Effect of Psychiatric Advance Directives Facilitated by Peer Workers on Compulsory Admission Among People With Mental Illness: A Randomized Clinical Trial

Aurélie Tinland, Sandrine Loubière, Frederic Mougeot, Emmanuelle Jouet, Magali Pontier, Karine Baumstarck, Anderson Loundou, Nicolas Franck, Christophe Lançon, Pascal Auquier, DAiP Group, Lee Antoine, Elsa Castot, Nicolas Grand Ordener, Julien Grard, Juliette Robert, Antoine Simon, Aurélien Troisoeufs, Aurélie Tinland, Sandrine Loubière, Frederic Mougeot, Emmanuelle Jouet, Magali Pontier, Karine Baumstarck, Anderson Loundou, Nicolas Franck, Christophe Lançon, Pascal Auquier, DAiP Group, Lee Antoine, Elsa Castot, Nicolas Grand Ordener, Julien Grard, Juliette Robert, Antoine Simon, Aurélien Troisoeufs

Abstract

Importance: Reducing the use of coercion in mental health care is crucial from a human rights and public health perspective. Psychiatric advance directives (PADs) are promising tools that may reduce compulsory admissions. Assessments of PADs have included facilitation by health care agents but not facilitation by peer workers.

Objective: To determine the efficacy of PADs facilitated by peer workers (PW-PAD) in people with mental disorders.

Design, setting, and participants: A multicenter randomized clinical trial was conducted in 7 French mental health facilities. Adults with a DSM-5 diagnosis of schizophrenia, bipolar I disorder, or schizoaffective disorder who had a compulsory admission in the past 12 months and the capacity to consent were enrolled between January 2019 and June 2020 and followed up for 12 months.

Interventions: The PW-PAD group was invited to fill out a PAD form and meet a peer worker who was trained to assist in completing and sharing the form with relatives and psychiatrists.

Main outcomes and measures: The primary outcome was the rate of compulsory admission at 12 months after randomization. The overall psychiatric admission rate, therapeutic alliance, quality of life, mental health symptoms, empowerment, and recovery outcomes were also investigated.

Results: Among 394 allocated participants (median age, 39 years; 39.3% female; 45% with schizophrenia, 36% bipolar I disorder, and 19% schizoaffective disorder), 196 were assigned to the PW-PAD group and 198 to the control group. In the PW-PAD group, 27.0% had compulsory admissions compared with 39.9% in the control group (risk difference, -0.13; 95% CI, -0.22 to -0.04; P = .007). No significant differences were found in the rate of overall admissions, therapeutic alliance score, and quality of life. Participants in the PW-PAD group exhibited fewer symptoms (effect size, -0.20; 95% CI, -0.40 to 0.00), greater empowerment (effect size, 0.30; 95% CI, 0.10 to 0.50), and a higher recovery score (effect size, 0.44; 95% CI, 0.24 to 0.65), compared with those in the control group.

Conclusions and relevance: Peer worker-facilitated PADs are effective in decreasing compulsory hospital admissions and increasing some mental health outcomes (self-perceived symptoms, empowerment, and recovery). Involving peer workers in the completion of PADs supports the current shift of mental health care from substitute decision-making to supported decision-making.

Trial registration: ClinicalTrials.gov Identifier: NCT03630822.

Conflict of interest statement

Conflict of Interest Disclosures: Drs Tinland, Loubière, and Jouet reported grants from the French Ministry of Health Directorate General of Health Care Services (DGOS) during the conduct of the study. No other disclosures were reported.

Figures

Figure.. CONSORT Flow Diagram for the DAiP…
Figure.. CONSORT Flow Diagram for the DAiP Trial (Peer Worker–Facilitated Psychiatric Advance Directive Study)
ITT indicates intention to treat; PADs, psychiatric advance directives.

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