Pregnant Women s Views About the Ethics of Prenatal Whole Genome Sequencing
Background:
Prenatal whole genome sequencing (PWGS) will give expecting parents large amounts of genetic data about their baby. This raises ethical concerns. Researchers want to find out if women want access to the kind of data PWGS provides. They want to know why and under what circumstances women would or would not want the data.
Objective:
To explore the views of pregnant women about possible use of PWGS. To find out whether they would want different categories of genetic data, and how they would use such findings.
Eligibility:
Women ages 18 and older who pregnant and speak English or Spanish
Design:
Participants will be recruited by their doctors.
Participants will take a survey about their views of PWGQ. They may take it online or on paper.
研究概览
地位
条件
详细说明
研究类型
注册 (实际的)
联系人和位置
学习地点
-
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Virginia
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Falls Church、Virginia、美国、22042
- Inova Fairfax Hospital
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参与标准
资格标准
适合学习的年龄
接受健康志愿者
有资格学习的性别
取样方法
研究人群
描述
- INCLUSION CRITERIA:
- Participants must be 18 years of age
- Participants must be pregnant
- Participants must speak English or Spanish
学习计划
研究是如何设计的?
设计细节
队列和干预
团体/队列 |
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Pregnant women
Women who are pregnant
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研究衡量的是什么?
主要结果指标
结果测量 |
措施说明 |
大体时间 |
---|---|---|
Views of pregnant women
大体时间:at baseline
|
This study seeks to explore the views of pregnant women about the hypothetical utility of PWGS, whether they would want different categories of genetic information, and how they would anticipate using such findings.
|
at baseline
|
合作者和调查者
调查人员
- 首席研究员:Benjamin E Berkman, J.D.、National Human Genome Research Institute (NHGRI)
研究记录日期
研究主要日期
学习开始 (实际的)
初级完成 (实际的)
研究完成 (实际的)
研究注册日期
首次提交
首先提交符合 QC 标准的
首次发布 (实际的)
研究记录更新
最后更新发布 (实际的)
上次提交的符合 QC 标准的更新
最后验证
更多信息
与本研究相关的术语
关键字
其他研究编号
- 999917080
- 17-HG-N080
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