Facebook Groups for the Management of Chronic Diseases

Stephanie R Partridge, Patrick Gallagher, Becky Freeman, Robyn Gallagher, Stephanie R Partridge, Patrick Gallagher, Becky Freeman, Robyn Gallagher

Abstract

The use of Facebook groups by health care researchers and professionals for chronic disease management, namely type 2 diabetes mellitus and coronary heart disease, is in its early stages and challenges are emerging. While Facebook groups offer great potential to deliver health support, research of Facebook groups for chronic disease management remains in its infancy, with robust evidence not yet available. Designing Facebook groups that are acceptable to users, health care researchers as well as health care professionals is a challenge, and there is a poor fit with traditional research and evaluation methods. Key recommendations for future research of Facebook groups for chronic disease management include: (1) iterative content development with input from the target patient population; (2) further understanding of the potential role of group "champions"; (3) ensuring the social media policies of health care institutions allow for real time online communication; and (4) utilizing comprehensive evaluation strategies, including the use of process evaluations.

Keywords: social media, prevention, intervention, Facebook.

Conflict of interest statement

Conflicts of Interest: None declared.

©Stephanie R Partridge, Patrick Gallagher, Becky Freeman, Robyn Gallagher. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 17.01.2018.

References

    1. Deakin T, McShane CE, Cade JE, Williams RDRR. Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrane Database Syst Rev. 2005 Apr 18;(2):CD003417. doi: 10.1002/14651858.CD003417.pub2.
    1. Woodruffe S, Neubeck L, Clark RA, Gray K, Ferry C, Finan J, Sanderson S, Briffa TG. Australian Cardiovascular Health and Rehabilitation Association (ACRA) core components of cardiovascular disease secondary prevention and cardiac rehabilitation 2014. Heart Lung Circ. 2015 May;24(5):430–41. doi: 10.1016/j.hlc.2014.12.008.
    1. Clark AM, King-Shier KM, Spaling MA, Duncan AS, Stone JA, Jaglal SB, Thompson DR, Angus JE. Factors influencing participation in cardiac rehabilitation programmes after referral and initial attendance: qualitative systematic review and meta-synthesis. Clin Rehabil. 2013 Oct;27(10):948–59. doi: 10.1177/0269215513481046.
    1. Schwennesen N, Henriksen JE, Willaing I. Patient explanations for non-attendance at type 2 diabetes self-management education: a qualitative study. Scand J Caring Sci. 2016 Mar;30(1):187–92. doi: 10.1111/scs.12245.
    1. Neubeck L, Freedman SB, Clark AM, Briffa T, Bauman A, Redfern J. Participating in cardiac rehabilitation: a systematic review and meta-synthesis of qualitative data. Eur J Prev Cardiol. 2012 Jun;19(3):494–503.
    1. Facebook Newsroom. 2017. Oct 21, [2018-01-11]. Two Billion People Coming Together on Facebook
    1. Ofcom. [2018-01-11]. Adults's media use and attitudes: report 2017 .
    1. Tennant B, Stellefson M, Dodd V, Chaney B, Chaney D, Paige S, Alber J. eHealth literacy and Web 2.0 health information seeking behaviors among baby boomers and older adults. J Med Internet Res. 2015;17(3):e70. doi: 10.2196/jmir.3992.
    1. Australian Institute of Health and Welfare . The burden of chronic respiratory conditions in Australia: a detailed analysis of the Australian Burden of Disease Study 2011. Canberra: AIHW; 2017.
    1. Balatsoukas P, Kennedy CM, Buchan I, Powell J, Ainsworth J. The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness. J Med Internet Res. 2015;17(6):e141. doi: 10.2196/jmir.3662.
    1. De la Torre-Diez I, Díaz-Pernas FJ, Antón-Rodríguez M. A content analysis of chronic diseases social groups on Facebook and Twitter. Telemed J E Health. 2012;18(6):404–8. doi: 10.1089/tmj.2011.0227.
    1. Zhang Y, He D, Sang Y. Facebook as a platform for health information and communication: a case study of a diabetes group. J Med Syst. 2013 Jun;37(3):9942. doi: 10.1007/s10916-013-9942-7.
    1. Greene JA, Choudhry NK, Kilabuk E, Shrank WH. Online social networking by patients with diabetes: a qualitative evaluation of communication with Facebook. J Gen Intern Med. 2011 Mar;26(3):287–92. doi: 10.1007/s11606-010-1526-3.
    1. Abedin T, Al MM, Lasker MAA, Ahmed SW, Shommu N, Rumana N, Turin TC. Social Media as a Platform for Information About Diabetes Foot Care: A Study of Facebook Groups. Can J Diabetes. 2017 Feb;41(1):97–101. doi: 10.1016/j.jcjd.2016.08.217.
    1. Al Mamun M, Ibrahim HM, Turin TC. Social media in communicating health information: an analysis of Facebook groups related to hypertension. Prev Chronic Dis. 2015;12:E11. doi: 10.5888/pcd12.140265.
    1. Boudreau F, Moreau M, Côté J. Effectiveness of Computer Tailoring Versus Peer Support Web-Based Interventions in Promoting Physical Activity Among Insufficiently Active Canadian Adults With Type 2 Diabetes: Protocol for a Randomized Controlled Trial. JMIR Res Protoc. 2016;5(1):e20. doi: 10.2196/resprot.5019.
    1. Siegmund LA, Ahmed HM, Crawford MT, Bena JF. Feasibility of a Facebook Intervention for Exercise Motivation and Cardiac Rehabilitation Adherence: Study Protocol. JMIR Res Protoc. 2017 Aug 18;6(8):e162. doi: 10.2196/resprot.7554.
    1. Neubeck L, Redfern J, Fernandez R, Briffa T, Bauman A, Freedman SB. Telehealth interventions for the secondary prevention of coronary heart disease: a systematic review. Eur J Cardiovasc Prev Rehabil. 2009 Jun;16(3):281–9. doi: 10.1097/HJR.0b013e32832a4e7a.
    1. Lee SWH, Chan CKY, Chua SS, Chaiyakunapruk N. Comparative effectiveness of telemedicine strategies on type 2 diabetes management: A systematic review and network meta-analysis. Sci Rep. 2017 Oct 04;7(1):12680. doi: 10.1038/s41598-017-12987-z.
    1. Maher CA, Lewis LK, Ferrar K, Marshall S, De BI, Vandelanotte C. Are health behavior change interventions that use online social networks effective? A systematic review. J Med Internet Res. 2014;16(2):e40. doi: 10.2196/jmir.2952.
    1. Williams G, Hamm MP, Shulhan J, Vandermeer B, Hartling L. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open. 2014;4(2):e003926. doi: 10.1136/bmjopen-2013-003926.
    1. Merolli M, Gray K, Martin-Sanchez F. Health outcomes and related effects of using social media in chronic disease management: a literature review and analysis of affordances. J Biomed Inform. 2013 Dec;46(6):957–69. doi: 10.1016/j.jbi.2013.04.010.
    1. Petticrew M, Anderson L, Elder R, Grimshaw J, Hopkins D, Hahn R, Krause L, Kristjansson E, Mercer S, Sipe T, Tugwell P, Ueffing E, Waters E, Welch V. Complex interventions and their implications for systematic reviews: a pragmatic approach. J Clin Epidemiol. 2013 Nov;66(11):1209–14. doi: 10.1016/j.jclinepi.2013.06.004.
    1. Petticrew M. Time to rethink the systematic review catechism? Moving from 'what works' to 'what happens'. Syst Rev. 2015 Mar 28;4:36. doi: 10.1186/s13643-015-0027-1.
    1. Facebook Group Basics. 2016. [2018-01-11]. .
    1. Eysenbach G, Powell J, Englesakis M, Rizo C, Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ. 2004 May 15;328(7449):1166. doi: 10.1136/bmj.328.7449.1166.
    1. Young C. Community management that works: how to build and sustain a thriving online health community. J Med Internet Res. 2013;15(6):e119. doi: 10.2196/jmir.2501.
    1. Cobb NK, Graham AL. Health behavior interventions in the age of facebook. Am J Prev Med. 2012 Nov;43(5):571–2. doi: 10.1016/j.amepre.2012.08.001.
    1. Embuldeniya G, Veinot P, Bell E, Bell M, Nyhof-Young J, Sale J, Britten Nicky. The experience and impact of chronic disease peer support interventions: a qualitative synthesis. Patient Educ Couns. 2013 Jul;92(1):3–12. doi: 10.1016/j.pec.2013.02.002.
    1. Pagoto S, Waring ME, May CN, Ding EY, Kunz WH, Hayes R, Oleski JL. Adapting Behavioral Interventions for Social Media Delivery. J Med Internet Res. 2016;18(1):e24. doi: 10.2196/jmir.5086.
    1. Xie B, Watkins I, Golbeck J, Huang M. Understanding and Changing Older Adults' Perceptions and Learning of Social Media. Educ Gerontol. 2012 Apr 01;38(4):282–296. doi: 10.1080/03601277.2010.544580.
    1. Leist AK. Social media use of older adults: a mini-review. Gerontology. 2013;59(4):378–84. doi: 10.1159/000346818.
    1. Schein R, Wilson KK. Literature review on effectiveness of the use of social media: a report for Peel public health. 2010. [2018-01-11]. .
    1. Gallagher R, Roach K, Sadler L, Glinatsis H, Belshaw J, Kirkness A, Zhang L, Gallagher P, Paull G, Gao Y, Partridge SR, Parker H, Neubeck L. Mobile Technology Use Across Age Groups in Patients Eligible for Cardiac Rehabilitation: Survey Study. JMIR Mhealth Uhealth. 2017 Oct 24;5(10):e161. doi: 10.2196/mhealth.8352.
    1. Partridge SR, Grunseit AC, Gallagher P, Freeman B, O'Hara BJ, Neubeck L, Due S, Paull G, Ding D, Bauman A, Phongsavan P, Roach K, Sadler L, Glinatsis H, Gallagher R. Cardiac Patients' Experiences and Perceptions of Social Media: Mixed-Methods Study. J Med Internet Res. 2017 Sep 15;19(9):e323. doi: 10.2196/jmir.8081.
    1. Menefee HK, Thompson MJ, Guterbock TM, Williams IC, Valdez RS. Mechanisms of Communicating Health Information Through Facebook: Implications for Consumer Health Information Technology Design. J Med Internet Res. 2016 Aug 11;18(8):e218. doi: 10.2196/jmir.5949.
    1. Joseph RP, Keller C, Adams MA, Ainsworth BE. Print versus a culturally-relevant Facebook and text message delivered intervention to promote physical activity in African American women: a randomized pilot trial. BMC Womens Health. 2015 Mar 27;15:30. doi: 10.1186/s12905-015-0186-1.
    1. Haines-Saah RJ, Kelly MT, Oliffe JL, Bottorff JL. Picture Me Smokefree: a qualitative study using social media and digital photography to engage young adults in tobacco reduction and cessation. J Med Internet Res. 2015;17(1):e27. doi: 10.2196/jmir.4061.
    1. Bull SS, Levine DK, Black SR, Schmiege SJ, Santelli J. Social media-delivered sexual health intervention: a cluster randomized controlled trial. Am J Prev Med. 2012 Nov;43(5):467–74. doi: 10.1016/j.amepre.2012.07.022.
    1. Patrick K, Marshall SJ, Davila EP, Kolodziejczyk JK, Fowler JH, Calfas KJ, Huang JS, Rock CL, Griswold WG, Gupta A, Merchant G, Norman GJ, Raab F, Donohue MC, Fogg BJ, Robinson TN. Design and implementation of a randomized controlled social and mobile weight loss trial for young adults (project SMART) Contemp Clin Trials. 2014 Jan;37(1):10–8. doi: 10.1016/j.cct.2013.11.001.
    1. Napolitano MA, Hayes S, Bennett GG, Ives AK, Foster GD. Using Facebook and text messaging to deliver a weight loss program to college students. Obesity (Silver Spring) 2013 Jan;21(1):25–31. doi: 10.1002/oby.20232.
    1. Rote AE, Klos LA, Brondino MJ, Harley AE, Swartz AM. The Efficacy of a Walking Intervention Using Social Media to Increase Physical Activity: A Randomized Trial. J Phys Act Health. 2015 Jun;12 Suppl 1:S18–25. doi: 10.1123/jpah.2014-0279.
    1. Valle CG, Tate DF, Mayer DK, Allicock M, Cai J. A randomized trial of a Facebook-based physical activity intervention for young adult cancer survivors. J Cancer Surviv. 2013 Sep;7(3):355–68. doi: 10.1007/s11764-013-0279-5.
    1. Wojcicki JM, Geissler JD, Stokes CW, Heyman MB, Tran CT. The use of the RESPeRATE device to lower blood pressure in inner city obese adolescents and children: a pilot feasibility study. High Blood Press Cardiovasc Prev. 2013 Jun;20(2):89–92. doi: 10.1007/s40292-013-0014-3.
    1. Herring SJ, Cruice JF, Bennett GG, Davey A, Foster GD. Using technology to promote postpartum weight loss in urban, low-income mothers: a pilot randomized controlled trial. J Nutr Educ Behav. 2014;46(6):610–5. doi: 10.1016/j.jneb.2014.06.002.
    1. Young SD, Cumberland WG, Lee S, Jaganath D, Szekeres G, Coates T. Social networking technologies as an emerging tool for HIV prevention: a cluster randomized trial. Ann Intern Med. 2013 Sep 3;159(5):318–24. doi: 10.7326/0003-4819-159-5-201309030-00005.
    1. Cavallo DN, Tate DF, Ries AV, Brown JD, DeVellis RF, Ammerman AS. A social media-based physical activity intervention: a randomized controlled trial. Am J Prev Med. 2012 Nov;43(5):527–32. doi: 10.1016/j.amepre.2012.07.019.
    1. Struik LL, Baskerville NB. The role of Facebook in Crush the Crave, a mobile- and social media-based smoking cessation intervention: qualitative framework analysis of posts. J Med Internet Res. 2014;16(7):e170. doi: 10.2196/jmir.3189.
    1. Lelutiu-Weinberger C, Gamarel KE, Golub SA, Parsons JT. Race-based differentials in the impact of mental health and stigma on HIV risk among young men who have sex with men. Health Psychol. 2015 Aug;34(8):847–56. doi: 10.1037/hea0000192.
    1. Rice E, Tulbert E, Cederbaum J, Barman Adhikari A, Milburn NG. Mobilizing homeless youth for HIV prevention: a social network analysis of the acceptability of a face-to-face and online social networking intervention. Health Education Research. 2012 Jan 13;27(2):226–236. doi: 10.1093/her/cyr113.
    1. Ridout B, Campbell A. Using Facebook to deliver a social norm intervention to reduce problem drinking at university. Drug Alcohol Rev. 2014 Nov;33(6):667–73. doi: 10.1111/dar.12141.
    1. Merchant G, Weibel N, Patrick K, Fowler JH, Norman GJ, Gupta A, Servetas C, Calfas K, Raste K, Pina L, Donohue M, Griswold WG, Marshall S. Click “like” to change your behavior: a mixed methods study of college students' exposure to and engagement with Facebook content designed for weight loss. J Med Internet Res. 2014;16(6):e158. doi: 10.2196/jmir.3267.
    1. Jones L, Saksvig BI, Grieser M, Young DR. Recruiting adolescent girls into a follow-up study: benefits of using a social networking website. Contemp Clin Trials. 2012 Mar;33(2):268–72. doi: 10.1016/j.cct.2011.10.011.
    1. Kim SJ, Marsch LA, Brunette MF, Dallery J. Harnessing Facebook for Smoking Reduction and Cessation Interventions: Facebook User Engagement and Social Support Predict Smoking Reduction. J Med Internet Res. 2017 May 23;19(5):e168. doi: 10.2196/jmir.6681.
    1. Fleury J, Keller C, Perez A, Lee SM. The role of lay health advisors in cardiovascular risk reduction: a review. Am J Community Psychol. 2009 Sep;44(1-2):28–42. doi: 10.1007/s10464-009-9253-9.
    1. South Eastern Sydney Local Health District. 2015. [2018-01-11]. Business Rule - SESLHD Use of Facebook NSW Government .
    1. Liu H, Muhunthan J, Hayek A, Hackett M, Laba T, Peiris D, Jan S. Examining the use of process evaluations of randomised controlled trials of complex interventions addressing chronic disease in primary health care-a systematic review protocol. Syst Rev. 2016 Aug 15;5(1):138. doi: 10.1186/s13643-016-0314-5.
    1. Moore GF, Audrey S, Barker M, Bond L, Bonell C, Hardeman W, Moore L, O'Cathain A, Tinati T, Wight D, Baird J. Process evaluation of complex interventions: Medical Research Council guidance. BMJ. 2015;350:h1258.
    1. Guise J, Chang C, Viswanathan M, Glick S, Treadwell J, Umscheid C. Systematic Reviews of Complex Multicomponent Health Care Interventions Rockville (MD): Agency for Healthcare Research and Quality (US) 2014.

Source: PubMed

3
Abonnieren