Take the First-Person Perspective to Become Dementia-Friendly: The Use of 360° Video for Experiencing Everyday-Life Challenges With Cognitive Decline

Francesca Morganti, Nicola Palena, Paola Savoldelli, Andrea Greco, Francesca Morganti, Nicola Palena, Paola Savoldelli, Andrea Greco

Abstract

The current spread of dementia is engendering an emergency that is not limited to the medical issues but also involves its social dimension. Accordingly, it is necessary to promote a perspective change about the disease that supports a more inclusive view of people with dementia. To ensure this, Dementia-Friendly Communities (DFCs) have recently been developed. Nonetheless, it is not always effortless to deal with people with dementia in an inclusive way because of misconceptions about how they perceive everyday contexts and react in everyday situations. We asked 170 individuals (aged between 13 and 75) to "put themselves in the shoes of a person with dementia" for a few minutes, facilitating this through the use of a 360° video, and to try to experience how activities such as going shopping feel from the first-person perspective. Before and after the experience, participants expressed their opinions about the needs and the autonomies that are deemed to be granted to a person with dementia. The results revealed changes to social perspective after having experienced firsthand what living with dementia could be like. A deeper comprehension of what it is like to live with dementia appeared to be gained, and participants' beliefs about the needs and daily autonomies of those with dementia were modified after the experience. It is possible to conclude that, through the change of perspective, people are more willing to be inclusive toward people with dementia, as is wished for in the DFC approach, although a wider formative intervention on how to be really inclusive still seems to be required.

Keywords: 360° video; Dementia-Friendly Community; ViveDe; dementia needs; first-person experience.

Copyright © 2020 Morganti, Palena, Savoldelli and Greco.

Figures

FIGURE 1
FIGURE 1
Research procedure timeline.
FIGURE 2
FIGURE 2
A ViveDe 360° video snapshot.
FIGURE 3
FIGURE 3
Relative percentage of the eight clusters at T1 and T2.

References

    1. Alzheimer’s Disease International (2016). Dementia Friendly Communities: Key Principles. London: Alzheimer’s Disease International.
    1. Bergman L. R., El-Khouri B. M. (2002). SLEIPNER: A statistical package for pattern-oriented analyses. Version 2.1. Stockholm: Stockholm University.
    1. Bergman L. R., Magnusson D., El Khouri B. M. (2003). Studying Individual Development in An Interindividual Context: A Person-Oriented Approach. Road Hove: Psychology Press.
    1. Beville P. K. (2002). Virtual Dementia Tour® helps sensitize health care providers. Am. J. Alzheimer Dis. Other Dement. 17 183–190. 10.1177/153331750201700301
    1. Ecker U. K. H., Lewandowsky S., Tang D. T. W. (2010). Explicit warnings reduce but do not eliminate the continued influence of misinformation. Mem Cogn 38 1087–1100. 10.3758/MC.38.8.1087
    1. Hodes J. F., Oakley C. I., O’Keefe J. H., Lu P., Galvin J. E., Saif N., et al. (2019). Alzheimer’s “Prevention” vs. “Risk Reduction”: transcending semantics for clinical practice. Front. Neurol. 9:1179. 10.3389/fneur.2018.01179
    1. Kapasi A., DeCarli C., Schneider J. A. (2017). Impact of multiple pathologies on the threshold for clinically overt dementia. Acta Neuropathol. 134 171–186. 10.1007/s00401-017-1717-7
    1. Kitwood T. (1997). Dementia Reconsidered: The Person Comes First. Oxford: Oxford University Press.
    1. Landeiro F., Walsh K., Ghinai I., Mughal S., Nye E., Wace H., et al. (2018). Measuring quality of life of people with predementia and dementia and their caregivers: a systematic review protocol. BMJ Open 8 e019082. 10.1136/bmjopen-2017-019082
    1. Lewandowsky S., Ecker U. K. H., Seifert C. M., Schwarz N., Cook J. (2012). Misinformation and its correction: continued influence and successful debiasing. Psychol. Sci. Public Interest 13 106–131. 10.1177/1529100612451018
    1. Lin S.-Y. (2016). Dementia-friendly communities’ and being dementia friendly in healthcare settings∗. Curr. Opin. Psychiatry 30 145–150. 10.1097/YCO.0000000000000304
    1. Maslow A. H. (1943). A theory of human motivation. Psychol. Rev. 50 370–396.
    1. Maslow A. H. (1954). Motivation and Personality. New York, NY: Harpers.
    1. Merizzi A. (2018). Virtual Dementia Tour§: limitations and ethics. Qual. Ageing Older Adults 19 146–155. 10.1108/QAOA-11-2017-0042
    1. Morganti F. (2019). “Experiencing dementia from inside: the expediency of immersive presence,” in Pervasive Computing Paradigms for Mental Health, eds Cipresso P., Serino S., Villani D. (Cham: Springer; ), 10.1007/978-3-030-25872-6_5
    1. Paulsen J. S., Nance M., Kim J., Carlozzi N. E., Panegyres P. K., Erwin C., et al. (2013). A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases. Progr. Neurobiol. 110 2–28. 10.1016/j.pneurobio.2013.08.003
    1. Smebye K. L., Kirkevold M., Engeda K. (2016). Ethical dilemmas concerning autonomy when persons with dementia wish to live at home: a qualitative, hermeneutic study. BMC Health Serv. Res. 16:21. 10.1186/s12913-015-1217-1
    1. Swaffer K. (2014). Dementia: stigma. Language, and Dementia-friendly. Dementia 13 709–716. 10.1177/1471301214548143
    1. Watt J. A., Goodarzi Z., Veroniki A. A., Nincic V., Khan P. A., Ghassemi M., et al. (2019). Comparative efficacy of interventions for aggressive and agitated behaviors in dementia: a systematic review and network meta-analysis. Ann. Inter. Med. 10.7326/M19-0993 [Epub ahead of print],
    1. Zahavi D. (2008). Subjectivity and Selfhood: Investigating the First-Person Perspective. Cambridge, MA: MIT Press.
    1. Zajonc R. B. (2001). Mere exposure: a gateway to the subliminal. Curr. Direct. Psychol. Sci. 10 224–228. 10.1111/1467-8721.00154

Source: PubMed

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