Digital storytelling as a method in health research: a systematic review protocol

Kendra L Rieger, Christina H West, Amanda Kenny, Rishma Chooniedass, Lisa Demczuk, Kim M Mitchell, Joanne Chateau, Shannon D Scott, Kendra L Rieger, Christina H West, Amanda Kenny, Rishma Chooniedass, Lisa Demczuk, Kim M Mitchell, Joanne Chateau, Shannon D Scott

Abstract

Background: Digital storytelling is an arts-based research method with potential to elucidate complex narratives in a compelling manner, increase participant engagement, and enhance the meaning of research findings. This method involves the creation of a 3- to 5-min video that integrates multimedia materials including photos, participant voices, drawings, and music. Given the significant potential of digital storytelling to meaningfully capture and share participants' lived experiences, a systematic review of its use in healthcare research is crucial to develop an in-depth understanding of how researchers have used this method, with an aim to refine and further inform future iterations of its use.

Methods: We aim to identify and synthesize evidence on the use, impact, and ethical considerations of using digital storytelling in health research. The review questions are as follows: (1) What is known about the purpose, definition, use (processes), and contexts of digital storytelling as part of the research process in health research? (2) What impact does digital storytelling have upon the research process, knowledge development, and healthcare practice? (3) What are the key ethical considerations when using digital storytelling within qualitative, quantitative, and mixed method research studies? Key databases and the grey literature will be searched from 1990 to the present for qualitative, quantitative, and mixed methods studies that utilized digital storytelling as part of the research process. Two independent reviewers will screen and critically appraise relevant articles with established quality appraisal tools. We will extract narrative data from all studies with a standardized data extraction form and conduct a thematic analysis of the data. To facilitate innovative dissemination through social media, we will develop a visual infographic and three digital stories to illustrate the review findings, as well as methodological and ethical implications.

Discussion: In collaboration with national and international experts in digital storytelling, we will synthesize key evidence about digital storytelling that is critical to the development of methodological and ethical expertise about arts-based research methods. We will also develop recommendations for incorporating digital storytelling in a meaningful and ethical manner into the research process.

Systematic review registration: PROSPERO registry number CRD42017068002 .

Keywords: Arts; Arts-based; Digital storytelling; Ethical considerations; Health research; Stories; Systematic review; Visual research methods.

Conflict of interest statement

Authors’ information

KR is an assistant professor in the College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Canada. CW is an assistant professor in the College of Nursing, Rady Faculty of Health Sciences, University of Manitoba. She currently holds a 2016 Health Research New Investigator Operating Grant from Research Manitoba and is a researcher with the Children’s Hospital Research Institute of Manitoba. AK is a professor at La Trobe Rural Health School, LaTrobe University, Bendigo, Australia. RC is an assistant professor in the Max Rady College of Medicine, University of Manitoba, Canada. LD is the nursing liaison librarian at the Elizabeth Dafoe Library, University of Manitoba, Canada. KM is a nursing instructor at Red River College, Department of Nursing, School of Health Sciences and Community Services, Winnipeg, Canada, and a PhD student in the College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Canada. JC is a research coordinator with CW in the College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Canada. SS is a professor in the Faculty of Nursing, University of Alberta, Canada, and a Canada Research Chair (Tier 2) for Knowledge Translation in Child Health.

Ethics approval and consent to participate

Not applicable.

Consent for publication

Not applicable.

Competing interests

The authors declare that they have no competing interests.

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

References

    1. De Vecchi N, Kenny A, Dickson-Swift V, Kidd S. How digital storytelling is used in mental health: a scoping review. Int J Ment Health Nurs. 2016;25:183–193. doi: 10.1111/inm.12206.
    1. Gubrium AC, Krause EL, Jernigan K. Strategic authenticity and voice: new ways of seeing and being seen as young mothers through digital storytelling. Sexuality Research and Social Policy. 2014;11:337–347. doi: 10.1007/s13178-014-0161-x.
    1. Gubrium A. Digital storytelling: an emergent method for health promotion research and practice. Health Promot Pract. 2009;10:186–191. doi: 10.1177/1524839909332600.
    1. Boydell KM, Gladstone BM, Volpe T, Allemang B, Stasiulis E. The production and dissemination of knowledge: a scoping review of arts-based health research. Forum Qualitative Sozialforschung/Forum: Qualitative Social Research; 2012; 13. . . Accessed 7 Sep 2017.
    1. Shelby-Caffey C, Úbéda E, Jenkins B. Digital storytelling revisited. Read Teach. 2014;68:191–199. doi: 10.1002/trtr.1273.
    1. Cope B, Kalantizis M. “Multiliteracies”: new literacies, new learning. Pedagogies: An International Journal. 2003;4:164–195. doi: 10.1080/15544800903076044.
    1. Groff JS. Expanding our “frames” of mind for education and the arts. Harv Educ Rev. 2013;83:15–39. doi: 10.17763/haer.83.1.kk34802147665819.
    1. Drew SE, Duncan RE, Sawyer SM. Visual storytelling: a beneficial but challenging method for health research with young people. Qual Health Res. 2010;20:1677–1688. doi: 10.1177/1049732310377455.
    1. Lenette C, Boddy J. Visual ethnography and refugee women: nuanced understandings of lived experiences. Qual Res J. 2013;13:72–89. doi: 10.1108/14439881311314621.
    1. Lambart J. Digital storytelling: Capturing lives, creating community 4th ed. New York: Routledge Taylor & Francis Group; 2013.
    1. Cueva M, Kuhnley R, Revels L, Schoenberg N, Lanier E, Dignan A. Engaging elements of cancer-related digital stories in Alaska. J Cancer Educ. 2016;31:500–505. doi: 10.1007/s13187-015-0826-z.
    1. Akard T, Dietrich M, Friedman D, Hinds P, Given B, Wray S, Gilmer M. Digital storytelling: an innovative legacy-making intervention for children with cancer. Pediatr Blood Cancer. 2015;62:658–665. doi: 10.1002/pbc.25337.
    1. Christiansen A. Storytelling and professional learning: a phenomenographic study of students’ experience of patient digital stories in nurse education. Nurse Educ Today. 2011;31:289–293. doi: 10.1016/j.nedt.2010.10.006.
    1. Sandars J, Murray C. Digital storytelling for reflection in undergraduate medical education: a pilot study. Education for Primary Care. 2009;20:441–444. doi: 10.1080/14739879.2009.11493832.
    1. Coleman L, Ramm J, Cook R. The effectiveness of an innovative intervention aimed at reducing binge drinking among young people: results from a pilot study. Drugs: Education, Prevention, and Policy. 2010;17:413–430.
    1. Stenhouse R, Tait J, Hardy P, Sumner T. Dangling conversations: reflections on the process of creating digital stories during a workshop with people with early-stage dementia. J Psychiatr Ment Health Nurs. 2013;20:134–141. doi: 10.1111/j.1365-2850.2012.01900.x.
    1. Cumming GP, Currie HD, Moncur R, Lee AJ. Web-based survey on the effect of digital storytelling on empowering women to seek help for urogenital atrophy. Menopause International. 2010;16:51–55. doi: 10.1258/mi.2010.010004.
    1. Cunsolo Willox A, Harper SL, Edge VL. Storytelling in a digital age: digital storytelling as an emerging narrative method for preserving and promoting indigenous oral wisdom. Qual Res. 2013;13:127–147. doi: 10.1177/1468794112446105.
    1. Wexler L, Eglinton K, Gubrium A. Using digital stories to understand the lives of Alaska Native young people. Youth & Society. 2014;46:478–504. doi: 10.1177/0044118X12441613.
    1. Guse K, Spagat A, Hill A, Lira A, Heathcock S, Gilliam M. Digital storytelling: a novel methodology for sexual health promotion. American Journal of Sexuality Education. 2013;8:213–227. doi: 10.1080/15546128.2013.838504.
    1. Alberta Innovates – Health Solutions (AIHS). Bridging the gap: Knowledge translation in Alberta. 2017. . Accessed 17 Mar 2017.
    1. Rieger KL, Schultz AH. Exploring arts-based knowledge translation: sharing research findings through performing the patterns, rehearsing the results, staging the synthesis. Worldviews Evid-Based Nurs. 2014;11(2):133–139. doi: 10.1111/wvn.12031.
    1. DeVecchi, N., Kenny, A., Kidd, S. Dickson- Swift, V. Exploring the process of digital storytelling in mental health research: a process evaluation of consumer and clinician experiences. International Journal of Qualitative Methods. 2017;16:1–13.
    1. Storycenter. Ethical practice. Berkeley, CA 2016. . Accessed 7 Sep 2017.
    1. Wilson D, Hutson, S., Wyatt, T. . Exploring the role of digital storytelling in pediatric oncology patients’ perspectives regarding diagnosis. SAGE Open. 2015;5(1). doi:10.1177/2158244015572099.
    1. Moreau K, Eady K, Horsley T, Pound C, Sampson M. The impact of digital storytelling on patients and health professionals: a systematic review. PROSPERO 2016:CRD42016050271. . Accessed 7 Sept 2017.
    1. Mays N, Pope C, Popay J. Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field. Journal of Health Services Research & Policy. 2005;10(Suppl 1):6–20. doi: 10.1258/1355819054308576.
    1. McCrae N, Purssell E. Is it really theoretical? A review of sampling in grounded theory studies in nursing journals. J Adv Nurs. 2016;72(10):2284–2293. doi: 10.1111/jan.12986.
    1. PRISMA. PRISMA checklist 2017. . Accessed 7 Sept 2017.
    1. West CH, Rieger KL, Kenny A, Chooniedass R, Demczuk L, Chateau J, Scott S. Digital storytelling as a method in health research: a mixed-methods systematic review. PROSPERO 2017:CRD42017068002 . Accessed 7 Sep 2017.
    1. Morrison A, Moulton K, Clark M, Poisena J, Fiander M, Mierzwinski-Urban M, Mensinkai S, Clifford T, Hutton B. English-language restriction when conducting systematic review-based meta-analyses. Ottawa: Canada Canadian Agency for Drugs and Technologies in Health; 2009.
    1. StoryCenter. (2017). Accessed Dec 1 2017.
    1. Patient Voices. (2017). Accessed Dec 1 2017.
    1. Community Story Collective. (2017). Accessed Dec 1 2017.
    1. Thomas BH, Ciliska D, Dobbins M, Micucci S. A process for systematically reviewing the literature: providing the research evidence for public health nursing interventions. Worldviews Evid-Based Nurs. 2004;1:176–184. doi: 10.1111/j.1524-475X.2004.04006.x.
    1. Joanna Briggs Institute . JBI QARI Critical Appraisal Checklist for Qualitative Research. 2017.
    1. Scott SD, Brett-MacLean P, Archibald M, Hartling L. Protocol for a systematic review of the use of narrative storytelling and visual-arts-based approaches as knowledge translation tools in healthcare. Systematic Reviews. 2013;2:19. doi: 10.1186/2046-4053-2-19.
    1. Canadian Institutes of Health Research . Guide to knowledge translation planning at CIHR: integrated and end-of-grant approaches. 2012.

Source: PubMed

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