Adaptation of an In-Person Mind-Body Movement Program for People with Cognitive Impairment or Dementia and Care Partners for Online Delivery: Feasibility, Satisfaction and Participant-Reported Outcomes

Francesca M Nicosia, Jennifer A Lee, Margaret A Chesney, Cynthia Benjamin, Amanda N Lee, Wolf Mehling, Rebecca L Sudore, Deborah E Barnes, Francesca M Nicosia, Jennifer A Lee, Margaret A Chesney, Cynthia Benjamin, Amanda N Lee, Wolf Mehling, Rebecca L Sudore, Deborah E Barnes

Abstract

Background: Preventing Loss of Independence through Exercise (PLIÉ) is an in-person group mind-body movement program for people across the spectrum of cognitive decline and care partners (CPs).

Objective: This study developed and refined an online version called Moving Together and tested feasibility and satisfaction with an online delivery.

Methods: In Phase 1, we used qualitative methods to determine which elements of the in-person program were essential to retain for the online version and adaptations that would be needed to support the user experience. In Phase 2, we created a prototype of the online program and iteratively refined it based on user feedback. In Phase 3, we assessed feasibility of online delivery based on class attendance and program completion; we assessed satisfaction and participant-reported outcomes using a post-program evaluation survey with quantitative and qualitative components.

Results: Phase 1 findings from 27 participants (14 PLWD, 13 CPs) revealed three key considerations related to online delivery of PLIÉ: technology use, social connection as a primary motivator, and physical safety concerns. Phase 2 iterative testing among 25 participants (14 PLWD, 11 CPs) resulted in key refinements to program delivery and instructional elements; Phase 3 pilot testing included 39 participants (12 PLWD, 15 CPs, 12 MCI) who attended 75 ± 29% of 24 classes; 77% completed the 12-week program, of whom 96% rated it as excellent or good. Participant-reported outcomes included improvements in social connection, emotional well-being, physical function, cognitive function and present-centered body awareness. PLWD or MCI also reported improvements in self-concept, and CPs reported improvements in caregiving self-efficacy. The primary challenges were related to participant navigation of technology.

Conclusion: The Moving Together online program is feasible for PLWD or MCI and CPs with participants reporting high satisfaction and positive outcomes across multiple domains. Providing individual technology support is critical for the success of livestreamed, online interventions for dementia.

Keywords: Alzheimer’s disease; caregivers; cognitive impairment; dementia; mind-body movement; physical activity; quality of life.

Conflict of interest statement

The author(s) declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article: Ms. Benjamin is CEO of Together Senior Health, which is commercializing Moving Together. Ms. A. Lee is a former employee of Together Senior Health. Ms. J. Lee is a current employee of Together Senior Health. Dr. Barnes is Chief Science Advisor for Together Senior Health. Dr. Mehling and Dr. Chesney are co-inventors of PLIÉ and Paired PLIÉ and have the potential to earn royalties. Dr. Nicosia and Dr. Sudore have no conflicts of interest to declare.

© The Author(s) 2023.

Figures

Figure 1.
Figure 1.
Study design and phases.
Figure 2.
Figure 2.
Comparison of in-person and online program components.
Figure 3.
Figure 3.
Home set-up image included in Welcome Kit showing ideal distance (5-8 feet) between chair without wheels and camera.

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Source: PubMed

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