Delivering Cognitive Stimulation Therapy (CST) Virtually: Developing and Field-Testing a New Framework

Luke Perkins, Emily Fisher, Cerne Felstead, Claire Rooney, Gloria H Y Wong, Ruizhi Dai, Sridhar Vaitheswaran, Nirupama Natarajan, Daniel C Mograbi, Cleusa P Ferri, Joshua Stott, Aimee Spector, Luke Perkins, Emily Fisher, Cerne Felstead, Claire Rooney, Gloria H Y Wong, Ruizhi Dai, Sridhar Vaitheswaran, Nirupama Natarajan, Daniel C Mograbi, Cleusa P Ferri, Joshua Stott, Aimee Spector

Abstract

Purpose: This feasibility and pilot study aimed to develop and field-test a 14-session virtual Cognitive Stimulation Therapy (vCST) programme for people living with dementia, developed as a result of services moving online during the COVID-19 pandemic.

Methods: The vCST protocol was developed using the existing group CST manual, through stakeholder consultation with people living with dementia, caregivers, CST group facilitators and dementia service managers. This protocol was then field-tested with 10 groups of people living with dementia in the Brazil, China (Hong Kong), India, Ireland and the UK, and feedback on the protocol was gathered from 14 facilitators.

Results: Field testing in five countries indicated acceptability to group facilitators and participants. Feedback from these groups was used to refine the developed protocol. The final vCST protocol is proposed, including session materials for delivery of CST over videoconferencing and a framework for offering CST virtually in global settings.

Conclusion: vCST is a feasible online intervention for many people living with dementia. We recommend that it is offered to those unable to access traditional in-person CST for health reasons, lack of transport or COVID-19 restrictions. Further research is needed to explore if participant outcomes are comparable to in-person CST groups.

Keywords: COVID-19; dementia; psychosocial intervention; telehealth.

Conflict of interest statement

AS offers Cognitive Stimulation Therapy (CST) training courses on a consultancy basis. The authors report no other conflicts of interest in this work.

© 2022 Perkins et al.

References

    1. Mauricio R, Benn C, Davis J, et al. Tackling gaps in developing life-changing treatments for dementia. Alzheimers Dement. 2019;5:241–253. doi:10.1016/j.trci.2019.05.001
    1. Aguirre E, Woods RT, Spector A, Orrell M. Cognitive stimulation for dementia: a systematic review of the evidence of effectiveness from randomised controlled trials. Ageing Res Rev. 2013;12(1):253–262. doi:10.1016/j.arr.2012.07.001
    1. Spector A, Thorgrimsen L, Woods B, et al. Efficacy of an evidence-based cognitive stimulation therapy programme for people with dementia: randomised controlled trial. Br J Psychiatr. 2003;183(3):248–254. doi:10.1192/bjp.183.3.248
    1. National Institute for Health and Care Excellence. Overview | dementia: assessment, management and support for people living with dementia and their carers | guidance | NICE; 2018. Available from: . Accessed October 5, 2021.
    1. Bertrand E, Naylor R, Laks J, Marinho V, Spector A, Mograbi DC. Cognitive stimulation therapy for Brazilian people with dementia: examination of implementation’ issues and cultural adaptation. Aging Ment Health. 2019;23(10):1400–1404. doi:10.1080/13607863.2018.1488944
    1. Wong GHY, Yek OPL, Zhang AY, Lum TYS, Spector A. Cultural adaptation of cognitive stimulation therapy (CST) for Chinese people with dementia: multicentre pilot study. Int J Geriatr Psychiatry. 2018;33(6):841–848. doi:10.1002/gps.4663
    1. Alzheimer’s Disease International. World Alzheimer report 2011: the benefits of early diagnosis and intervention; 2011. Available from: . Accessed October 5, 2021.
    1. Giebel C, Cannon J, Hanna K, et al. Impact of COVID-19 related social support service closures on people with dementia and unpaid carers: a qualitative study. Aging Ment Health. 2021;25(7):1281–1288. doi:10.1080/13607863.2020.1822292
    1. Cuffaro L, Di Lorenzo F, Bonavita S, Tedeschi G, Leocani L, Lavorgna L. Dementia care and COVID-19 pandemic: a necessary digital revolution. Neurol Sci. 2020;41(8):1977–1979. doi:10.1007/s10072-020-04512-4
    1. Dores AR, Geraldo A, Carvalho IP, Barbosa F. The use of new digital information and communication technologies in psychological counseling during the COVID-19 pandemic. IJERPH. 2020;17(20):7663. doi:10.3390/ijerph17207663
    1. World Health Organization. Fifty-eighth world health assembly resolutions and decisions annex; 2005. Available from: . Accessed October 5, 2021.
    1. Fairburn CG, Patel V. The impact of digital technology on psychological treatments and their dissemination. Behav Res Ther. 2017;88:19–25. doi:10.1016/j.brat.2016.08.012
    1. Donker T, Bennett K, Bennett A, et al. Internet-delivered interpersonal psychotherapy versus internet-delivered cognitive behavioral therapy for adults with depressive symptoms: randomized controlled noninferiority trial. J Med Internet Res. 2013;15(5):e82. doi:10.2196/jmir.2307
    1. Pots WTM, Fledderus M, Meulenbeek PAM, Ten Klooster PM, Schreurs KMG, Bohlmeijer ET. Acceptance and commitment therapy as a web-based intervention for depressive symptoms: randomised controlled trial. Br J Psychiatr. 2016;208(1):69–77. doi:10.1192/bjp.bp.114.146068
    1. Burton RL, O’Connell ME. Telehealth rehabilitation for cognitive impairment: randomized controlled feasibility trial. JMIR Res Protoc. 2018;7(2):e43. doi:10.2196/resprot.9420
    1. LaMonica HM, English A, Hickie IB, et al. Examining internet and eHealth practices and preferences: survey study of Australian older adults with subjective memory complaints, mild cognitive impairment, or dementia. J Med Internet Res. 2017;19(10):e7981. doi:10.2196/jmir.7981
    1. Lazar A, Thompson H, Demiris G. A systematic review of the use of technology for reminiscence therapy. Health Educ Behav. 2014;41(1_suppl):51S–61S. doi:10.1177/1090198114537067
    1. Pywell J, Vijaykumar S, Dodd A, Coventry L. Barriers to older adults’ uptake of mobile-based mental health interventions. Digi Health. 2020;6:2055207620905422. doi:10.1177/2055207620905422
    1. Wuthrich VM, Frei J. Barriers to treatment for older adults seeking psychological therapy. Int Psychogeriatr. 2015;27(7):1227–1236. doi:10.1017/S1041610215000241
    1. Charness N, Boot WR. Aging and information technology use: potential and barriers. Curr Dir Psychol Sci. 2009;18(5):253–258. doi:10.1111/j.1467-8721.2009.01647.x
    1. Peel N, Russell T, Gray L. Feasibility of using an in-home video conferencing system in geriatric rehabilitation. J Rehabil Med. 2011;43(4):364–366. doi:10.2340/16501977-0675
    1. Di Carlo F, Sociali A, Picutti E, et al. Telepsychiatry and other cutting-edge technologies in COVID-19 pandemic: bridging the distance in mental health assistance. Int J Clin Pract. 2021;75(1). doi:10.1111/ijcp.13716
    1. Yi JS, Pittman CA, Price CL, Nieman CL, Oh ES. Telemedicine and dementia care: a systematic review of barriers and facilitators. J Am Med Dir Assoc. 2021;22(7):1396–1402.e18. doi:10.1016/j.jamda.2021.03.015
    1. Cheung G, Peri K. Challenges to dementia care during COVID-19: innovations in remote delivery of group cognitive stimulation therapy. Aging Ment Health. 2021;25(6):977–979. doi:10.1080/13607863.2020.1789945
    1. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Patticrew M. Developing and Evaluating Complex Interventions. BMJ. 2019:21:337.
    1. Spector A, Thorgrimsen L, Woods RT, Orrell M. Making a difference: an evidence-based group programme to offer Cognitive Stimulation Therapy (CST) to people with dementia. Hawker Publications; 2020. Available from: . Accessed October 5, 2021.
    1. Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implementation Sci. 2009;4(1):50. doi:10.1186/1748-5908-4-50
    1. Raghuraman S, Lakshminarayanan M, Vaitheswaran S, Rangaswamy T. Cognitive stimulation therapy for dementia: pilot studies of acceptability and feasibility of cultural adaptation for India. Am J Geriatr Psychiatr. 2017;25(9):1029–1032. doi:10.1016/j.jagp.2017.04.014
    1. International Cognitive Stimulation Therapy (CST) Centre website. International Cognitive Stimulation Therapy (CST) Centre: CST research - virtual CST. International Cognitive Stimulation Therapy (CST) Centre; 2021. Available from: . Accessed November 9, 2021.
    1. Morris JC. Clinical dementia rating: a reliable and valid diagnostic and staging measure for dementia of the Alzheimer type. Int Psychogeriatr. 1997;9(S1):173–176. doi:10.1017/S1041610297004870
    1. Comas-Herrera A, Lorenz-Dant K, Ferri C, et al. Supporting People Living with Dementia and Their Carers in Low- and Middle-Income Countries During COVID-19. LTCcovid. Org. 2020:4.
    1. Office for National Statistics. Exploring the UK’s digital divide - Office for National Statistics; 2019. Available from: . Accessed October 5, 2021.
    1. Age UK. Digital inclusion and older people – how have things changed in a Covid-19 world?; 2021. Available from: . Accessed October 5, 2021.
    1. Hall L, Orrell M, Stott J, Spector A. Cognitive stimulation therapy (CST): neuropsychological mechanisms of change. Int Psychogeriatr. 2013;25(3):479–489. doi:10.1017/S1041610212001822
    1. O’Cathain A, Croot L, Duncan E, et al. Guidance on how to develop complex interventions to improve health and healthcare. BMJ Open. 2019;9(8):e029954. doi:10.1136/bmjopen-2019-029954
    1. Lobbia A, Carbone E, Faggian S, et al. The efficacy of Cognitive Stimulation Therapy (CST) for people with mild-to-moderate dementia. Eur Psychol. 2019;24(3):257–277. doi:10.1027/1016-9040/a000342
    1. Parekh V, Foong PS, Zhao S, Subramanian R. AVEID: automatic video system for measuring engagement in dementia. In: 23rd International Conference on Intelligent User Interfaces; ACM; 2018:409–413. doi:10.1145/3172944.3173010

Source: PubMed

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