Introducing a nationwide registry: the Swiss study on aneurysmal subarachnoid haemorrhage (Swiss SOS)
Bawarjan Schatlo, Christian Fung, Ali-Reza Fathi, Martin Sailer, Kerstin Winkler, Roy Thomas Daniel, Philippe Bijlenga, Peter Ahlborn, Martin Seule, Daniel Zumofen, Michael Reinert, Christoph Woernle, Martin Stienen, Marc Levivier, Gerhard Hildebrandt, Luigi Mariani, René Bernays, Javier Fandino, Andreas Raabe, Emanuela Keller, Karl Schaller, Bawarjan Schatlo, Christian Fung, Ali-Reza Fathi, Martin Sailer, Kerstin Winkler, Roy Thomas Daniel, Philippe Bijlenga, Peter Ahlborn, Martin Seule, Daniel Zumofen, Michael Reinert, Christoph Woernle, Martin Stienen, Marc Levivier, Gerhard Hildebrandt, Luigi Mariani, René Bernays, Javier Fandino, Andreas Raabe, Emanuela Keller, Karl Schaller
Abstract
Background: Aneurysmal subarachnoid haemorrhage (aSAH) is a haemorrhagic form of stroke and occurs in a younger population compared with ischaemic stroke or intracerebral haemorrhage. It accounts for a large proportion of productive life-years lost to stroke. Its surgical and medical treatment represents a multidisciplinary effort. Due to the complexity of the disease, the management remains difficult to standardise and quality of care is accordingly difficult to assess.
Objective: To create a registry to assess management parameters of patients treated for aSAH in Switzerland.
Methods: A cohort study was initiated with the aim to record characteristics of patients admitted with aSAH, starting January 1st 2009. Ethical committee approval was obtained or is pending from the institutional review boards of all centres. In the study period, seven Swiss hospitals (five university [U], two non-university medical centres) harbouring a neurosurgery department, an intensive care unit and an interventional neuroradiology team so far agreed to participate in the registry (Aarau, Basel [U], Bern [U], Geneva [U], Lausanne [U], St. Gallen, Zürich [U]). Demographic and clinical parameters are entered into a common database.
Discussion: This database will soon provide (1) a nationwide assessment of the current standard of care and (2) the outcomes for patients suffering from aSAH in Switzerland. Based on data from this registry, we can conduct cohort comparisons or design diagnostic or therapeutic studies on a national level. Moreover, a standardised registration system will allow healthcare providers to assess the quality of care.
Source: PubMed