A Study to Co-produce a Young Carers App
A Study to Co-produce, and Explore the Impact of, an App-based Support Intervention on Young Carers
Studie Overzicht
Gedetailleerde beschrijving
This study will provide evidence about App usage in young carers (YCs), there is no evidence to date on this to the researcher's knowledge. While there are articles and reports on young carers and their experiences there is very little actual empirical research, partly due to the hard-to-reach population and their carer responsibilities and associated experiences (such as carer burden).
The study seeks to identify the gap between estimated and actual numbers of young carers, as part of Stage 3, which will again add to the evidence base as this has not previously been reported. The study will be able to describe the impact of a technology-based intervention to increase support for YCs.
This research will also contribute to understanding how App-based support can help YC, specifically exploring how receiving centralised, comprehensive information regarding: looking after their own health; having time off from carer duties and resources to support them getting this; self-awareness or self-identification of carer responsibilities and the impact of being a carer, might help.
Young Carers have also talked about the need for networks and support; these individuals will then be able to access Young Carers in Herts - and find support locally via professionals (they can access links to counsellors via the App -in order to receive mental health support) as well as other young carers (peer support, identified as very important in other recent local work).
This proposed research, through the qualitative interviews and focus groups, will also allow investigators to contribute an in-depth picture of (including a longitudinal description from the YCs in-depth interviews over the course of a year) of young carers' needs, and identify where needs are not being met and what could be done to improve their experiences. Having contextual data from interviews from peers (senior school age children), who may themselves end up becoming young carers, will also give us data to contrast.
This research will also help primary and secondary care providers to understand the needs and identification of this group. Although the study is not explicitly looking at this, the researchers hope to look at this in future work.
Studietype
Inschrijving (Werkelijk)
Contacten en locaties
Studie Locaties
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Stevenage, Verenigd Koninkrijk, SG14AB
- East and North Hertfordshire NHS Trust
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Deelname Criteria
Geschiktheidscriteria
Leeftijden die in aanmerking komen voor studie
Accepteert gezonde vrijwilligers
Bemonsteringsmethode
Studie Bevolking
Beschrijving
Inclusion Criteria:
- School children from nominated schools in Hertfordshire (stage 1)
- Ability to provide informed consent (consent processes/literature will be age appropriate 11-17) (stage 2)
- Able to complete questionnaires (stage 2)
Exclusion Criteria:
- Does not speak or understand English
- Lacks mental capacity
- Young carers outside Hertfordshire
Studie plan
Hoe is de studie opgezet?
Ontwerpdetails
Cohorten en interventies
Groep / Cohort |
Interventie / Behandeling |
|---|---|
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Stage 1
School children age 11-18 (from two nominated schools) and young carers 11-18
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Mobile phone app
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Stage 2
Young carers from Young Carers in Herts 11-18
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Mobile phone app
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Wat meet het onderzoek?
Primaire uitkomstmaten
Uitkomstmaat |
Maatregel Beschrijving |
Tijdsspanne |
|---|---|---|
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To understand young carer experiences, co-produce and develop an App for young carers 11yrs-18yrs age range in order to improve outcomes for family members and young carers
Tijdsspanne: 18 months
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Measured by qualitative feedback on the app via transcriptions.
Includes understanding of transition points such as admission/discharge to hospital.
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18 months
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Secundaire uitkomstmaten
Uitkomstmaat |
Maatregel Beschrijving |
Tijdsspanne |
|---|---|---|
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Formulation of a Young Carer Handbook
Tijdsspanne: 18 months
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Co-creation of a Young Carer Handbook
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18 months
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Gain understanding of App usage
Tijdsspanne: 18 months
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Number of views and downloads
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18 months
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Explore usefulness of the App and experience of caring over time
Tijdsspanne: 18 months
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Transcripts of qualitative feedback
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18 months
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Capture information on referral rates of Young Carers before and after App introduction
Tijdsspanne: 18 months
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Number of referrals of Young carers in Herts
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18 months
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Medewerkers en onderzoekers
Studie record data
Bestudeer belangrijke data
Studie start (Werkelijk)
Primaire voltooiing (Werkelijk)
Studie voltooiing (Werkelijk)
Studieregistratiedata
Eerst ingediend
Eerst ingediend dat voldeed aan de QC-criteria
Eerst geplaatst (Werkelijk)
Updates van studierecords
Laatste update geplaatst (Werkelijk)
Laatste update ingediend die voldeed aan QC-criteria
Laatst geverifieerd
Meer informatie
Termen gerelateerd aan deze studie
Aanvullende relevante MeSH-voorwaarden
Andere studie-ID-nummers
- RD2018-70
Plan Individuele Deelnemersgegevens (IPD)
Bent u van plan om gegevens van individuele deelnemers (IPD) te delen?
Beschrijving IPD-plan
Informatie over medicijnen en apparaten, studiedocumenten
Bestudeert een door de Amerikaanse FDA gereguleerd geneesmiddel
Bestudeert een door de Amerikaanse FDA gereguleerd apparaatproduct
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