauki
Akceptuje zdrowych ochotników
Płeć kwalifikująca się do nauki
Metoda próbkowania
Badana populacja
Opis
Inclusion Criteria:
- children aged 2 to 12 years.
- children with a primary diagnose or condition associated with developmental disabilities, including attention deficit hyperactivity disorder, autism, intellectual disability, Down syndrome, learning disorders, cerebral palsy, and other developmental delay.
- parents agree to participate in this study.
Exclusion Criteria:
- children with unstable physical conditions, such as cancer, having surgery within 3 months, infection, or other active medical conditions.
- children with progressive disease (e.g. neuromuscular disease) or degenerative disorders (e.g. degenerative seizures).
Plan studiów
Jak projektuje się badanie?
Szczegóły projektu
- Modele obserwacyjne: Oparte na rodzinie
- Perspektywy czasowe: Przekrojowe
Kohorty i interwencje
Grupa / Kohorta |
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Parent-child dyad
Children with Developmental Disabilities and their parents
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Therapits
Therapists experienced in serving children with developmental disabilities
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Co mierzy badanie?
Podstawowe miary wyniku
Miara wyniku |
Ramy czasowe |
|---|---|
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The Measure of Processes of Care-20
Ramy czasowe: 1 year
|
1 year
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Miary wyników drugorzędnych
Miara wyniku |
Ramy czasowe |
|---|---|
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Measure of Processes of Care- for Service Providers
Ramy czasowe: 1 year
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1 year
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Children and Adolescent Factor Inventory
Ramy czasowe: 1 year
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1 year
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Assessment of Preschool Children's Participation (APCP)
Ramy czasowe: 1 year
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1 year
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Children's Assessment of Participation and Enjoyment (CAPE)
Ramy czasowe: 1 year
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1 year
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Współpracownicy i badacze
Sponsor
Śledczy
- Główny śledczy: Lin-Ju Kang, PhD, Chang Gung University
Daty zapisu na studia
Główne daty studiów
Rozpoczęcie studiów
Zakończenie podstawowe (Rzeczywisty)
Ukończenie studiów (Rzeczywisty)
Daty rejestracji na studia
Pierwszy przesłany
Pierwszy przesłany, który spełnia kryteria kontroli jakości
Pierwszy wysłany (Oszacować)
Aktualizacje rekordów badań
Ostatnia wysłana aktualizacja (Rzeczywisty)
Ostatnia przesłana aktualizacja, która spełniała kryteria kontroli jakości
Ostatnia weryfikacja
Więcej informacji
Terminy związane z tym badaniem
Dodatkowe istotne warunki MeSH
Inne numery identyfikacyjne badania
- 102-3767B
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