Autism in Adult Patients and the Effects on Caregivers
Autism: Long Term Course and Impact
Background: The number of adults with autism is expected to rise significantly in the near future, due to two main reasons: First, a dramatic increase in the estimates of the prevalence of autism starting in the mid 1980s; Second, the clinical diagnosis of autism was first introduced during the 1950s, and those diagnosed with autism back then are only now entering middle age. Few studies, however, have focused on the outcomes of adult autistic individuals, and very little is known about the course of autism in adulthood and on the familial burden resulting from caring for an autistic adult. We therefore propose to study adult outcomes in autism, and to examine the influence of raising an autistic individual on the parents.
Working hypothesis and aims: The primary objectives of the study are:
- Determine clinical status and functioning of autistic adults.
- Study the influence of raising and caring for an individual with autism on the well-being of the parents.
研究概览
地位
条件
研究类型
注册 (预期的)
联系人和位置
学习地点
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Tel Hashomer、以色列
- Sheba Medical Center
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参与标准
资格标准
适合学习的年龄
接受健康志愿者
有资格学习的性别
取样方法
研究人群
描述
Inclusion Criteria:
- Autism or autism spectrum disorder
- Understands the informed consent
- Hebrew Speaker
Exclusion Criteria:
- Severe acute or chronic illness
- Substance abuse
- In control subjects: Autism or autism spectrum disorder in subject or siblings
- In control subjects: participating sibling
学习计划
研究是如何设计的?
设计细节
合作者和调查者
调查人员
- 首席研究员:Raz Gros, MD、Mental Health Epidemiology & Psychosocial Aspects of Illness, The Gertner Institute for Epidemiology and Health Policy Research
研究记录日期
研究主要日期
学习开始
初级完成 (预期的)
研究注册日期
首次提交
首先提交符合 QC 标准的
首次发布 (估计)
研究记录更新
最后更新发布 (估计)
上次提交的符合 QC 标准的更新
最后验证
更多信息
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