Improving Transition to Employment for Youth With Physical Disabilities: Protocol for a Peer Electronic Mentoring Intervention

Sally Lindsay, Jennifer Stinson, Mary Stergiou-Kita, Joanne Leck, Sally Lindsay, Jennifer Stinson, Mary Stergiou-Kita, Joanne Leck

Abstract

Background: Although youth with disabilities have much to gain from employment readiness programs, they are often excluded from or have limited access to vocational programs. One encouraging approach to address gaps in vocational programming is through peer electronic mentoring (e-mentoring), which may facilitate a smoother transition to adulthood by offering support to enhance coping skills. Despite the increase in online communities, little is known about their impact on vocational mentoring for youth with physical disabilities and their parents.

Objective: The aim of this paper is to develop, implement, and assess the feasibility of an online peer mentor employment readiness intervention for youth with physical disabilities and their parents to improve their self-determination, career maturity, and social support compared to controls.

Methods: A mixed-methods feasibility randomized controlled trial (RCT) design will be conducted to develop and assess the feasibility, acceptability, and initial efficacy of the "Empowering Youth Towards Employment" intervention. Youth (aged 15 to 25) with physical disabilities and their parents will be randomly assigned to a control or experimental group (4-week, interactive intervention, moderated by peer mentors).

Results: Data collection is in progress. Planned analyses include pre-post measures to determine the impact of the intervention on self-determination, career maturity, and social support. A qualitative thematic analysis of the discussion forums will complement the surveys to better understand why certain outcomes may have occurred.

Conclusions: Our intervention includes evidence-informed content and was co-created by a multi-disciplinary group of researchers and knowledge users. It has the potential for widespread implications as a cost-effective resource to supplement educational and vocational programming for youth with disabilities.

Trial registration: Clinicaltrials.gov NCT02522507; https://ichgcp.net/clinical-trials-registry/NCT02522507 (Archived by WebCite at http://www.webcitation.org/6uD58Pvjc).

Keywords: disability; mentor; occupational therapy; rehabilitation; social inclusion; social support; youth.

Conflict of interest statement

Conflicts of Interest: None declared.

©Sally Lindsay, Jennifer Stinson, Mary Stergiou-Kita, Joanne Leck. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 16.11.2017.

References

    1. Burgstahler S, Bellman S. Differences in perceived benefits of internships for subgroups of students with disabilities. J Vocat Rehabil. 2009;31:155–165. doi: 10.3233/JVR-2009-0485.
    1. Froy F. Local strategies for developing workforce skills. In: Froy F, Giguere S, Hofer A, editors. Designing Local Skills Strategies. Paris: OECD Publishing; 2009.
    1. Statistics Canada . Health Status: Participation and Activity Limitation Survey Ottawa. Ottawa: Statistics Canada; 2008.
    1. Carter E, Trainor A, Ditchman N, Swedeen B, Owens L. Community-based summer work experiences of adolescents with high-incidence disabilities. J Spec Educ. 2009:1–15.
    1. Trainor A, Lindstrom L, Simon-Burroughs M, Martin J, Sorrells A. From marginalized to maximized opportunities for diverse youths with disabilities. Career Dev Except Individ. 2008 Apr 22;31(1):56–64. doi: 10.1177/0885728807313777.
    1. Lindsay S. Discrimination and other barriers to employment for teens and young adults with disabilities. Disabil Rehabil. 2011;33(15-16):1340–50. doi: 10.3109/09638288.2010.531372.
    1. Stinson JN, McGrath PJ, Hodnett ED, Feldman BM, Duffy CM, Huber AM, Tucker LB, Hetherington CR, Tse SML, Spiegel LR, Campillo S, Gill NK, White ME. An internet-based self-management program with telephone support for adolescents with arthritis: a pilot randomized controlled trial. J Rheumatol. 2010 Sep;37(9):1944–52. doi: 10.3899/jrheum.091327.
    1. Fraas M, Bellerose A. Mentoring programme for adolescent survivors of acquired brain injury. Brain Inj. 2010 Jan;24(1):50–61. doi: 10.3109/02699050903446781.
    1. Funnell MM. Peer-based behavioural strategies to improve chronic disease self-management and clinical outcomes: evidence, logistics, evaluation considerations and needs for future research. Fam Pract. 2010 Jun;27 Suppl 1:i17–22. doi: 10.1093/fampra/cmp027.
    1. Lindsay S, Kingsnorth S, Mcdougall C, Keating H. A systematic review of self-management interventions for children and youth with physical disabilities. Disabil Rehabil. 2014;36(4):276–88. doi: 10.3109/09638288.2013.785605.
    1. Campbell-Whatley GD. Mentoring students with mild disabilities. Interv Sch Clin. 2016 Jul 27;36(4):211–216. doi: 10.1177/105345120103600403.
    1. Block P, Vanner EA, Keys CB, Rimmer JH, Skeels SE. Project Shake-It-Up: using health promotion, capacity building and a disability studies framework to increase self efficacy. Disabil Rehabil. 2010;32(9):741–54. doi: 10.3109/09638280903295466.
    1. Jerson B, D'Urso C, Arnon R, Miloh T, Iyer K, Kerkar N, Annunziato RA. Adolescent transplant recipients as peer mentors: a program to improve self-management and health-related quality of life. Pediatr Transplant. 2013 Nov;17(7):612–20. doi: 10.1111/petr.12127.
    1. Tindall J, Chatman H. Peer Mentor Narrative. 2010. [2017-10-14]. St Louis job corps peer mentor and peer mediation students helping students program .
    1. Shem K, Medel R, Wright J, Kolakowsky-Hayner SA, Duong T. Return to work and school: a model mentoring program for youth and young adults with spinal cord injury. Spinal Cord. 2011 Apr;49(4):544–8. doi: 10.1038/sc.2010.166.
    1. Sword H, Hill K. National Center on Secondary Education and Transition. 2002. [2017-10-14]. Creating mentoring opportunities for youth with disabilities National Center on Secondary Education and Transition .
    1. Lindsay S, Adams T, McDougall C, Sanford R. Skill development in an employment-training program for adolescents with disabilities. Disabil Rehabil. 2012;34(3):228–37. doi: 10.3109/09638288.2011.603015.
    1. Barnfather A, Stewart M, Magill-Evans J, Ray L, Letourneau N. Computer-mediated support for adolescents with cerebral palsy or spina bifida. Comput Inform Nurs. 2011;29(1):24–33; quiz 34. doi: 10.1097/NCN.0b013e3181f9db63.
    1. Arnett J. Emerging adulthood: what it is and what it is good for. Soc Res Child Dev. 2007:1–73. doi: 10.1111/j.1750-8606.2007.00016.x.
    1. Hanif S, Peters H, McDougall C, Lindsay S. A systematic review of vocational interventions for youth with physical disabilities. Res Social Sci Disabil. 2017;10:175–196.
    1. Lindsay S, McDougall C, Menna-Dack D, Sanford R, Adams T. An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers, and job counselors. Disabil Rehabil. 2015;37(8):701–11. doi: 10.3109/09638288.2014.939775.
    1. Antle BJ, Montgomery G, Stapleford C. The many layers of social support: capturing the voices of young people with spina bifida and their parents. Health Soc Work. 2009 May;34(2):97–106.
    1. Lindsay S. Enablers and barriers affecting motor vehicle transportation for youth with physical disabilities: a scoping review. In: Mitchell L, editor. Physical Disabilities: Perspectives, Risk Factors and Quality of Life. New York: Nova Science Publishers; 2017. pp. 1–21.
    1. Doren B, Yan M, Tu W. Key program features to enhance the school-to-career transition for youth with disabilities. Prev Res. 2013;20(2):11–14.
    1. Holmbeck GN, Johnson SZ, Wills KE, McKernon W, Rose B, Erklin S, Kemper T. Observed and perceived parental overprotection in relation to psychosocial adjustment in preadolescents with a physical disability: the mediational role of behavioral autonomy. J Consult Clin Psychol. 2002 Feb;70(1):96–110.
    1. Francis G, Gross J, Turnbull A, Turnbull R. The family empowerment awareness training program: a mixed-method follow-up. J Vocat Rehabil. 2013:39. doi: 10.3233/JVR-130652.
    1. DuBois DL, Holloway BE, Valentine JC, Cooper H. Effectiveness of mentoring programs for youth: a meta-analytic review. Am J Community Psychol. 2002 Apr;30(2):157–97. doi: 10.1023/A:1014628810714.
    1. Powers L, Sowers J, Stevens T. An exploratory randomized study of the impact of mentoring on the self-efficacy and community-based knowledge of adolescents with severe physical challenges. J Rehabil. 1995:41.
    1. Southwick SM, Morgan CA, Vythilingam M, Charney D. Mentors enhance resilience in at-risk children and adolescents. Psychoanal Inq. 2007 Apr 12;26(4):577–584. doi: 10.1080/07351690701310631.
    1. Daughtry D, Gibson J, Abels A. Mentoring students and professionals with disabilities. Prof Psychol Res Pr. 2009;40(2):201–205.
    1. Lindstrom L, Doren B, Post C, Lombardi A. Building career PATHS (Post school Achievement through higher skills) for young women with disabilities. Career Dev Q. 2013:61–339. doi: 10.1002/j.2161-0045.2013.00059.x/full.
    1. Lindsay S, McPherson AC. Experiences of social exclusion and bullying at school among children and youth with cerebral palsy. Disabil Rehabil. 2012;34(2):101–9. doi: 10.3109/09638288.2011.587086.
    1. Lindsay S, Smith S, Bell F, Bellaby P. Tackling the digital divide: Exploring the impact of ICT on managing heart conditions in a deprived area. Inform Comm Soc. 2007 Feb;10(1):95–114. doi: 10.1080/13691180701193127.
    1. Nguyen HQ, Carrieri-Kohlman V, Rankin SH, Slaughter R, Stulbarg MS. Internet-based patient education and support interventions: a review of evaluation studies and directions for future research. Comput Biol Med. 2004 Mar;34(2):95–112. doi: 10.1016/S0010-4825(03)00046-5.
    1. Zhang K, Peck K. The effects of peer-controlled or moderated online collaboration on group problem solving and related attitudes. CJLT. 2003 Oct 15;29(3) doi: 10.21432/T2HS43.
    1. Eysenbach G, Powell J, Englesakis M, Rizo C, Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ. 2004 May 15;328(7449):1166. doi: 10.1136/bmj.328.7449.1166.
    1. Timmerman WJ. Let's look at SSDI work evaluations. J Rehabil. 1972;38(2):36–7.
    1. Stout J, Novacheck T, Tervo R. Skill mastery of typically developing children using the Gillette Functional Assessment Questionnaire: establishing standards in preschoolers. Gait Posture. 2009 Nov;52:80–81. doi: 10.1016/j.gaitpost.2009.08.068.
    1. Lenhart A, Madden M, Hitlin P. Teens and technology: youth are leading the transition to a fully wired and mobile nation. Washington, DC: Pew Internet and American Life Project; 2005. Aug 27,
    1. Kyngäs H. Support network of adolescents with chronic disease: adolescents' perspective. Nurs Health Sci. 2004 Dec;6(4):287–93. doi: 10.1111/j.1442-2018.2004.00207.x.
    1. Hoey LM, Ieropoli SC, White VM, Jefford M. Systematic review of peer-support programs for people with cancer. Patient Educ Couns. 2008 Mar;70(3):315–37. doi: 10.1016/j.pec.2007.11.016.
    1. Sandhu S, Veinot P, Embuldeniya G, Brooks S, Sale J, Huang S, Zhao A, Richards D, Bell M. Peer-to-peer mentoring for individuals with early inflammatory arthritis: feasibility pilot. BMJ Open. 2013 Mar 01;3(3) doi: 10.1136/bmjopen-2012-002267.
    1. Lindsay Sally, Smith Simon, Bellaby Paul, Baker Rose. The health impact of an online heart disease support group: a comparison of moderated versus unmoderated support. Health Educ Res. 2009 Aug;24(4):646–54. doi: 10.1093/her/cyp001.
    1. Edwards A. The moderator as an emerging democratic intermediary: the role of moderator in Internet discussions about public issues. Infor Pol. 2002:7–20.
    1. Sharf BF. Communicating breast cancer on-line: support and empowerment on the Internet. Women Health. 1997;26(1):65–84. doi: 10.1300/J013v26n01_05.
    1. Aviv R, Golan G. Pedagogical communication patterns in collaborative tele-learning. J Edu Technol Syst. 1998:26–208.
    1. Flannery K, Yovanoff P, Benz M, Kato M. Improving employment outcomes of individuals with disabilities through short-term postsecondary training. Career Dev Transit Except Individ. 2008:31–36.
    1. La Greca AM, Bearman KJ, Moore H. Peer relations of youth with pediatric conditions and health risks: promoting social support and healthy lifestyles. J Dev Behav Pediatr. 2002 Aug;23(4):271–80.
    1. Dennis C. Peer support within a health care context: a concept analysis. Int J Nurs Stud. 2003 Mar;40(3):321–32.
    1. Doull M, O'Connor A, Robinson V. Peer support strategies for improving the health and well-being of individuals with chronic disease. Cochrane Database Syst Rev. 2005:5352. doi: 10.1002/14651858.CD005352.
    1. Kram K. Phases of the mentor relationship. ‎Acad Manag J. 1983:26–625.
    1. Plano Clark VL, Schumacher K, West C, Edrington J, Dunn LB, Harzstark A, Melisko M, Rabow MW, Swift PS, Miaskowski C. Practices for embedding an interpretive qualitative approach within a randomized clinical trial. J Mix Methods Res. 2013 Jul;7(3):219–242. doi: 10.1177/1558689812474372.
    1. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M, Medical Research Council Guidance Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ. 2008 Sep 29;337:a1655.
    1. Lindsay S, Fellin M. A systematic review of mentorship programs to facilitate transition to post-secondary education and employment for youth and young adults with disabilities. Disabil Rehabil. 2016 Jul;38(14):1329–49. doi: 10.3109/09638288.2015.1092174.
    1. Lindsay S, Goodfellow A, Stergiou-Kita M, Kirsh B, Lero D. Physical Disabilities: Perspectives, Risk Factors and Quality of Life, New York: Nova Science Publishers; 2017. Inclusionary business practices for recruiting and retaining people with disabilities: a scoping review.
    1. Leck J, Elliott C, Bourgeois E, Kemp K. Mentoring a Diverse Workforce Knowledge Synthesis Final Report. Ottawa: University of Ottawa; 2014.
    1. Luncan D, Curran C, Gall C, Kingsnorth S, McDougall C, Menna-Dack D, Rigby P, Healy H. Family Facilitators and Youth Facilitators. Toronto: Holland Bloorview Kids Rehabilitation Hospital; 2009.
    1. Holland Blorview Kids Rehabilitation Hospital . Family Leader Training Program. Toronto: Holland Blorview Kids Rehabilitation Hospital; 2014.
    1. Shogren KA, Wehmeyer ML, Palmer SB, Soukup JH, Little TD, Garner N, Lawrence M. Understanding the construct of self-determination. Assess Eff Interv. 2008 Mar;33(2):94–107. doi: 10.1177/1534508407311395.
    1. Adelstein D, Webster D. Cross-sectional, longitudinal and composite longitudinal data on the career maturity inventory attitude scale. J Voc Behav. 1979;14:102–111.
    1. Zimet GD, Powell SS, Farley GK, Werkman S, Berkoff KA. Psychometric characteristics of the Multidimensional Scale of Perceived Social Support. J Pers Assess. 1990;55(3-4):610–7. doi: 10.1080/00223891.1990.9674095.
    1. Cohen J. A power primer. Psychol Bull. 1992 Jul;112(1):155–9.
    1. Hertzog MA. Considerations in determining sample size for pilot studies. Res Nurs Health. 2008 Apr;31(2):180–91. doi: 10.1002/nur.20247.
    1. Nezu A, Nezu C, editors. Evidence-Based Outcome Research: A Practical Guide to Conducting Randomized Controlled Trials for Psychosocial Interventions. New York: Oxford Press; 2008. p. A.
    1. Hsu L. Random assignment procedures. In: Nezu A, Nezu C, editors. Evidence-Based Outcome Research: A Practical Guide to Conducting Randomized Controlled Trials for Psychosocial Interventions. New York: Oxford; 2008.
    1. Zelen M. The randomization and stratification of patients to clinical trials. J Chronic Dis. 1974 Sep;27(7-8):365–75.
    1. Crites J, Savickas M. Revision of the career maturity inventory. J Career Assess. 1996;4(2):131–138.
    1. Singh N, Curtis J, Ellis C, Nicholson M, Villani T, Wechsler H. Psychometric analysis of the family empowerment scale. J Emot Behav Disord. 1995;3(2):85–91.
    1. Koren P, DeChillo N, Friesen B. Measuring empowerment in families whose children have emotional disabilities: a brief questionnaire. Rehabil Psychol. 1992:305–321.
    1. Dilmore TC, Rubio DM, Cohen E, Seltzer D, Switzer GE, Bryce C, Primack B, Fine MJ, Kapoor WN. Psychometric properties of the mentor role instrument when used in an academic medicine setting. Clin Transl Sci. 2010 Jun;3(3):104–8. doi: 10.1111/j.1752-8062.2010.00196.x.
    1. Ragins B, McFarlin D. Perceptions of mentor roles in the cross-gender mentoring relationships. J Vocat Behav. 1990;8791(90):0048–339. doi: 10.1016/0001-.
    1. Drupal. 2014. [2017-10-14].
    1. Grbich C. Qualitative Data Analysis. London: Sage Publications; 2007.
    1. Krefting L. Rigor in qualitative research: the assessment of trustworthiness. Am J Occup Ther. 1991 Mar;45(3):214–22.
    1. Creswell J, Shope R, Clark P, Green D. How interpretive qualitative research extends mixed methods research. Res Sch. 2006;13(1):1–11.
    1. United Nations Division for Social Policy and Development Disability Convention on the Rights of Persons With Disabilities. 2010. [2017-10-14]. .
    1. Lindsay S, Smith S, Baker R, Bellaby P. The health impact of an online heart disease support group: A comparison of moderated vs unmoderated support. Health Education Research. 2009;24(4):646–654.

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