Why do people avoid medical care? A qualitative study using national data

Jennifer M Taber, Bryan Leyva, Alexander Persoskie, Jennifer M Taber, Bryan Leyva, Alexander Persoskie

Abstract

Background: Many studies have examined barriers to health care utilization, with the majority conducted in the context of specific populations and diseases. Less research has focused on why people avoid seeking medical care, even when they suspect they should go.

Objective: The purpose of the study was to present a comprehensive description and conceptual categorization of reasons people avoid medical care.

Design: Data were collected as part of the 2008 Health Information National Trends Survey, a cross-sectional national survey.

Participants: Participant-generated reasons for avoiding medical care were provided by 1,369 participants (40% male; M age =48.9; 75.1% non-Hispanic white, 7.4% non-Hispanic black, 8.5% Hispanic or Latino/a).

Main measures: Participants first indicated their level of agreement with three specific reasons for avoiding medical care; these data are reported elsewhere. We report responses to a follow-up question in which participants identified other reasons they avoid seeking medical care. Reasons were coded using a general inductive approach.

Key results: Three main categories of reasons for avoiding medical care were identified. First, over one-third of participants (33.3% of 1,369) reported unfavorable evaluations of seeking medical care, such as factors related to physicians, health care organizations, and affective concerns. Second, a subset of participants reported low perceived need to seek medical care (12.2%), often because they expected their illness or symptoms to improve over time (4.0%). Third, many participants reported traditional barriers to medical care (58.4%), such as high cost (24.1%), no health insurance (8.3%), and time constraints (15.6%). We developed a conceptual model of medical care avoidance based on these results.

Conclusions: Reasons for avoiding medical care were nuanced and highly varied. Understanding why people do not make it through the clinic door is critical to extending the reach and effectiveness of patient care, and these data point to new directions for research and strategies to reduce avoidance.

Figures

Figure 1
Figure 1
Participant-generated reasons for avoiding medical care (n=1,369).
Figure 2
Figure 2
Conceptual model of medical care avoidance.

References

    1. Byrne SK. Healthcare avoidance: a critical review. Holist Nurs Pract. 2008;22:280–292. doi: 10.1097/01.HNP.0000334921.31433.c6.
    1. Scott S, Walter F. Studying help-seeking for symptoms: The challenges of methods and models. Soc Personal Psychol Compass. 2010;4:531–47. doi: 10.1111/j.1751-9004.2010.00287.x.
    1. Yousaf O, Grunfeld EA, Hunter MS. A systematic review of the factors associated with delays in medical and psychological help-seeking among men. Health Psychol Rev. 2013:1-13
    1. Smith LK, Pope C, Botha JL. Patients’ help-seeking experiences and delay in cancer presentation: a qualitative synthesis. Lancet. 2005;366:825–831. doi: 10.1016/S0140-6736(05)67030-4.
    1. Vanderpool RC, Huang B. Cancer risk perceptions, beliefs, and physician avoidance in Appalachia: results from the 2008 HINTS Survey. J Health Commun. 2010;15(Suppl 3):78–91. doi: 10.1080/10810730.2010.522696.
    1. Persoskie A, Ferrer RA, Klein WM. Association of cancer worry and perceived risk with doctor avoidance: an analysis of information avoidance in a nationally representative US sample. J Behav Med. 2014;37:977–987. doi: 10.1007/s10865-013-9537-2.
    1. Kannan VD, Veazie PJ. Predictors of avoiding medical care and reasons for avoidance behavior. Med Care. 2014;52:336–345. doi: 10.1097/MLR.0000000000000100.
    1. Lund-Nielsen B, Midtgaard J, Rorth M, Gottrup F, Adamsen L. An avalanche of ignoring–a qualitative study of health care avoidance in women with malignant breast cancer wounds. Cancer Nurs. 2011;34:277–285. doi: 10.1097/NCC.0b013e3182025020.
    1. Kiefe CI, Funkhouser E, Fouad MN, May DS. Chronic disease as a barrier to breast and cervical cancer screening. J Gen Intern Med. 1998;13:357–365. doi: 10.1046/j.1525-1497.1998.00115.x.
    1. Barbour JB, Rintamaki LS, Ramsey JA, Brashers DE. Avoiding health information. J Health Commun. 2012;17:212–29.
    1. Larkey LK, Hecht ML, Miller K, Alatorre C. Hispanic cultural norms for health-seeking behaviors in the face of symptoms. Health Educ Behav. 2001;28:65–80. doi: 10.1177/109019810102800107.
    1. Ristvedt SL, Trinkaus KM. Psychological factors related to delay in consultation for cancer symptoms. Psychooncology. 2005;14:339–350. doi: 10.1002/pon.850.
    1. Richards MA, Westcombe AM, Love SB, Littlejohns P, Ramirez AJ. Influence of delay on survival in patients with breast cancer: a systematic review. Lancet. 1999;353:1119–1126. doi: 10.1016/S0140-6736(99)02143-1.
    1. Ohl M, Tate J, Duggal M, et al. Rural residence is associated with delayed care entry and increased mortality among veterans with human immunodeficiency virus infection. Med Care. 2010;48:1064–1070. doi: 10.1097/MLR.0b013e3181ef60c2.
    1. Carrillo JE, Carrillo VA, Perez HR, Salas-Lopez D, Natale-Pereira A, Byron AT. Defining and targeting health care access barriers. J Health Care Poor Underserved. 2011;22:562–575. doi: 10.1353/hpu.2011.0037.
    1. Reynolds LM, Consedine NS, Pizarro DA, Bissett IP. Disgust and behavioral avoidance in colorectal cancer screening and treatment: a systematic review and research agenda. Cancer Nurs. 2013;36:122–130. doi: 10.1097/NCC.0b013e31826a4b1b.
    1. Weller D, Vedsted P, Rubin G, et al. The Aarhus statement: improving design and reporting of studies on early cancer diagnosis. Br J Cancer. 2012;106:1262–1267. doi: 10.1038/bjc.2012.68.
    1. Moser RP, Arndt J, Han PK, Waters EA, Amsellem M, Hesse BW. Perceptions of cancer as a death sentence: prevalence and consequences. J Health Psychol. Jul 17 2013.
    1. Capp R, Rooks S, Wiler J, Zane R, Ginde A. National study of health insurance type and reasons for emergency department use. J Gen Intern Med. 2014;29:621–627. doi: 10.1007/s11606-013-2734-4.
    1. Cheung PT, Wiler JL, Lowe RA, Ginde AA. National study of barriers to timely primary care and emergency department utilization among medicaid beneficiaries. Ann Emerg Med. 2012;60:4–10.e12. doi: 10.1016/j.annemergmed.2012.01.035.
    1. Baker DW, Shapiro MF, Schur CL. Health insurance and access to care for symptomatic conditions. Arch Intern Med. 2000;160:1269–1274. doi: 10.1001/archinte.160.9.1269.
    1. DeVoe JE, Fryer GE, Phillips R, Green L. Receipt of preventive care among adults: insurance status and usual source of care. Am J Public Health. 2003;93:786–791. doi: 10.2105/AJPH.93.5.786.
    1. Goins RT, Williams KA, Carter MW, Spencer M, Solovieva T. Perceived barriers to health care access among rural older adults: a qualitative study. J Rural Health. 2005;21:206–213. doi: 10.1111/j.1748-0361.2005.tb00084.x.
    1. Ye J, Shim R, Rust G. Health care avoidance among people with serious psychological distress: analyses of 2007 Health Information National Trends Survey. J Health Care Poor Underserved. 2012;23:1620–1629. doi: 10.1353/hpu.2012.0189.
    1. Cantor D, Coa K, Crystal-Mansour S, Davis T, Dipko S, Sigman R. Health Information National Trends Survey (HINTS) 2007 Final Report. Westat: Rockville, MD; 2009.
    1. Nelson DE, Kreps GL, Hesse BW, et al. The Health Information National Trends Survey (HINTS): development, design, and dissemination. J Health Commun. 2004;9:443–460. doi: 10.1080/10810730490504233.
    1. Rutten LF, Moser RP, Beckjord EB, Hesse BW, Croyle RT. Cancer Communication: Health Information National Trends Survey. National Cancer Institute: Washington, DC; 2007.
    1. Glaser BG, Strauss AL. The discovery of grounded theory: strategies for qualitative research. Transaction Publishers; 2009
    1. Thomas DR. A general inductive approach for analyzing qualitative evaluation data. Am J Eval. 2006;27:237–246. doi: 10.1177/1098214005283748.
    1. Sweeny K. Crisis decision theory: decisions in the face of negative events. Psychol Bull. 2008;134:61–76. doi: 10.1037/0033-2909.134.1.61.
    1. Rittenhouse DR, Shortell SM. The patient-centered medical home: Will it stand the test of health reform? JAMA. 2009;301:2038–2040. doi: 10.1001/jama.2009.691.
    1. Moore PJ, Sickel AE, Malat J, Williams D, Jackson J, Adler NE. Psychosocial factors in medical and psychological treatment avoidance: the role of the doctor-patient relationship. J Health Psychol. 2004;9:421–433. doi: 10.1177/1359105304042351.
    1. Andersen RM. Revisiting the behavioral model and access to medical care: does it matter? J Health Soc Behav. 1995;36:1–10. doi: 10.2307/2137284.
    1. Iskandarsyah A, de Klerk C, Suardi DR, Soemitro MP, Sadarjoen SS, Passchier J. Psychosocial and cultural reasons for delay in seeking help and nonadherence to treatment in Indonesian women with breast cancer: a qualitative study. Health Psychol. 2014;33:214–221. doi: 10.1037/a0031060.
    1. Ramirez AJ, Westcombe AM, Burgess CC, Sutton S, Littlejohns P, Richards MA. Factors predicting delayed presentation of symptomatic breast cancer: a systematic review. Lancet. 1999;353:1127–1131. doi: 10.1016/S0140-6736(99)02142-X.
    1. Scott SE, Walter FM, Webster A, Sutton S, Emery J. The model of pathways to treatment: conceptualization and integration with existing theory. Br J Health Psychol. 2013;18:45–65. doi: 10.1111/j.2044-8287.2012.02077.x.
    1. Walter F, Webster A, Scott S, Emery J. The Andersen Model of Total Patient Delay: a systematic review of its application in cancer diagnosis. J Health Serv Res Policy. 2012;17:110–118. doi: 10.1258/jhsrp.2011.010113.
    1. Meyer D, Leventhal H, Gutmann M. Common-sense models of illness: the example of hypertension. Health Psychol. 1985;4:115–135. doi: 10.1037/0278-6133.4.2.115.
    1. Guide to Community Preventive Services. Increasing cancer screening: client reminders. . (Accessed 5/21/14).
    1. Kreps GL, Neuhauser L. New directions in eHealth communication: opportunities and challenges. Patient Educ Couns. 2010;78:329–336. doi: 10.1016/j.pec.2010.01.013.
    1. Chaudhry B, Wang J, Wu S, et al. Systematic review: impact of health information technology on quality, efficiency, and costs of medical care. Ann Intern Med. 2006;144:742–752. doi: 10.7326/0003-4819-144-10-200605160-00125.
    1. Blewett LA, Johnson PJ, Lee B, Scal PB. When a usual source of care and usual provider matter: adult prevention and screening services. J Gen Intern Med. 2008;23:1354–1360. doi: 10.1007/s11606-008-0659-0.
    1. Okoro CA, Strine TW, Young SL, Balluz LS, Mokdad AH. Access to health care among older adults and receipt of preventive services. Results from the Behavioral Risk Factor Surveillance System, 2002. Prev Med. 2005;40:337–343. doi: 10.1016/j.ypmed.2004.06.009.
    1. Rezayatmand R, Pavlova M, Groot W. The impact of out-of-pocket payments on prevention and health-related lifestyle: a systematic literature review. Eur J Public Health. 2013;23:74–79. doi: 10.1093/eurpub/cks034.
    1. Fennell ML, Das IP, Clauser S, Petrelli N, Salner A. The organization of multidisciplinary care teams: modeling internal and external influences on cancer care quality. JNCI Monographs. 2010;72–80.
    1. Bynum SA, Davis JL, Green BL, Katz RV. Unwillingness to participate in colorectal cancer screening: examining fears, attitudes, and medical mistrust in an ethnically diverse sample of adults 50 years and older. Am J Health Promot. 2012;26:295–300. doi: 10.4278/ajhp.110113-QUAN-20.
    1. Thompson HS, Valdimarsdottir HB, Winkel G, Jandorf L, Redd W. The Group-Based Medical Mistrust Scale: psychometric properties and association with breast cancer screening. Prev Med. 2004;38:209–218. doi: 10.1016/j.ypmed.2003.09.041.
    1. LaVeist TA, Isaac LA, Williams KP. Mistrust of health care organizations is associated with underutilization of health services. Health Serv Res. 2009;44:2093–2105. doi: 10.1111/j.1475-6773.2009.01017.x.
    1. Hammond WP, Matthews D, Mohottige D, Agyemang A, Corbie-Smith G. Masculinity, medical mistrust, and preventive health services delays among community-dwelling African-American men. J Gen Intern Med. 2010;25:1300–1308. doi: 10.1007/s11606-010-1481-z.
    1. Arora NK. Interacting with cancer patients: the significance of physicians’ communication behavior. Soc Sci Med. 2003;57:791–806. doi: 10.1016/S0277-9536(02)00449-5.
    1. Rao JK, Anderson LA, Inui TS, Frankel RM. Communication interventions make a difference in conversations between physicians and patients: a systematic review of the evidence. Med Care. 2007;45:340–349. doi: 10.1097/01.mlr.0000254516.04961.d5.
    1. Penner LA, Gaertner S, Dovidio JF, et al. A social psychological approach to improving the outcomes of racially discordant medical interactions. J Gen Intern Med. 2013;28:1143–1149. doi: 10.1007/s11606-013-2339-y.
    1. Fawole OA, Dy SM, Wilson RF, et al. A systematic review of communication quality improvement interventions for patients with advanced and serious illness. J Gen Intern Med. 2013;28:570–577. doi: 10.1007/s11606-012-2204-4.
    1. Anderson LA, Sharpe PA. Improving patient and provider communication: a synthesis and review of communication interventions. Patient Educ Couns. 1991;17:99–134. doi: 10.1016/0738-3991(91)90014-V.
    1. Griffin SJ, Kinmonth AL, Veltman MW, Gillard S, Grant J, Stewart M. Effect on health-related outcomes of interventions to alter the interaction between patients and practitioners: a systematic review of trials. Ann Fam Med. 2004;2:595–608. doi: 10.1370/afm.142.
    1. Clough J, Lee S, Chae DH. Barriers to health care among Asian immigrants in the United States: a traditional review. J Health Care Poor Underserved. 2013;24:384–403. doi: 10.1353/hpu.2013.0019.
    1. Nisbett RE, Wilson TD. Telling more than we can know: verbal reports on mental processes. Psychol Rev. 1977;84:231–259. doi: 10.1037/0033-295X.84.3.231.

Source: PubMed

3
구독하다