"Family-centered" Pediatric Rehabilitation Services in Children With Developmental Disabilities
Investigation of "Family-centered" Pediatric Rehabilitation Services Received by Children With Developmental Disabilities
Developmental disability is a severe chronic disabled condition caused by mental or physical impairments. Children with developmental disabilities may face life-long difficulties in motor functioning, self-care, condition, communication, and independent living. They often receive rehabilitation services to promote daily functions and participation in home, school, and community lives.
"Family-centered" service has been considered as "best practice" in pediatric rehabilitation. Therapists encourage children with developmental disabilities and their parents to participate in decision making and implementing process of intervention, and provide intervention plan that best fit their family needs. Research shows that for children with developmental disabilities, family-centered services can enhance children's development, decrease parenting stress, promote emotional wellness, and increase parental satisfaction to services. Though the "family-centered" concept has been considered as relevant in pediatric rehabilitation, there are still difficulties, as well as a lack of evidence regarding its implementation in practice.
Reflecting the trend of family-centered medical care, the benefits of national health insurance in Taiwan for early intervention outpatient care will emphasize on family-centered intervention. The range of benefits may include communication with parents, parental education, consultation and instructions for home programs. Besides, outcomes of family-centered intervention will be treated as an important index for monitoring the quality of medical services.
Given that there is a lack of investigation regarding the family-centered pediatric rehabilitation, the purposes of this one-year research project are to investigate the implementation of family-centered pediatric rehabilitation for children with developmental disabilities and to identify related influencing factors. This study will provide empirical evidence for family-centered services in Taiwan.
Studieoversigt
Status
Betingelser
Undersøgelsestype
Tilmelding (Faktiske)
Kontakter og lokationer
Studiesteder
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Taoyuan, Taiwan, 333
- Chang Gung University
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Deltagelseskriterier
Berettigelseskriterier
Aldre berettiget til at studere
Tager imod sunde frivillige
Køn, der er berettiget til at studere
Prøveudtagningsmetode
Studiebefolkning
Beskrivelse
Inclusion Criteria:
- children aged 2 to 12 years.
- children with a primary diagnose or condition associated with developmental disabilities, including attention deficit hyperactivity disorder, autism, intellectual disability, Down syndrome, learning disorders, cerebral palsy, and other developmental delay.
- parents agree to participate in this study.
Exclusion Criteria:
- children with unstable physical conditions, such as cancer, having surgery within 3 months, infection, or other active medical conditions.
- children with progressive disease (e.g. neuromuscular disease) or degenerative disorders (e.g. degenerative seizures).
Studieplan
Hvordan er undersøgelsen tilrettelagt?
Design detaljer
- Observationsmodeller: Familiebaseret
- Tidsperspektiver: Tværsnit
Kohorter og interventioner
Gruppe / kohorte |
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Parent-child dyad
Children with Developmental Disabilities and their parents
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Therapits
Therapists experienced in serving children with developmental disabilities
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Hvad måler undersøgelsen?
Primære resultatmål
Resultatmål |
Tidsramme |
|---|---|
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The Measure of Processes of Care-20
Tidsramme: 1 year
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1 year
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Sekundære resultatmål
Resultatmål |
Tidsramme |
|---|---|
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Measure of Processes of Care- for Service Providers
Tidsramme: 1 year
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1 year
|
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Children and Adolescent Factor Inventory
Tidsramme: 1 year
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1 year
|
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Assessment of Preschool Children's Participation (APCP)
Tidsramme: 1 year
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1 year
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Children's Assessment of Participation and Enjoyment (CAPE)
Tidsramme: 1 year
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1 year
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Samarbejdspartnere og efterforskere
Sponsor
Efterforskere
- Ledende efterforsker: Lin-Ju Kang, PhD, Chang Gung University
Datoer for undersøgelser
Studer store datoer
Studiestart
Primær færdiggørelse (Faktiske)
Studieafslutning (Faktiske)
Datoer for studieregistrering
Først indsendt
Først indsendt, der opfyldte QC-kriterier
Først opslået (Skøn)
Opdateringer af undersøgelsesjournaler
Sidste opdatering sendt (Faktiske)
Sidste opdatering indsendt, der opfyldte kvalitetskontrolkriterier
Sidst verificeret
Mere information
Begreber relateret til denne undersøgelse
Yderligere relevante MeSH-vilkår
Andre undersøgelses-id-numre
- 102-3767B
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Kliniske forsøg med Udviklingshæmning
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Children's Hospital Medical Center, CincinnatiEunice Kennedy Shriver National Institute of Child Health and Human Development...AfsluttetBørns udviklingsforstyrrelser, gennemgåendeForenede Stater