Type 1 diabetes in very young children: a model of parent and child influences on management and outcomes

Abstract

The incidence of type 1 diabetes (T1D) in very young children (YC-T1D) is increasing globally. Managing YC-T1D is challenging from both a medical and psychosocial perspective during this vulnerable developmental period when complete dependence upon parental caretaking is normative and child behavior is unpredictable. The consequences of suboptimal glycemic control during this age range are substantial since these children will have T1D for many years and they are prone to adverse neuropsychological sequelae. Poor adaptation to T1D during these early years may engender a persistent trajectory of negative outcomes that can be very resistant to change. The empirical research on the YC-T1D population (age <6 yr) has indicated multiple mechanisms through which parent characteristics, parent coping skills, and child characteristics interact to yield a pattern of T1D management behaviors that affect T1D outcomes. However, this research has not yet led to a well-conceived conceptual model for identifying and understanding these mechanisms or for specifying research gaps and future research directions. The aim of this review is to propose such a conceptual model linking parent characteristics, parent coping, and child characteristics to T1D management behaviors and outcomes. This article reviews the literature focusing on research pertinent to YC-T1D and elements of our proposed model, identifies and discusses gaps in the literature, offers directions for future research, and considers a range of possible interventions targeting the unique needs of this special population.

Keywords: child; infant; psychological models; review; type 1 diabetes mellitus.

© 2015 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

Figures

Fig. 1.

A conceptual model linking individual parent characteristics, parental coping, and individual child characteristics to the management and outcomes of type 1 diabetes (T1D) in very young children (YC-T1D). Effectiveness of parental coping with the associated affective, behavioral, and cognitive challenges is presumed to have both direct effects on T1D management behaviors and indirect effects mediated by individual child characteristics.