"Family-centered" Pediatric Rehabilitation Services in Children With Developmental Disabilities
Investigation of "Family-centered" Pediatric Rehabilitation Services Received by Children With Developmental Disabilities
Developmental disability is a severe chronic disabled condition caused by mental or physical impairments. Children with developmental disabilities may face life-long difficulties in motor functioning, self-care, condition, communication, and independent living. They often receive rehabilitation services to promote daily functions and participation in home, school, and community lives.
"Family-centered" service has been considered as "best practice" in pediatric rehabilitation. Therapists encourage children with developmental disabilities and their parents to participate in decision making and implementing process of intervention, and provide intervention plan that best fit their family needs. Research shows that for children with developmental disabilities, family-centered services can enhance children's development, decrease parenting stress, promote emotional wellness, and increase parental satisfaction to services. Though the "family-centered" concept has been considered as relevant in pediatric rehabilitation, there are still difficulties, as well as a lack of evidence regarding its implementation in practice.
Reflecting the trend of family-centered medical care, the benefits of national health insurance in Taiwan for early intervention outpatient care will emphasize on family-centered intervention. The range of benefits may include communication with parents, parental education, consultation and instructions for home programs. Besides, outcomes of family-centered intervention will be treated as an important index for monitoring the quality of medical services.
Given that there is a lack of investigation regarding the family-centered pediatric rehabilitation, the purposes of this one-year research project are to investigate the implementation of family-centered pediatric rehabilitation for children with developmental disabilities and to identify related influencing factors. This study will provide empirical evidence for family-centered services in Taiwan.
Aperçu de l'étude
Statut
Les conditions
Type d'étude
Inscription (Réel)
Contacts et emplacements
Lieux d'étude
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-
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Taoyuan, Taïwan, 333
- Chang Gung University
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Critères de participation
Critère d'éligibilité
Âges éligibles pour étudier
Accepte les volontaires sains
Sexes éligibles pour l'étude
Méthode d'échantillonnage
Population étudiée
La description
Inclusion Criteria:
- children aged 2 to 12 years.
- children with a primary diagnose or condition associated with developmental disabilities, including attention deficit hyperactivity disorder, autism, intellectual disability, Down syndrome, learning disorders, cerebral palsy, and other developmental delay.
- parents agree to participate in this study.
Exclusion Criteria:
- children with unstable physical conditions, such as cancer, having surgery within 3 months, infection, or other active medical conditions.
- children with progressive disease (e.g. neuromuscular disease) or degenerative disorders (e.g. degenerative seizures).
Plan d'étude
Comment l'étude est-elle conçue ?
Détails de conception
- Modèles d'observation: Basé sur la famille
- Perspectives temporelles: Transversale
Cohortes et interventions
Groupe / Cohorte |
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Parent-child dyad
Children with Developmental Disabilities and their parents
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Therapits
Therapists experienced in serving children with developmental disabilities
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Que mesure l'étude ?
Principaux critères de jugement
Mesure des résultats |
Délai |
|---|---|
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The Measure of Processes of Care-20
Délai: 1 year
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1 year
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Mesures de résultats secondaires
Mesure des résultats |
Délai |
|---|---|
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Measure of Processes of Care- for Service Providers
Délai: 1 year
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1 year
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Children and Adolescent Factor Inventory
Délai: 1 year
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1 year
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Assessment of Preschool Children's Participation (APCP)
Délai: 1 year
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1 year
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Children's Assessment of Participation and Enjoyment (CAPE)
Délai: 1 year
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1 year
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Collaborateurs et enquêteurs
Parrainer
Les enquêteurs
- Chercheur principal: Lin-Ju Kang, PhD, Chang Gung University
Dates d'enregistrement des études
Dates principales de l'étude
Début de l'étude
Achèvement primaire (Réel)
Achèvement de l'étude (Réel)
Dates d'inscription aux études
Première soumission
Première soumission répondant aux critères de contrôle qualité
Première publication (Estimation)
Mises à jour des dossiers d'étude
Dernière mise à jour publiée (Réel)
Dernière mise à jour soumise répondant aux critères de contrôle qualité
Dernière vérification
Plus d'information
Termes liés à cette étude
Termes MeSH pertinents supplémentaires
Autres numéros d'identification d'étude
- 102-3767B
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