Satisfaction with renal replacement therapy and education: the American Association of Kidney Patients survey

Stephen Z Fadem, David R Walker, Greg Abbott, Amy L Friedman, Richard Goldman, Sue Sexton, Kim Buettner, Kris Robinson, Thomas G Peters, Stephen Z Fadem, David R Walker, Greg Abbott, Amy L Friedman, Richard Goldman, Sue Sexton, Kim Buettner, Kris Robinson, Thomas G Peters

Abstract

Background and objectives: This study was undertaken by the American Association of Kidney Patients (AAKP) to better understand ESRD patients' satisfaction with their current renal replacement therapy (RRT) and the education they received before initiating therapy.

Design, setting, participants, & measurements: In addition to an open invitation on the AAKP website, nearly 9000 ESRD patients received invitations to complete the survey, which consisted of 46 questions. Satisfaction was measured on a 1 (extremely dissatisfied) to 7 (extremely satisfied) scale.

Results: Survey respondents were younger, more highly educated, and more likely to be white as well as employed as compared with the U.S. dialysis population. A total of 977 patients responded. Overall patient satisfaction with current RRT treatment varied from a low of 4.5 for in-center hemodialysis (ICHD) to a high of 6.1 in transplant (TX) patients. Peritoneal dialysis (PD) and home hemodialysis (HHD) mean scores were 5.2 and 5.5, respectively. PD, HHD, and TX patients' satisfaction scores were significantly higher than those of ICHD patients (P < 0.05). Approximately 31% of respondents felt that the therapies were not equally and fairly presented as treatment options, and 32% responded that they were not educated regarding HHD.

Conclusions: ESRD patients are not uniformly advised about all possible treatment methods and hence were only moderately satisfied with their pretreatment education. Once on RRT, those on a home therapy or with a kidney TX are more satisfied than those with ICHD.

Figures

Figure 1.
Figure 1.
Prior use of other RRTs.
Figure 2.
Figure 2.
Percent of patients indicating that RRT modalities were not presented equally or fairly.
Figure 3.
Figure 3.
Percent of patients indicating which RRT was presented as the better option.
Figure 4.
Figure 4.
Topics selected as being of the most interest to the patient categorized as clinical or lifestyle/social.

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