The Greater Plains Collaborative: a PCORnet Clinical Research Data Network

Lemuel R Waitman, Lauren S Aaronson, Prakash M Nadkarni, Daniel W Connolly, James R Campbell, Lemuel R Waitman, Lauren S Aaronson, Prakash M Nadkarni, Daniel W Connolly, James R Campbell

Abstract

The Greater Plains Collaborative (GPC) is composed of 10 leading medical centers repurposing the research programs and informatics infrastructures developed through Clinical and Translational Science Award initiatives. Partners are the University of Kansas Medical Center, Children's Mercy Hospital, University of Iowa Healthcare, the University of Wisconsin-Madison, the Medical College of Wisconsin and Marshfield Clinic, the University of Minnesota Academic Health Center, the University of Nebraska Medical Center, the University of Texas Health Sciences Center at San Antonio, and the University of Texas Southwestern Medical Center. The GPC network brings together a diverse population of 10 million people across 1300 miles covering seven states with a combined area of 679 159 square miles. Using input from community members, breast cancer was selected as a focus for cohort building activities. In addition to a high-prevalence disorder, we also selected a rare disease, amyotrophic lateral sclerosis.

Keywords: CTSA; Clinical Research; Comparative Effectiveness; Data Warehouse; PCORI; Patient Centered.

Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.

Figures

Figure 1
Figure 1
Greater Plains Collaborative network components. Existing resources are shown in black, new site data sources that can supplement longitudinal data capture in green, new components to be deployed at the sites in red, and GPC-level data stores and components in blue.
Figure 2
Figure 2
Greater Plains Collaborative (GPC) interoperable standardization measurement framework.
Figure 3
Figure 3
Flexible terminology mappings in Informatics for Integrating Biology and the Bedside (i2b2).

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Source: PubMed

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