What information needs do people with recently diagnosed diabetes mellitus have and what are the associated factors? A cross-sectional study in Germany

Sandra Grobosch, Silke Kuske, Ute Linnenkamp, Nicole Ernstmann, Astrid Stephan, Jutta Genz, Alexander Begun, Burkhard Haastert, Julia Szendroedi, Karsten Müssig, Volker Burkart, Michael Roden, Andrea Icks, GDS Group, H Al-Hasani, A E Buyken, J Eckel, G Geerling, C Herder, J Kotzka, O Kuß, E Lammert, D Markgraf, W Rathmann, J Szendroedi, D Ziegler, Sandra Grobosch, Silke Kuske, Ute Linnenkamp, Nicole Ernstmann, Astrid Stephan, Jutta Genz, Alexander Begun, Burkhard Haastert, Julia Szendroedi, Karsten Müssig, Volker Burkart, Michael Roden, Andrea Icks, GDS Group, H Al-Hasani, A E Buyken, J Eckel, G Geerling, C Herder, J Kotzka, O Kuß, E Lammert, D Markgraf, W Rathmann, J Szendroedi, D Ziegler

Abstract

Objectives: This study aimed to identify: (1) information needs of people with recently diagnosed type 1 or type 2 diabetes mellitus (DM); (2) information needs within different subgroups; and (3) factors associated with information needs concerning DM such as current level of information, health-related quality of life or participation preferences.

Design: A mixed-method approach combining quantitative and qualitative methods was used. Information needs for different topics and estimated associated factors were described using logistic regression models. Additionally, a qualitative content analysis was performed.

Setting: Monocentre study.

Participants: Information needs were assessed and analysed in 138 consecutive participants with DM who took part in the German Diabetes Study (54% type 2 diabetes, 64% male, mean age 46.3±12.3 years, known diabetes duration <1 year).

Results: Most participants displayed a need for information in all topics provided, especially in diabetes research (86%) and treatment/therapy (80%). Regarding those topics, participants wished for information regarding new treatments that simplify their everyday life. In general, participants preferred topics that focus on the management or handling of DM over topics related to clinical factors of DM, such as causes and complications. A low current level of information and treatment with antihyperglycaemic medication were significantly associated with higher information needs, and diabetes-related comorbidity and higher mental component summary score in the 36-Item Short-Form Health Survey (SF-36) with lower information needs.

Conclusion: People with recently diagnosed DM display high information needs, which differ according to the current level of information, mode of diabetes treatment, diabetes-related comorbidity and mental component summary score in the SF-36. There appears to be a preference for information, which can help to simplify life with diabetes and for information that corresponds to their level of knowledge. This should be considered in patient information activities.

Trial registration number: NCT01055093.

Keywords: german diabetes study; information needs; patient-centred care; recently diagnosed diabetes mellitus.

Conflict of interest statement

Competing interests: None declared

© Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Figures

Figure 1
Figure 1
Current level of information of the study population on the diabetes-related topics.
Figure 2
Figure 2
Information needs of the study population.
Figure 3
Figure 3
Topics mentioned as most important by participants.

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