Dorothy P. and Richard P. Simmons Center for ILD Research Registry (ILDRR)

November 9, 2023 updated by: Kevin F. Gibson, University of Pittsburgh

Dorothy P. and Richard P Simmons Center for Interstitial Lung Disease Research Registry

The purpose of this study is to place past, current, and future medical record information into the UPMC Simmons Center for Interstitial Lung Disease Research Registry.

Study Overview

Status

Recruiting

Conditions

Detailed Description

This study gives participant's permission to allow the staff at the Dorothy P. and Richard P. Simmons Center for Interstitial Lung Disease to to place past, current, and future medical record information into a UPMC Simmons Center for Interstitial Lung Disease Research Registry. By placing the medical record information of many patients into a research registry, researchers will be able to conduct research studies directed at increasing our knowledge about interstitial lung disease. It is anticipated that the research registry will assist out investigators by allowing researchers to review and study the medical records of many individuals to answer questions about interstitial lung disease and its treatment. In addition, it will help researchers identify and recruit patients for participation in future research studies.

Study Type

Observational

Enrollment (Estimated)

5000

Contacts and Locations

This section provides the contact details for those conducting the study, and information on where this study is being conducted.

Study Contact

Study Contact Backup

Study Locations

  • United States
    • Pennsylvania
      • Pittsburgh, Pennsylvania, United States, 15213
        • Recruiting
        • Michelle F MacPherson
        • Principal Investigator:
          • Kevin Gibson, MD
        • Contact:
        • Contact:
        • Sub-Investigator:
          • Rajiv Dhir, MD
        • Sub-Investigator:
          • Luis A Ortiz, MD
        • Sub-Investigator:
          • Michelle F MacPherson, BS, MAT
        • Sub-Investigator:
          • Kristen Veraldi, M.D.
        • Sub-Investigator:
          • Michelle Meyers, BSN, RN
        • Sub-Investigator:
          • Morgan Carnahan, BS
        • Sub-Investigator:
          • Joo Hueng Yoon, MD
        • Sub-Investigator:
          • Yingze Zhang, PhD
        • Sub-Investigator:
          • Daniel Sullivan, MD
        • Sub-Investigator:
          • Eleanor Valenzi, MD
        • Sub-Investigator:
          • Gillian Goobie, MD PhD
        • Sub-Investigator:
          • Daniel J Kass, MD
        • Sub-Investigator:
          • John McDyer, MD
        • Sub-Investigator:
          • Seyed Mehdi Nouraie, PhD
        • Sub-Investigator:
          • Xiaoping Chen, MD
        • Sub-Investigator:
          • Jetina Okereke, MD
        • Sub-Investigator:
          • Jonathan Alder, MD
        • Sub-Investigator:
          • Shuangjia Xue, MD
        • Sub-Investigator:
          • Rachel Sutton, MS

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Eligibility Criteria

Ages Eligible for Study

16 years and older (Adult, Older Adult)

Accepts Healthy Volunteers

No

Sampling Method

Non-Probability Sample

Study Population

Study population can be described as any adult being seen by a physician at the Simmons Center for interstitial lung disease who has been diagnosed with an Interstitial Lung Disease.

Description

Inclusion Criteria:

  • Adult patients who are seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease
  • 18 years of age or older

Exclusion Criteria:

  • N/A

Study Plan

This section provides details of the study plan, including how the study is designed and what the study is measuring.

How is the study designed?

Design Details

  • Observational Models: Cohort
  • Time Perspectives: Other

Collaborators and Investigators

This is where you will find people and organizations involved with this study.

Sponsor

University of Pittsburgh

Investigators

  • Principal Investigator: Kevin F Gibson, MD, University of Pittsburgh - UPMC Simmons Center for Interstitial Lung Disease

Publications and helpful links

The person responsible for entering information about the study voluntarily provides these publications. These may be about anything related to the study.

Helpful Links

Study record dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Major Dates

Study Start

October 1, 2003

Primary Completion (Estimated)

July 1, 2035

Study Completion (Estimated)

July 1, 2035

Study Registration Dates

First Submitted

November 23, 2005

First Submitted That Met QC Criteria

November 23, 2005

First Posted (Estimated)

November 24, 2005

Study Record Updates

Last Update Posted (Estimated)

November 14, 2023

Last Update Submitted That Met QC Criteria

November 9, 2023

Last Verified

November 1, 2023

More Information

Terms related to this study

Keywords

Additional Relevant MeSH Terms

Other Study ID Numbers

  • STUDY20030050

This information was retrieved directly from the website clinicaltrials.gov without any changes. If you have any requests to change, remove or update your study details, please contact register@clinicaltrials.gov. As soon as a change is implemented on clinicaltrials.gov, this will be updated automatically on our website as well.

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