Early intervention service intensity and young children's home participation

M A Khetani, B M McManus, E C Albrecht, V C Kaelin, J K Dooling-Litfin, E A Scully, High Value Early Intervention Research Group, M A Khetani, B M McManus, E C Albrecht, V C Kaelin, J K Dooling-Litfin, E A Scully, High Value Early Intervention Research Group

Abstract

Background: Young children with developmental disabilities and delays spend significant amounts of time at home, show decreased participation in home-based activities, and receive home-based early intervention services to improve participation in activities. Yet, knowledge about the relationship between EI service use and children's home participation in activities remains poorly understood but needed for program improvement. The purpose of this study was to understand the relationships between EI service use and children's home participation.

Methods: In a cross-sectional design, data were gathered from caregivers (N = 139) who enrolled in a pilot trial of the Young Children's Participation in Environment Measure (YC-PEM) electronic patient-reported outcome (e-PRO), as implemented within 1 month of their child's next EI progress evaluation. A series of path analytic models were used to estimate EI service intensity as a predictor of parent-reported young children's home participation 1) frequency, 2) level of involvement, and 3) desired change, adjusting for family and child social and functional characteristics. Models included caregiver perceptions of home environmental support to test its indirect (i.e., mediation) effects on the relationship between EI service intensity and each of the three home participation dimensions.

Results: All three models fit the data well (comparative fit index = 1.00). EI service intensity was not a significant predictor of participation frequency. However, EI service intensity had a significant direct effect on a child's participation according to level of involvement and desired change, explaining between 13.3-33.5% of the variance in home participation. Caregiver perceptions of environmental support had a small yet significant indirect effect on the relationship between EI service intensity and level of involvement and desired change; these models explained between 18.5-38.1% of the variance in home participation.

Conclusions: EI service intensity has important links with involvement in and desired change for home-based activities. Caregiver perceptions of environmental support appears to be a factor in the relationship between EI service intensity and home participation. Results warrant longitudinal replication with a control group, which would be possible with the implementation of the YC-PEM e-PRO in a routine EI clinical workflow.

Trial retrospectively registered: NCT03904797 .

Keywords: Environment, early intervention; Participation; Service intensity; Young children.

Conflict of interest statement

The YC-PEM e-PRO is a measure that was used in this study. YC-PEM e-PRO is licensed for distribution through CanChild Centre for Childhood Disability Research. A portion of sales from YC-PEM sales is allocated to M. Khetani for sponsored activity.

Figures

Fig. 1
Fig. 1
EI intensity, perceived home environmental support, and child and family correlates as predictors of home participation frequency. Significant, completely standardized parameter estimates are shown.
Fig. 2
Fig. 2
EI intensity, perceived home environmental support, and child and family correlates as predictors of child’s level of involvement in home activities. Significant, completely standardized parameter estimates are shown. Bold arrows depict the estimated indirect effect (i.e., mediation) of EI service intensity on home involvement by way of home environmental support.
Fig. 3
Fig. 3
EI intensity, perceived home environmental support, and child and family correlates as predictors of caregiver desire for home participation change. Significant, completely standardized parameter estimates are shown. Bold arrows depict the estimated indirect effect (i.e., mediation) of EI service intensity on desire for change in home participation by way of home environmental support. Dashed lines indicate parameter estimates that showed a trend towards significance (p < .10).

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