Acceptability of an mHealth Family Self-management Intervention (myFAMI) for Pediatric Transplantation Families: Qualitative Focus

Stacee Marie Lerret, Erin Flynn, Rosemary White-Traut, Estella Alonso, Alisha M Mavis, M Kyle Jensen, Caitlin G Peterson, Rachel Schiffman, Stacee Marie Lerret, Erin Flynn, Rosemary White-Traut, Estella Alonso, Alisha M Mavis, M Kyle Jensen, Caitlin G Peterson, Rachel Schiffman

Abstract

Background: Around 1800 pediatric transplantations were performed in 2021, which is approximately 5% of the annual rate of solid organ transplantations carried out in the United States. Effective family self-management in the transition from hospital to home-based recovery promotes successful outcomes of transplantation. The use of mHealth to deliver self-management interventions is a strategy that can be used to support family self-management for transplantation recipients and their families.

Objective: The study aims to evaluate the acceptability of an mHealth intervention (myFAMI) that combined use of a smartphone app with triggered nurse communication with family members of pediatric transplantation recipients.

Methods: This is a secondary analysis of qualitative data from family members who received the myFAMI intervention within a larger randomized controlled trial. Eligible participants used the app in the 30-day time frame after discharge and participated in a 30-day postdischarge telephone interview. Content analysis was used to generate themes.

Results: A total of 4 key themes were identified: (1) general acceptance, (2) positive interactions, (3) home management after hospital discharge, and (4) opportunities for improvement.

Conclusions: Acceptability of the intervention was high. Family members rated the smartphone application as easy to use. myFAMI allowed the opportunity for families to feel connected to and engage with the medical team while in their home environment. Family members valued and appreciated ongoing support and education specifically in this first 30 days after their child's hospital discharge and many felt it contributed positively to the management of their child's medical needs at home. Family members provided recommendations for future refinement of the app and some suggested that a longer follow-up period would be beneficial. The development and refinement of mHealth care delivery strategies hold potential for improving outcomes for solid organ transplantation patients and their families and as a model to consider in other chronic illness populations.

Trial registration: ClinicalTrials.gov NCT03533049; https://ichgcp.net/clinical-trials-registry/NCT03533049.

Keywords: family self-management; mHealth; pediatric patients; qualitative; transplantation.

Conflict of interest statement

Conflicts of Interest: None declared.

©Stacee Marie Lerret, Erin Flynn, Rosemary White-Traut, Estella Alonso, Alisha M Mavis, M Kyle Jensen, Caitlin G Peterson, Rachel Schiffman. Originally published in JMIR Nursing (https://nursing.jmir.org), 15.07.2022.

Figures

Figure 1
Figure 1
Summary of the myFAMI app workflow.
Figure 2
Figure 2
myFAMI app screenshot displaying one of the symptom-based survey questions.
Figure 3
Figure 3
App screenshot displaying one of the self-management–based survey questions.

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