Barriers to accessing mental health services for women with perinatal mental illness: systematic review and meta-synthesis of qualitative studies in the UK

Megan Sambrook Smith, Vanessa Lawrence, Euan Sadler, Abigail Easter, Megan Sambrook Smith, Vanessa Lawrence, Euan Sadler, Abigail Easter

Abstract

Objective: Lack of access to mental health services during the perinatal period is a significant public health concern in the UK. Barriers to accessing services may occur at multiple points in the care pathway. However, no previous reviews have investigated multilevel system barriers or how they might interact to prevent women from accessing services. This review examines women, their family members' and healthcare providers' perspectives of barriers to accessing mental health services for women with perinatal mental illness in the UK.

Design: A systematic review and meta-synthesis of qualitative studies.

Data sources: Qualitative studies, published between January 2007 and September 2018, were identified in MEDLINE, PsycINFO, EMBASE and CINAHL electronic databases, handsearching of reference lists and citation tracking of included studies. Papers eligible for inclusion were conducted in the UK, used qualitative methods and were focused on women, family or healthcare providers working with/or at risk of perinatal mental health conditions. Quality assessment was conducted using the Critical Appraisal Skills Programme for qualitative studies.

Results: Of 9882 papers identified, 35 studies met the inclusion criteria. Reporting of emergent themes was informed by an existing multilevel conceptual model. Barriers to accessing mental health services for women with perinatal mental illness were identified at four levels: Individual (eg, stigma, poor awareness), organisational (eg, resource inadequacies, service fragmentation), sociocultural (eg, language/cultural barriers) and structural (eg, unclear policy) levels.

Conclusions: Complex, interlinking, multilevel barriers to accessing mental health services for women with perinatal mental illness exist. To improve access to mental healthcare for women with perinatal mental illness multilevel strategies are recommended which address individual, organisational, sociocultural and structural-level barriers at different stages of the care pathway.

Prospero registration number: CRD42017060389.

Keywords: barriers; mental health; pregnancy; qualitative research; systematic review.

Conflict of interest statement

Competing interests: None declared.

© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ.

Figures

Figure 1
Figure 1
Adapted model showing multilevel conceptual framework for barriers to mental health services in the perinatal period.
Figure 2
Figure 2
Study selection. HCP, healthcare professional; PMI, perinatal mental illnesses; PNMH, perinatal mental health.
Figure 3
Figure 3
Conceptual model of key barriers in the care pathway to accessing mental health services during the perinatal period. PNMH, perinatal mental health.

References

    1. Leight KL, Fitelson EM, Weston CA, et al. . Childbirth and mental disorders. Int Rev Psychiatry 2010;22:453–71. 10.3109/09540261.2010.514600
    1. Centre for Mental Health: Personal Social Services Research Unit. The costs of perinatal mental health problems. .
    1. Howard LM, Molyneaux E, Dennis CL, et al. . Non-psychotic mental disorders in the perinatal period. Lancet 2014;384:1775–88. 10.1016/S0140-6736(14)61276-9
    1. O’Hara MW, Wisner KL. Perinatal mental illness: definition, description and aetiology. Best Pract Res Clin Obstet Gynaecol 2014;28:3–12. 10.1016/j.bpobgyn.2013.09.002
    1. Wilkinson H. Trustees and Medical Advisers. Saving mothers' lives. Reviewing maternal deaths to make motherhood safer: 2006-2008. BJOG 2011;118:1402–3. 10.1111/j.1471-0528.2011.03097.x
    1. Maternal, Newborn andInfant Clinical OutcomeReview Programme. Saving lives, improving mothers’ care lessons learned to inform future maternity care from the uk and ireland confidential enquiries into maternal deaths and morbidity 2009-2012. .
    1. Stein A, Pearson RM, Goodman SH, et al. . Effects of perinatal mental disorders on the fetus and child. Lancet 2014;384:1800–19. 10.1016/S0140-6736(14)61277-0
    1. The five year forward for Mental Health. A report from the independent Mental Health Taskforce to the NHS in England: Mental Health Taskforce strategy, 2016. .
    1. Maternal Mental Health –Women’s Voices. .
    1. Brown M, Mills N, McCalmont C. Perinatal mental health services: the problems in identifying and addressing mental health issues in pregnant women. Primary Health Care 2009;19:36–9.
    1. Dennis CL, Chung-Lee L. Postpartum depression help-seeking barriers and maternal treatment preferences: a qualitative systematic review. Birth 2006;33:323–31. 10.1111/j.1523-536X.2006.00130.x
    1. Megnin-Viggars O, Symington I, Howard LM, et al. . Experience of care for mental health problems in the antenatal or postnatal period for women in the UK: a systematic review and meta-synthesis of qualitative research. Arch Womens Ment Health 2015;18:745–59. 10.1007/s00737-015-0548-6
    1. Hannan J. Older mothers' experiences of postnatal depression. Br J Midwifery 2016;24:28–36. 10.12968/bjom.2016.24.1.28
    1. Hanley J. The emotional wellbeing of Bangladeshi mothers during the postnatal period. Community Pract 2007;80:34–7.
    1. Hanley J, Long B. A study of Welsh mothers' experiences of postnatal depression. Midwifery 2006;22:147–57. 10.1016/j.midw.2005.08.004
    1. CASP checklist (qualitative research). .
    1. Sandelowski M, Docherty S, Emden C. Focus on qualitative methods. Qualitative metasynthesis: issues and techniques. Res Nurs Health 1997;20:365–71.
    1. Ziebland S, McPherson A. Making sense of qualitative data analysis: an introduction with illustrations from DIPEx (personal experiences of health and illness). Med Educ 2006;40:405–14. 10.1111/j.1365-2929.2006.02467.x
    1. Reid PP, Compton WD, Grossman JH, et al. . The National Academies Collection: Reports funded by National Institutes of Health Building a Better Delivery System: A New Engineering/Health Care Partnership. Washington (DC: National Academies Press (US) National Academy of Sciences, 2005.
    1. Ferlie EB, Shortell SM. Improving the quality of health care in the United Kingdom and the United States: a framework for change. Milbank Q 2001;79:281–315. 10.1111/1468-0009.00206
    1. Edge D. Falling through the net - black and minority ethnic women and perinatal mental healthcare: health professionals' views. Gen Hosp Psychiatry 2010;32:17–25. 10.1016/j.genhosppsych.2009.07.007
    1. Edge D. ’It’s leaflet, leaflet, leaflet then, "see you later"': black Caribbean women’s perceptions of perinatal mental health care. Br J Gen Pract 2011;61:256–62. 10.3399/bjgp11X567063
    1. Jomeen J, Glover L, Jones C, et al. . Assessing women’s perinatal psychological health: exploring the experiences of health visitors. J Reprod Infant Psychol 2013;31:479–89. 10.1080/02646838.2013.835038
    1. Phillips L. Assessing the knowledge of perinatal mental illness among student midwives. Nurse Educ Pract 2015;15:463–9. 10.1016/j.nepr.2014.09.003
    1. Rothera I, Oates M. Managing perinatal mental health disorders effectively: identifying the necessary components of service provision and delivery. Psychiatr Bull 2008;32:131–3. 10.1192/pb.bp.107.16758
    1. Evans K, Morrell CJ, Spiby H. Women’s views on anxiety in pregnancy and the use of anxiety instruments: a qualitative study. J Reprod Infant Psychol 2017;35:77–90. 10.1080/02646838.2016.1245413
    1. Boddy R, Gordon C, MacCallum F, et al. . Men’s experiences of having a partner who requires Mother and Baby Unit admission for first episode postpartum psychosis. J Adv Nurs 2017;73:399–409. 10.1111/jan.13110
    1. Boath EH, Henshaw C, Bradley E. Meeting the challenges of teenage mothers with postpartum depression: overcoming stigma through support. J Reprod Infant Psychol 2013;31:352–69. 10.1080/02646838.2013.800635
    1. Chew-Graham C, Chamberlain E, Turner K, et al. . GPs' and health visitors' views on the diagnosis and management of postnatal depression: a qualitative study. Br J Gen Pract 2008;58:169–76. 10.3399/bjgp08X277212
    1. Edge D. Perinatal depression and Black Caribbean women: lessons for primary care. Primary Health Care 2007;17:32–5. 10.7748/phc2007.03.17.2.32.c4391
    1. Edge D, MacKian SC. Ethnicity and mental health encounters in primary care: help-seeking and help-giving for perinatal depression among Black Caribbean women in the UK. Ethn Health 2010;15:93–111. 10.1080/13557850903418836
    1. Gardner PL, Bunton P, Edge D, et al. . The experience of postnatal depression in West African mothers living in the United Kingdom: a qualitative study. Midwifery 2014;30:756–63. 10.1016/j.midw.2013.08.001
    1. Glover L, Jomeen J, Urquhart T, et al. . Puerperal psychosis – a qualitative study of women’s experiences. J Reprod Infant Psychol 2014;32:254–69. 10.1080/02646838.2014.883597
    1. Lam E, Wittkowski A, Fox JRE. A qualitative study of the postpartum experience of Chinese women living in England. J Reprod Infant Psychol 2012;30:105–19. 10.1080/02646838.2011.649472
    1. Rowan C, McCourt C, Bick D. Provision of perinatal mental health services in two English strategic health authorities: views and perspectives of the multi-professional team. Evid Based Midwifery 2010;98.
    1. Wan MW, Moulton S, Abel KM. The service needs of mothers with schizophrenia: a qualitative study of perinatal psychiatric and antenatal workers. Gen Hosp Psychiatry 2008;30:177–84. 10.1016/j.genhosppsych.2007.12.001
    1. Wittkowski A, Zumla A, Glendenning S, et al. . The experience of postnatal depression in South Asian mothers living in Great Britain: a qualitative study. J Reprod Infant Psychol 2011;29:480–92. 10.1080/02646838.2011.639014
    1. Wyatt C, Murray C, Davies J, et al. . Postpartum psychosis and relationships: their mutual influence from the perspective of women and significant others. J Reprod Infant Psychol 2015;33:426–42. 10.1080/02646838.2015.1027181
    1. McGookin A, Furber C, Smith DM. Student midwives' awareness, knowledge, and experiences of antenatal anxiety within clinical practice. J Reprod Infant Psychol 2017;35:380–93. 10.1080/02646838.2017.1337270
    1. Slade P, Morrell CJ, Rigby A, et al. . Postnatal women’s experiences of management of depressive symptoms: a qualitative study. Br J Gen Pract 2010;60:e440–e448. 10.3399/bjgp10X532611
    1. Baldwin S, Griffiths P. Do specialist community public health nurses assess risk factors for depression, suicide, and self-harm among South Asian mothers living in London? Public Health Nurs 2009;26:277–89. 10.1111/j.1525-1446.2009.00780.x
    1. Chew-Graham CA, Sharp D, Chamberlain E, et al. . Disclosure of symptoms of postnatal depression, the perspectives of health professionals and women: a qualitative study. BMC Fam Pract 2009;10:7 10.1186/1471-2296-10-7
    1. Coates R, Ayers S, de Visser R. Women’s experiences of postnatal distress: a qualitative study. BMC Pregnancy Childbirth 2014;14:359 10.1186/1471-2393-14-359
    1. Patel S, Wittkowski A, Fox JR, et al. . An exploration of illness beliefs in mothers with postnatal depression. Midwifery 2013;29:682–9. 10.1016/j.midw.2012.06.012
    1. Millett L, Taylor BL, Howard LM, et al. . Experiences of improving access to psychological therapy services for perinatal mental health difficulties: a qualitative study of women’s and therapists' views. Behav Cogn Psychother 2018;46:421–36. 10.1017/S1352465817000650
    1. Coates R, de Visser R, Ayers S. Not identifying with postnatal depression: a qualitative study of women’s postnatal symptoms of distress and need for support. J Psychosom Obstet Gynaecol 2015;36:114–21. 10.3109/0167482X.2015.1059418
    1. Cooke S, Smith I, Turl E, et al. . Parent perspectives of clinical psychology access when experiencing distress. Community Pract 2012;85:34–7.
    1. Masood Y, Lovell K, Lunat F, et al. . Group psychological intervention for postnatal depression: a nested qualitative study with British South Asian women. BMC Womens Health 2015;15:109 10.1186/s12905-015-0263-5
    1. Edge D. ’We don’t see Black women here': an exploration of the absence of Black Caribbean women from clinical and epidemiological data on perinatal depression in the UK. Midwifery 2008;24:379–89. 10.1016/j.midw.2007.01.007
    1. McGrath L, Peters S, Wieck A, et al. . The process of recovery in women who experienced psychosis following childbirth. BMC Psychiatry 2013;13:341 10.1186/1471-244X-13-341
    1. Radcliffe P. Substance-misusing women: Stigma in the maternity setting. Br J Midwifery 2011;19:497–506. 10.12968/bjom.2011.19.8.497
    1. Plunkett C, Peters S, Wieck A, et al. . A qualitative investigation in the role of the baby in recovery from postpartum psychosis. Clin Psychol Psychother 2017;24:1099–108. 10.1002/cpp.2074
    1. Almond P, Lathlean J. Inequity in provision of and access to health visiting postnatal depression services. J Adv Nurs 2011;67:2350–62. 10.1111/j.1365-2648.2011.05669.x
    1. Cantwell R, Clutton-Brock T, Cooper G, et al. . Saving mothers' lives: reviewing maternal deaths to make motherhood safer: 2006-2008. the eighth report of the confidential enquiries into maternal deaths in the United Kingdom. BJOG 2011;118 Suppl 1:1–203. 10.1111/j.1471-0528.2010.02847.x
    1. Ross-Davie M, Elliott S, Sarkar A, et al. . A public health role in perinatal mental health: Are midwives ready? Br J Midwifery 2006;14:330–4. 10.12968/bjom.2006.14.6.21181
    1. Stepping Forward to 2020/21: The mental health workforce plan for England July 2017: Mental Health Taskforce strategy. .
    1. Implementing the Five Year Forward View for mental health. .

Source: PubMed

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