Evaluation of the Organization of Continuity of Care for Home Hospice Patients by Four Parisian Health Networks (DICODOM)
In Paris, France, home hospice care for terminally ill patients is organized by four "palliative care networks". These networks are responsible for information sharing and coordination of all health care professionals working with the patient. Two different systems are in place to ensure continuity of care outside working hours, in such a setting. In the first system, palliative care specialists from the network are reachable over the phone 24/7 by the patient or its caregivers, whenever needed. In the second system, medical information about the patient, regularly updated by the network's medical team, is available to professionals via a secure website, so that in case the patient requires an urgent medical home visit outside working hours, the visiting physician has access to accurate information.
The study's goal is to compare patient's and caregiver's satisfaction between these two systems of continuity of care.
For that purpose, patients will be taken care of as usual by every palliative care network. In every instance where the patient or caregivers have reached out for medical help through the network's continuity of care system, the patient or caregiver will be called 5 days later by the investigation team to go through a satisfaction questionnaire (Likert scales)
研究概览
研究类型
注册 (实际的)
联系人和位置
学习地点
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-
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Paris、法国、75003
- Reseau QUIETUDE
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Paris、法国、75012
- Reseaux ROPE
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Paris、法国、75013
- Reseau ENSEMBLE
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Paris、法国、75015
- Reseaux ParisOuest
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-
参与标准
资格标准
适合学习的年龄
接受健康志愿者
有资格学习的性别
取样方法
研究人群
描述
Inclusion Criteria:
- Patient has a disease with fatal prognosis and requires palliative care
- Patient lives in Paris, France
- Patient benefits from home hospice care through one of the four official Paris palliative care networks
Exclusion Criteria:
- Pregnant women
- Breastfeeding womed
- Altered cognitive function with a Mini Mental Status below 20
- Patient not able to communicate or not speaking French
- Patient legally not capable of giving informed consent
学习计划
研究是如何设计的?
设计细节
研究衡量的是什么?
主要结果指标
结果测量 |
措施说明 |
大体时间 |
---|---|---|
Satisfaction about the response given by the network's continuity of care system
大体时间:between the first and tenth day after the patient or caregiver activated the network's continuity of care system
|
Patient's (or caregiver's) satisfaction about the response given by the network's continuity of care system, after the patient or caregiver activated this system at night time or during week-ends or bank holliday, as measured on a 4-level Likert scale (verbal questionnaire by phone call)
|
between the first and tenth day after the patient or caregiver activated the network's continuity of care system
|
合作者和调查者
调查人员
- 首席研究员:Herve PICARD, MD MSc、Clinical Research Department, Rothschild Foundation, Paris (France)
研究记录日期
研究主要日期
学习开始 (实际的)
初级完成 (实际的)
研究完成 (实际的)
研究注册日期
首次提交
首先提交符合 QC 标准的
首次发布 (实际的)
研究记录更新
最后更新发布 (实际的)
上次提交的符合 QC 标准的更新
最后验证
更多信息
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