Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care (HaSPrEA)

Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care: Qualitative Study - Monocentric Study

Study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in the various social spaces and improve collaboration between professionals and parents

Study Overview

• Status: Completed
• Conditions: Autistic Disorder
• Intervention / Treatment: Other: Families; Other: professionals

Detailed Description

Identify the living conditions related to the housing of children with autism spectrum disorders (ASD) treated at the Léo Kanner Center (CLK), psychopathology department of the Saint-Étienne University Hospital. The aim is to describe through the trajectories of children with ASD and their families, their living conditions, and through interviews with professionals who support them, how the specificities related to precarious situations are identified and taken into account.

A qualitative survey, carried out by sociological interviews with families whose children are followed at the Léo Kanner Center (CLK) and the professionals who care for them, would make it possible to collect data on the development of a young child with autism in his home and more generally in his habitat.

The purpose of this study is to study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in different social spaces and improve collaboration between professionals and parents. The project aims to bring children with autism spectrum disorders (ASD) into a dynamic of access to human rights. He suggests three levers to achieve this: rely on a precise inventory of needs; work towards a transformation of representations; streamline access to healthcare and common law services.

• Study Type: Observational
• Enrollment (Actual): 45

Contacts and Locations

Study Locations

• France
  • Saint-Étienne, France, 42055
    • CHU St Etienne

Participation Criteria

Eligibility Criteria

• Ages Eligible for Study: No older than 18 years (Child, Adult)
• Accepts Healthy Volunteers: No

• Sampling Method: Non-Probability Sample

Study Population

Children followed for Autism Spectrum Disorders (ASD)

Description

Inclusion Criteria:

• Families having their child followed in the child psychiatry service of the Léo Kanner Center (CLK),
• Children followed for Autism Spectrum Disorders (ASD),
• Families who received informed information about the study and who co-signed a consent to participate in the study with the investigator.

Exclusion Criteria:

• Opinion of the child's referring physician contraindicating inclusion
• Refusal of one of the legal guardians to participate in the study

Study Plan

How is the study designed?

What is the study measuring?

Primary Outcome Measures

Outcome Measure	Measure Description	Time Frame
living conditions of children with Autism Spectrum Disorders (ASD)	To identify the living conditions related to the housing of children with Autism Spectrum Disorders (ASD) who are cared for at the Léo Kanner Center (CLK), psychopathology department of the University Hospital of Saint-Etienne.	hours 2

Secondary Outcome Measures

Outcome Measure	Measure Description	Time Frame
Precarity	Families's interviews about their precarious situation of living and the consequences on their autistic child care	hours 2

Other Outcome Measures

Outcome Measure	Measure Description	Time Frame
Professionals	Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals	hours 2

Collaborators and Investigators

• Sponsor: Centre Hospitalier Universitaire de Saint Etienne
• Investigators: Principal Investigator: VALERIE ROUSSELON-CHARLES, MD, CHU ST ETIENNE FRANCE

Study record dates

Study Major Dates

• Study Start (Actual): September 1, 2021
• Primary Completion (Actual): April 1, 2022
• Study Completion (Actual): January 1, 2023

Study Registration Dates

• First Submitted: March 25, 2021
• First Submitted That Met QC Criteria: March 26, 2021
• First Posted (Actual): March 29, 2021

Study Record Updates

• Last Update Posted (Actual): July 10, 2023
• Last Update Submitted That Met QC Criteria: July 7, 2023
• Last Verified: July 1, 2023

More Information

Terms related to this study

• Keywords: care; support; precarious; professional interview; family interview
• Additional Relevant MeSH Terms: Mental Disorders; Neurodevelopmental Disorders; Child Development Disorders, Pervasive; Autism Spectrum Disorder; Autistic Disorder
• Other Study ID Numbers: 20CH029

Plan for Individual participant data (IPD)

• Plan to Share Individual Participant Data (IPD)?: NO

Drug and device information, study documents

• Studies a U.S. FDA-regulated drug product: No
• Studies a U.S. FDA-regulated device product: No