Evaluation of the Organization of Continuity of Care for Home Hospice Patients by Four Parisian Health Networks (DICODOM)
In Paris, France, home hospice care for terminally ill patients is organized by four "palliative care networks". These networks are responsible for information sharing and coordination of all health care professionals working with the patient. Two different systems are in place to ensure continuity of care outside working hours, in such a setting. In the first system, palliative care specialists from the network are reachable over the phone 24/7 by the patient or its caregivers, whenever needed. In the second system, medical information about the patient, regularly updated by the network's medical team, is available to professionals via a secure website, so that in case the patient requires an urgent medical home visit outside working hours, the visiting physician has access to accurate information.
The study's goal is to compare patient's and caregiver's satisfaction between these two systems of continuity of care.
For that purpose, patients will be taken care of as usual by every palliative care network. In every instance where the patient or caregivers have reached out for medical help through the network's continuity of care system, the patient or caregiver will be called 5 days later by the investigation team to go through a satisfaction questionnaire (Likert scales)
調査の概要
研究の種類
入学 (実際)
連絡先と場所
研究場所
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Paris、フランス、75003
- Reseau QUIETUDE
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Paris、フランス、75012
- Reseaux ROPE
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Paris、フランス、75013
- Reseau ENSEMBLE
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Paris、フランス、75015
- Reseaux ParisOuest
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-
参加基準
適格基準
就学可能な年齢
健康ボランティアの受け入れ
受講資格のある性別
サンプリング方法
調査対象母集団
説明
Inclusion Criteria:
- Patient has a disease with fatal prognosis and requires palliative care
- Patient lives in Paris, France
- Patient benefits from home hospice care through one of the four official Paris palliative care networks
Exclusion Criteria:
- Pregnant women
- Breastfeeding womed
- Altered cognitive function with a Mini Mental Status below 20
- Patient not able to communicate or not speaking French
- Patient legally not capable of giving informed consent
研究計画
研究はどのように設計されていますか?
デザインの詳細
この研究は何を測定していますか?
主要な結果の測定
結果測定 |
メジャーの説明 |
時間枠 |
---|---|---|
Satisfaction about the response given by the network's continuity of care system
時間枠:between the first and tenth day after the patient or caregiver activated the network's continuity of care system
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Patient's (or caregiver's) satisfaction about the response given by the network's continuity of care system, after the patient or caregiver activated this system at night time or during week-ends or bank holliday, as measured on a 4-level Likert scale (verbal questionnaire by phone call)
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between the first and tenth day after the patient or caregiver activated the network's continuity of care system
|
協力者と研究者
捜査官
- 主任研究者:Herve PICARD, MD MSc、Clinical Research Department, Rothschild Foundation, Paris (France)
研究記録日
主要日程の研究
研究開始 (実際)
一次修了 (実際)
研究の完了 (実際)
試験登録日
最初に提出
QC基準を満たした最初の提出物
最初の投稿 (実際)
学習記録の更新
投稿された最後の更新 (実際)
QC基準を満たした最後の更新が送信されました
最終確認日
詳しくは
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