Barriers to Access to Palliative Care

Pippa Hawley, Pippa Hawley

Abstract

Despite significant advances in understanding the benefits of early integration of palliative care with disease management, many people living with a chronic life-threatening illness either do not receive any palliative care service or receive services only in the last phase of their illness. In this article, I explore some of the reasons for failure to provide palliative care services and recommend some strategies to overcome these barriers, emphasizing the importance of describing palliative care accurately. I provide language which I hope will help health care professionals of all disciplines explain what palliative care has to offer and ensure wider access to palliative care, early in the course of their illness.

Keywords: barriers to care; health service delivery; models of care; palliative care.

Conflict of interest statement

DECLARATION OF CONFLICTING INTERESTS: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
The bow tie model of 21st century palliative care.

References

    1. .
    1. .
    1. The Way Forward National Framework: a roadmap for an integrated palliative approach to care, Quality End of Life Care Coalition and CHPCA, Published March, 2015. .
    1. The Way Forward National Framework: cost-effectiveness of palliative care. .
    1. Bakitas MA, Tosteson TD, Li Z, et al. Early versus delayed initiation of concurrent palliative oncology care: patient outcomes in the ENABLE III randomized controlled trial. J Clin Oncol. 2015;33:1438–1445.
    1. Temel JS, Greer JA, Muzikansky A. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010;363:733.
    1. Dumanovsky T, Augustin R, Rogers M, et al. The growth of palliative care in US hospitals: a status report. J Palliat Med. 2016;19:8–15.
    1. Gidwani R, Joyce N, Kinosian B, et al. Gap between recommendations and practice of palliative care and hospice in cancer patients. J Palliat Med. 2016;19:957–963.
    1. Morrison RS, Meier D. It’s all a matter of perspective. J Palliat Med. 2016;19:900–901.
    1. Currow D, et al. Palliative care outcomes collaboration. National Report on Patient Outcomes in Palliative Care in Australia Report 14 (Table 20). . Published May, 2013.
    1. Allingham S, Bird S, Masso M, et al. , (2013) PCOC National Report on Patient Outcomes in Palliative Care in Australia July to December 2012. Palliative Care Outcomes Collaboration, Australian Health Services Research Institute, University of Wollongong.
    1. Hannon B, Zimmermann C, Knaul FM, et al. Provision of palliative care in low- and middle-income countries: Overcoming obstacles for effective treatment delivery. J Clin Oncol. 2015;34:62–68.
    1. De Lima L, Pastrana T. Opportunities for palliative care in public health. Annu Rev Publi Health 2016;37:357–337.
    1. Smith T, Temin S, Alesi ER, et al. American Society of Clinical Oncology provisional clinical opinion: The integration of palliative care into standard oncology care. J Clin Oncol. 2012;30:880–887.
    1. Ferrell B, Temel JS, Temin S, et al. Integration of palliative care into standard oncology care: American Society of Clinical Oncology clinical practice guideline update [published online before print October 28, 2016]. J Clin Oncol. doi:10.1200/JCO.2016.70.1474
    1. Wentland K, Krzyzanowska MK, Swami N, Rodin GM, Le LW, Zimmermann C. Referral practices of oncologists to specialized palliative care. J Clin Oncol. 2012;30:4380–4386.
    1. Mount BM. The problem of caring for the dying in a general hospital; the palliative care unit as a possible solution. Can Med Assoc J. 1976;115:119–121.
    1. Medicare Hospice Benefits, Department of Health and Human Services. .
    1. Hawley P. The bow tie model of 21st century palliative care. J Pain Symptom Manage. 2014;47:e2–e5.

Source: PubMed

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