Exploring an Innovative Care Model and Telemonitoring for the Management of Patients With Complex Chronic Needs: Qualitative Description Study

Kayleigh Gordon, Carolyn Steele Gray, Katie N Dainty, Jane DeLacy, Patrick Ware, Emily Seto, Kayleigh Gordon, Carolyn Steele Gray, Katie N Dainty, Jane DeLacy, Patrick Ware, Emily Seto

Abstract

Background: The growing number of patients with complex chronic conditions presents an urgent challenge across the Canadian health care system. Current care delivery models are overburdened, struggling to monitor and stabilize the complex needs of this growing patient population.

Objective: This qualitative study aimed to explore the needs and perspectives of patients and members of the care team to inform the development of an innovative integrated model of care and the needs of telemonitoring (TM) for patients with complex chronic conditions. Furthermore, we explored how these needs could be successfully embedded to support this novel model of complex chronic care.

Methods: A qualitative description design was utilized to conduct and analyze 29 semistructured interviews with patients (n=16) and care team members (CTM) (n=13) involved in developing the model of care in an ambulatory care facility in Southern Ontario. Participants were identified through purposive sampling. Two researchers performed an iterative thematic analysis using NVivo 12 (QSR International; Melbourne, Australia) to gain insights from examining multiple perspectives of different participants on complex chronic care needs.

Results: The analysis revealed 3 themes and 13 subthemes, including the following: (1) adequate health care delivery remains challenging for patients with complex care needs, (2) insights into how to structure an integrated care model, and (3) opportunities for TM in an integrated model of care. Participants not only identified continued challenges in accessing and navigating care in a fragmented and disconnected delivery system but also identified the need for more self-management support. Patients and CTM described the structure of an integrated model of care, including the need for a clear referral and triage processes and composing a tight-knit circle of collaborating interdisciplinary providers led by a nurse practitioner (NP). Finally, opportunities for TM in an integrated model of care were identified, including increasing access and communication, the ability to monitor specific signs and symptoms, and building a clinical workflow around TM-enabled care.

Conclusions: Despite entrenched health care service delivery models, a new model of care is acutely needed to care for patients with complex chronic needs (CCN). NPs are in a unique position to lead TM-enabled integrated models of care. TM can facilitate frequent and necessary monitoring of patients with CCN with more than one condition in integrated models of care.

Keywords: complex patients; models of care; multimorbidity; telemonitoring.

Conflict of interest statement

Conflicts of Interest: None declared.

©Kayleigh Gordon, Carolyn Steele Gray, Katie N Dainty, Jane DeLacy, Patrick Ware, Emily Seto. Originally published in JMIR Nursing Informatics (https://nursing.jmir.org), 06.03.2020.

Figures

Figure 1
Figure 1
A care model map of a nurse practitioner–led integrated care model with an embedded telemonitoring system. LACE: Length of stay, Acuity of admission, Comorbidities, Emergency department visits; NP: nurse practitioner; PT: patient, RN: registered nurse; TM: telemonitoring.

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