Usability and feasibility of health IT interventions to enhance Self-Care for Lymphedema Symptom Management in breast cancer survivors

Mei R Fu, Deborah Axelrod, Amber A Guth, Yao Wang, Joan Scagliola, Karen Hiotis, Kavita Rampertaap, Nardin El-Shammaa, Mei R Fu, Deborah Axelrod, Amber A Guth, Yao Wang, Joan Scagliola, Karen Hiotis, Kavita Rampertaap, Nardin El-Shammaa

Abstract

Purpose: The-Optimal-Lymph-Flow health IT system (TOLF) is a patient-centered, web-and-mobile-based educational and behavioral health IT system focusing on safe, innovative, and pragmatic self-care strategies for lymphedema symptom management. The purpose of this study was to evaluate usability, feasibility, and acceptability of TOLF among the end-user of breast cancer survivors.

Methods: Two types of usability testing were completed with 30 breast cancer survivors: heuristic evaluation and end-user testing. Each participant was asked to think aloud while completing a set of specified tasks designed to explicate and freely explore the system features. A heuristic evaluation checklist, the Perceived Ease of Use and Usefulness Questionnaire, and The Post Study System Usability Questionnaire were used to evaluate usability of the system. Open-ended questions were used to gather qualitative data. Quantitative data were analyzed using descriptive statistics and qualitative data were summarized thematically.

Results: Breast cancer survivors were very satisfied with the system: 90% (n = 27) rated the system having no usability problems; 10% (n = 3) noted minor cosmetic problems: spelling errors or text font size. The majority of participants 96.6% (n = 29) strongly agreed that the system was easy to use and effective in helping to learn about lymphedema, symptoms and self-care strategies. Themes from the qualitative data included empowerment, high quality information, loving avatar simulation videos, easy accessibility, and user-friendliness.

Conclusions: This usability study provided evidence on breast cancer survivor's acceptance and highly positive evaluation of TOLF's usability as well as feasibility of using technologically-driven delivery model to enhance self-care strategies for lymphedema symptom management.

Keywords: Breast cancer survivor; Breast neoplasms; Feasibility; Health IT; Lymphedema; Lymphedema symptoms; Self-care; Symptoms; Usability.

Figures

Fig. 1
Fig. 1
Model of Self-Care for Lymphedema Symptom Management.
Fig. 2
Fig. 2
Screenshots from Avatar Simulation Videos.

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