A 4-Week Electronic-Mentoring Employment Intervention for Youth With Physical Disabilities: Pilot Randomized Controlled Trial

Sally Lindsay, Elaine Cagliostro, Jennifer Stinson, Joanne Leck, Sally Lindsay, Elaine Cagliostro, Jennifer Stinson, Joanne Leck

Abstract

Background: Youth with disabilities are more likely to live in poverty and be unemployed compared with youth without disabilities. Such trends are often a result of a lack of support, inaccessible jobs, environmental barriers, and discriminatory attitudes toward people with disabilities. Youth with disabilities also face barriers in accessing vocational preparation programs. One encouraging way that could help address challenges that youth encounter is by providing support through electronic mentoring (e-mentoring).

Objective: The objective of this study was to assess the feasibility of a 4-week Web-based peer e-mentoring employment intervention for youth with physical disabilities.

Methods: We conducted a pilot randomized controlled trial (RCT) to evaluate our intervention, Empowering youth towards employment. Participants included youth aged 15 to 25 years who were randomly assigned to an experimental (mentored) or control (nonmentored) group. Our intervention involved having trained youth mentors (ie, near peers who also had a disability) lead Web-based discussion forums while offering peer support and resources, which involved 12 modules (3 topics a week for 4 weeks). Primary outcomes focused on implementation (ie, feasibility and acceptability), whereas secondary outcomes focused on effectiveness (ie, measures of self-determination, career maturity, and social support).

Results: A total of 28 youth (mean age 19.62, SD 3.53; 14/28, 50% female) completed the RCT in 3 intervention groups and 2 control groups (intervention n=18, control n=10). Participants reported satisfaction with the program and that it was feasible and acceptable. Youth's mean engagement level with the program was 6.44 (SD 2.33) for the experimental group and 5.56 (SD 3.53) for controls. Participants in the intervention group did not demonstrate any significant improvements in social support, career maturity, or self-determination compared with those in the control group. No adverse events were reported.

Conclusions: The Empowering youth towards employment e-mentoring intervention needs further testing with a larger sample and different length of formats to understand how it may have an impact on employment outcomes for youth with disabilities.

Trial registration: ClinicalTrials.gov NCT02522507; https://ichgcp.net/clinical-trials-registry/NCT02522507 (Archived by WebCite at http://www.webcitation.org/77a3T4qrE).

Keywords: mentor; occupational therapy; rehabilitation; social support; youth.

Conflict of interest statement

Conflicts of Interest: None declared.

©Sally Lindsay, Elaine Cagliostro, Jennifer Stinson, Joanne Leck. Originally published in JMIR Pediatrics and Parenting (http://pediatrics.jmir.org), 24.04.2019.

Figures

Figure 1
Figure 1
CONSORT flow diagram.

References

    1. Lindsay S, Cagliostro E, Albarico M, Mortaji N, Karon L. A systematic review of the benefits of hiring people with disabilities. J Occup Rehabil. 2018 Feb 1;:634–55. doi: 10.1007/s10926-018-9756-z.
    1. Turcotte M. Statistics Canada. Ottawa: Statistics Canada; 2014. [2019-03-27]. Persons With Disabilities and Employment .
    1. Brennan S. Statistics Canada. 2006. [2019-03-27]. Participation and activity limitation survey .
    1. Verhoef J, Miedema H, Van Meeteren J, Stam HJ, Roebroeck ME. A new intervention to improve work participation of young adults with physical disabilities: a feasibility study. Dev Med Child Neurol. 2013 Aug;55(8):722–8. doi: 10.1111/dmcn.12158. doi: 10.1111/dmcn.12158.
    1. Barnfather A, Stewart M, Magill-Evans J, Ray L, Letourneau N. Computer-mediated support for adolescents with cerebral palsy or spina bifida. Comput Inform Nurs. 2011;29(1):24–33. doi: 10.1097/NCN.0b013e3181f9db63. doi: 10.1097/NCN.0b013e3181f9db63.
    1. Lindsay S, Stinson J, Stergiou-Kita M, Leck J. Improving transition to employment for youth with physical disabilities: protocol for a peer electronic mentoring intervention. JMIR Res Protoc. 2017 Nov 16;6(11):e215. doi: 10.2196/resprot.8034.
    1. Lindsay S, McDougall C, Sanford R, Menna-Dack D, Kingsnorth S, Adams T. Exploring employment readiness through mock job interview and workplace role-play exercises: comparing youth with physical disabilities to their typically developing peers. Disabil Rehabil. 2015;37(18):1651–63. doi: 10.3109/09638288.2014.973968.
    1. Lindsay S. Discrimination and other barriers to employment for teens and young adults with disabilities. Disabil Rehabil. 2011;33(15-16):1340–50. doi: 10.3109/09638288.2010.531372.
    1. Lindsay S, McPherson AC, Maxwell J. Perspectives of school-work transitions among youth with spina bifida, their parents and health care providers. Disabil Rehabil. 2017 Dec;39(7):641–52. doi: 10.3109/09638288.2016.1153161.
    1. Fernandes-Alcantara A. Disconnected Youth: A Look at 16- to 24- Year Olds Who Are Not Working Or in School. Washington: Department of Labor; 2015. pp. 16–24.
    1. Hanif S, Peters H, McDougall C, Lindsay S. Factors in Studying Employment for Persons with Disability (Research in Social Science and Disability, Volume 10) Bingley, United Kingdom: Emerald Publishing Limited; 2017. A systematic review of vocational interventions for youth with disabilities; pp. 181–202.
    1. Lindsay S, Adams T, McDougall C, Sanford R. Skill development in an employment-training program for adolescents with disabilities. Disabil Rehabil. 2012;34(3):228–37. doi: 10.3109/09638288.2011.603015. doi: 10.3109/09638288.2011.603015.
    1. Lindsay S, Fellin M. A systematic review of mentorship programs to facilitate transition to post-secondary education and employment for youth and young adults with disabilities. Disabil Rehabil. 2016 Jul;38(14):1329–49. doi: 10.3109/09638288.2015.1092174. doi: 10.3109/09638288.2015.1092174.
    1. Lindsay S, Kolne K, Cagliostro E. Electronic mentoring programs and interventions for children and youth with disabilities: systematic review. JMIR Pediatr Parent. 2018 Oct 24;1(2):e11679. doi: 10.2196/11679.
    1. Lindsay S, Munson M. National Mentoring Resource Center. [2019-01-18]. Mentoring for youth with disabilities .
    1. Stinson J, Ahola KS, Forgeron P, Amaria K, Bell M, Kaufman M, Luca N, Luca S, Harris L, Victor C, Spiegel L. The iPeer2Peer Program: a pilot randomized controlled trial in adolescents with Juvenile Idiopathic Arthritis. Pediatr Rheumatol Online J. 2016 Sep 2;14(1):48. doi: 10.1186/s12969-016-0108-2.
    1. Fraas M, Bellerose A. Mentoring programme for adolescent survivors of acquired brain injury. Brain Inj. 2010 Jan;24(1):50–61. doi: 10.3109/02699050903446781.
    1. Cassiani C. University of Toronto. Toronto: University of Toronto; 2017. [2019-03-27]. A peer e-mentoring employment program for youth with physical disabilities: what are the social supports that are needed and provided .
    1. Sword C, Hill K. University Digital Conservancy. 2003. Creating mentoring opportunities for youth with disabilities: issues and suggested strategies .
    1. Gregg N, Galyardt A, Wolfe G, Moon N, Todd R. Virtual mentoring and persistence in STEM for students with disabilities. Career Dev Transition Except Individ. 2016 May 25;40(4):205–14. doi: 10.1177/2165143416651717.
    1. Cawthon SW, Johnson PM, Garberoglio CL, Schoffstall SJ. Role models as facilitators of social capital for deaf individuals: a research synthesis. Am Ann Deaf. 2016;161(2):115–27. doi: 10.1353/aad.2016.0021.
    1. Thompson L, Jeffries M, Topping K. E‐mentoring for e‐learning development. Innov Educ Teach International. 2010 Aug;47(3):305–15. doi: 10.1080/14703297.2010.498182.
    1. Lindsay S, Smith S, Bell F, Bellaby P. Tackling the digital divide: Exploring the impact of ICT on managing heart conditions in a deprived area. Inf Commun Soc. 2007 Feb;10(1):95–114. doi: 10.1080/13691180701193127.
    1. Nguyen HQ, Carrieri-Kohlman V, Rankin SH, Slaughter R, Stulbarg MS. Internet-based patient education and support interventions: a review of evaluation studies and directions for future research. Comput Biol Med. 2004 Mar;34(2):95–112. doi: 10.1016/S0010-4825(03)00046-5. doi: 10.1016/S0010-4825(03)00046-5.
    1. Eysenbach G, Powell J, Englesakis M, Rizo C, Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. Br Med J. 2004 May 15;328(7449):1166. doi: 10.1136/bmj.328.7449.1166.
    1. Ohler J, Levinson E, Barker W. Career maturity in college students with learning disabilities. Career Dev Q. 1996;44(3):278–88. doi: 10.1002/j.2161-0045.1996.tb00259.x.
    1. Fabian ES. Urban youth with disabilities: Factors affecting transition employment. Rehabil Couns Bull. 2016 Aug 13;50(3):130–8. doi: 10.1177/00343552070500030101.
    1. Super D, Savickas M, Super C. A life-span, life-space approach to career development. In: Brown D, Brooks L, editors. Career Choice and Development. San Francisco: Jossey-Bass; 1996. pp. 121–78.
    1. Plano Clark VL, Schumacher K, West C, Edrington J, Dunn LB, Harzstark A, Melisko M, Rabow MW, Swift PS, Miaskowski C. Practices for embedding an interpretive qualitative approach within a randomized clinical trial. J Mix Methods Res. 2013 Jul;7(3):219–42. doi: 10.1177/1558689812474372.
    1. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M, Medical Research Council Guidance Developing and evaluating complex interventions: the new Medical Research Council guidance. Br Med J. 2008;337:a1655. doi: 10.1136/bmj.a1655.
    1. Lindsay S, Goodfellow A, Stergiou-Kita M, Kirsh B, Lero D. Inclusionary business practices for recruiting and retaining people with disabilities. In: Mitchell L, editor. Physical Disabilities: Perspectives, Risk Factors and Quality of Life. Hauppauge, New York, United States: Nova Science Publishers; 2017. pp. 1–32.
    1. Lindsay S, McDougall C, Menna-Dack D, Sanford R, Adams T. An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers, and job counselors. Disabil Rehabil. 2015;37(8):701–11. doi: 10.3109/09638288.2014.939775. doi: 10.3109/09638288.2014.939775.
    1. World Health Organization. 2015. [2019-01-18]. Disabilities
    1. Cohen J. A power primer. Psychol Bull. 1992 Jul;112(1):155–9. doi: 10.1037/0033-2909.112.1.155.
    1. Hertzog MA. Considerations in determining sample size for pilot studies. Res Nurs Health. 2008 Apr;31(2):180–91. doi: 10.1002/nur.20247.
    1. Holland Bloorview Kids Rehabilitation Hospital. Toronto: Holland Bloorview Kids Rehabilitation Hospital; Youth mentorship program .
    1. Hsu L. Random assignment procedures. In: Nezu A, Nezu C, editors. Evidence-Based Outcome Research: A Practical Guide to Conducting Randomized Controlled Trials for Psychosocial Interventions. New York: Oxford; 2008. pp. 179–200.
    1. Lindsay S, Cagliostro E, Leck J, Stinson J. A pilot feasibility randomized controlled trial of a 12-week electronic mentoring employment intervention for youth with physical disabilities. J Med Internet Res Paediatr Parent. 2019 doi: 10.2196/preprints.12088. (forthcoming)
    1. Adelstein DM, Webster DW. Cross-sectional, longitudinal and composite longitudinal data on the Career Maturity Inventory Attitude Scale. J Vocat Behav. 1979 Feb;14(1):102–11. doi: 10.1016/0001-8791(79)90052-6.
    1. Savickas ML, Porfeli EJ. Revision of the Career Maturity Inventory. J Career Assess. 2011 May 26;19(4):355–74. doi: 10.1177/1069072711409342.
    1. Zimet GD, Dahlem NW, Zimet SG, Farley GK. The Multidimensional Scale of Perceived Social Support. J Pers Assess. 1988 Mar;52(1):30–41. doi: 10.1207/s15327752jpa5201_2.
    1. Shogren KA, Wehmeyer ML, Palmer SB, Soukup JH, Little TD, Garner N, Lawrence M. Understanding the construct of self-determination: examining the relationship between the Arc's Self-Determination Scale and the American Institutes for Research Self-Determination Scale. Assess Eff Interv. 2008 Mar;33(2):94–107. doi: 10.1177/1534508407311395.
    1. Zimet GD, Powell SS, Farley GK, Werkman S, Berkoff KA. Psychometric characteristics of the Multidimensional Scale of Perceived Social Support. J Pers Assess. 1990;55(3-4):610–7. doi: 10.1080/00223891.1990.9674095.
    1. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006 Jan;3(2):77–101. doi: 10.1191/1478088706qp063oa.
    1. Lindsay S, Adams T, Sanford R, McDougall C, Kingsnorth S, Menna-Dack D. Employers’ and employment counselors’ perceptions of desirable skills for entry-level positions for adolescents: how does it differ for youth with disabilities? Disabil Soc. 2014 Jan 27;29(6):953–67. doi: 10.1080/09687599.2013.874330.
    1. Lindsay S, Smith S, Bellaby P, Baker R. The health impact of an online heart disease support group: a comparison of moderated versus unmoderated support. Health Educ Res. 2009 Aug;24(4):646–54. doi: 10.1093/her/cyp001.
    1. Kasprisin CA, Single PB, Single RM, Muller CB. Building a better bridge: testing e-training to improve e-mentoring programmes in higher education. Mentor Tutoring. 2003 Apr;11(1):67–78. doi: 10.1080/1361126032000054817.
    1. Kramer JM, Ryan CT, Moore R, Schwartz A. Feasibility of electronic peer mentoring for transition-age youth and young adults with intellectual and developmental disabilities: Project Teens making Environment and Activity Modifications. J Appl Res Intellect Disabil. 2018 Jan;31(1):e118–29. doi: 10.1111/jar.12346.
    1. Ammerlaan J, van Os-Mendendorp H, de Boer-Nijhof N, Scholtus L, Kruize AA, van Pelt P, Prakken B, Bijlsma H. Short term effectiveness and experiences of a peer guided web-based self-management intervention for young adults with juvenile idiopathic arthritis. Pediatr Rheumatol Online J. 2017 Oct 13;15(1):75. doi: 10.1186/s12969-017-0201-1.
    1. Bell EC. Mentoring transition-age youth with blindness. J Spec Educ. 2010 Jun 25;46(3):170–9. doi: 10.1177/0022466910374211.
    1. Kim-Rupnow WS, Burgstahler S. Perceptions of students with disabilities regarding the value of technology-based support activities on postsecondary education and employment. J Spec Educ Technol. 2016 Aug;19(2):43–56. doi: 10.1177/016264340401900204.
    1. Cassiani C, Stinson J, Lindsay S. The nature of social support in a peer-e-mentoring employment program for youth with disabilities. Disabil Rehabil. 2019 (forthcoming)
    1. Lindsay S, Kingsnorth S, Hamdani Y. Barriers and facilitators of chronic illness self-management among adolescents: a review and future directions. J Nurs Chronic Illn Health Care. 2011;3:186–208. doi: 10.1111/j.1752-9824.2011.01090.x.

Source: PubMed

3
Abonner