Veterans' Interpretation of Diabetes Distress in Diabetes Self-Management: Findings From Cognitive Interviews

Allison A Lewinski, Abigail Shapiro, Hayden B Bosworth, Matthew J Crowley, Felicia McCant, Teresa Howard, Amy S Jeffreys, Eleanor McConnell, Paula Tanabe, Susan Barcinas, Cynthia J Coffman, Heather A King, Allison A Lewinski, Abigail Shapiro, Hayden B Bosworth, Matthew J Crowley, Felicia McCant, Teresa Howard, Amy S Jeffreys, Eleanor McConnell, Paula Tanabe, Susan Barcinas, Cynthia J Coffman, Heather A King

Abstract

Purpose: The purpose of this project was to identify additional facets of diabetes distress (DD) in veterans that may be present due to the veteran's military-related experience.

Methods: The study team completed cognitive interviews with veterans with type 2 diabetes mellitus (T2DM) to examine how they answered the Diabetes Distress Scale (DD Scale), a tool that assesses DD. The DD Scale was used because of its strong associations with self-management challenges, physician-related distress, and clinical outcomes.

Results: The veterans sample (n= 15) was 73% male, mean age of 61 (SD = 8.6), 53% Black, 53% with glycosylated hemoglobin level <9%, and 67% with prescribed insulin. The DD Scale is readily understood by veterans and interpreted. Thematic analysis indicated additional domains affecting DD and T2DM self-management, including access to care, comorbidities, disruptions in routine, fluctuations in emotions and behaviors, interactions with providers, lifelong nature of diabetes, mental health concerns, military as culture, personal characteristics, physical limitations, physical pain, sources of information and support, spirituality, and stigma.

Conclusions: This study describes how a veteran's military experience may contribute to DD in the context of T2DM self-management. Findings indicate clinicians and researchers should account for additional domains when developing self-management interventions and discussing self-management behaviors with individuals with T2DM.

Trial registration: ClinicalTrials.gov NCT04587336.

Conflict of interest statement

Declaration of Conflicting Interests:

Dr. Bosworth reports receiving research funds from Sanofi, Otsuka, Johnson and Johnson, Improved Patient Outcomes, Novo Nordisk, PhRMA Foundation as well as consulting funds from Sanofi, Otsuka, Abbott, and Novartis. Dr. Lewinski reports receiving funds from PhRMA Foundation and Otsuka. The remaining authors have no competing interests to declare.

Figures

Figure 1.
Figure 1.
Phases in a research project to develop a self-management intervention to improve a Veteran’s engagement in and adherence to diabetes self-management.

Source: PubMed

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