Community Based Participatory Research For The Development of a Compassionate Community: The Case of Getxo Zurekin

Naomi Hasson, Maider Urtaran-Laresgoiti, Roberto Nuño-Solinís, Itziar Moreno, Gorka Espiau, Maider Grajales, Janire Fonseca, Naomi Hasson, Maider Urtaran-Laresgoiti, Roberto Nuño-Solinís, Itziar Moreno, Gorka Espiau, Maider Grajales, Janire Fonseca

Abstract

Introduction: In the face of a growing ageing population and rising care needs, compassionate communities seek to visualize the community as an equal partner in the complex task of providing quality social and health care at the end of life.

Description: Getxo Zurekin is a social innovation example for the creation of a compassionate community in Getxo, one of the most populated cities in the province of Biscay, with 25.46% of its population aged over 65. Mixed methodologies have been applied, active listening and co-creation of actions and strategies towards improving care and quality of life for people and families facing advanced disease and end of life situations, with more than 80 people interviewed to conform the basis for a collective sense making. The initiative has reached more than 1,000 people in Getxo.

Discussion: Following a systemic approach, horizontal relationships and cross-sectoral collaborations have allowed engaging the active involvement of local agents in the collective sense making and co- creation process.

Conclusion: Getxo Zurekin represents an example of a participatory action research model, which has shown to be effective to meet initial targets towards creation of a compassionate community.

Keywords: compassionate communities; end of life; integrated care; participatory research; social innovation.

Conflict of interest statement

The authors have no competing interests to declare.

Copyright: © 2022 The Author(s).

Figures

Figure 1
Figure 1
Social innovation process. Source: Elaborated by authors.
Figure 2
Figure 2
Iterative listening and co-creation phases for collective sense making. Source: Adapted from Agirre Lehendakaria Center for social and political studies.
Figure 3
Figure 3
Community and institutional agents chart in Getxo Zurekin. Source: Elaborated by authors from the compassionate chart at fundacionsonrisa.com/.

References

    1. Kellehear A. Compassionate communities: end-of-life care as everyone’s responsibility. QJM. 2013; 106(12): 1071–1075. DOI: 10.1093/qjmed/hct200
    1. Department of Health and Consumer Affairs. A Strategy to Tackle the Challenge of Chronicity in the Basque Country; 2010. [cited 2021 21 Jan]. Available from: .
    1. Toro Polanco N, Vázquez Pérez P, Nuño Solinís R, Mira Solves JJ. Evaluación del nuevo enfoque en atención a la cronicidad en las organizaciones sanitarias integradas en el País Vasco. Anales Del Sistema Sanitario de Navarra. 2014; 37(2): 189–201. DOI: 10.4321/S1137-66272014000200002
    1. Maresova P, Javanmardi Barakovic S, Barakovic Husic J, Tomsone S, Krejcar O, Kuca K. Consequences of chronic diseases and other limitations associated with old age – a scoping review. BMC Public Health. 2019; 19(1): 1431. DOI: 10.1186/s12889-019-7762-5
    1. Kellehear A. Compassionate cities: public health and end-of-life care. Routledge; 2005.
    1. PHPCI. PHPCI. [cited 2021 21 Jan]. Available from: .
    1. Conway S. Public health and palliative care: principles into practice? Critical Public Health. 2008; 18(3): 405–415. DOI: 10.1080/09581590802191906
    1. Librada-Flores S, Nabal-Vicuña M, Forero-Vega D, Muñoz-Mayorga I, Guerra-Martín MD. Implementation Models of Compassionate Communities and Compassionate Cities at the End of Life: A Systematic Review. International Journal of Environmental Research and Public Health. 2020; 17(17): 6271. DOI: 10.3390/ijerph17176271
    1. van der Vlegel-Brouwer W, van Kemenade E, Stein KV, Goodwin N, Miller R. Research in Integrated Care: The Need for More Emergent, People-Centred Approaches. International Journal of Integrated Care. 2020; 20(4): 5. DOI: 10.5334/ijic.5627
    1. EUSTAT. Web Eustat. Datos Estadísticos de Getxo. Euskal Estatistika Erakundea Vasco de Estadística. [cited 2021 21 Jan]. Available from: .
    1. Zurekin Getxo. Informe 2019. ALC. 2019 19 Nov. [cited 2021 21 Jan]. Available from: .
    1. Espiau G. Nuevas tendencias de la Innovación Social. Revista Española Del Tercer Sector. 2017; 36: 139–168. [cited 2021 21 Jan]. Available from .
    1. Engle J, Slade S. Escuchar para promover el cambio social: herramientas transformadoras que impulsan la innovación comunitaria. Fundación Bancaria “la Caixa”. 2018: 22–40. [cited 2021 21 Jan]. Available from .
    1. Murray R, Caulier-Grice J, Mulgan G. The open book of social innovation. The Young Foundation and Nesta; 2010. [cited 2021 21 Jan]. Available from: .
    1. Weick KE, Sutcliffe KM, Obstfeld D. Organizing and the Process of Sensemaking. Organization Science. 2005; 16(4): 409–421. DOI: 10.1287/orsc.1050.0133
    1. Hassan Z. Towards A Theory Of Systemic Action. Quaderni Della Fondazione Giacomo Brodolini; 2014. [cited 2021 21 Jan]. Available from: .
    1. Morris L, McDaid M. Compassionate Communities – From frailty to community resilience – making a public health approach to end of life care a reality. International Journal of Integrated Care. 2017; 17(5): 134. DOI: 10.5334/ijic.3442
    1. Bunce A. Developing a Compassionate Community Compassionate Inverclyde. International Journal of Integrated Care. 2018; 18(s2): 344. DOI: 10.5334/ijic.s2344
    1. Castillo Rodríguez C. Seville, compassionate city. International Journal of Integrated Care. 2019; 19(4): 411. DOI: 10.5334/ijic.s3411
    1. Press E. Entidades vascas inician los trabajos para crear una red de comunidades compasivas para personas al final de la vida. 2019, 11 Jul. [cited 2021 21 Jan]. Available from: .
    1. Flagler J, Weizhen D. The uncompassionate elements of the Compassionate Care Benefits Program: a critical analysis. Global Health Promotion. 2010; 17(1): 50–59. DOI: 10.1177/1757975909356636
    1. Abel J, Bowra J, Howarth G. Compassionate community networks: Supporting home dying. BMJ Support Palliat Care. 2011; 1: 129–133. DOI: 10.1136/bmjspcare-2011-000068
    1. Lown B. Seven guiding commitments: Making the U.S. healthcare system more compassionate. J Patient Exp. 2014; 1(2): 6–15. DOI: 10.1177/237437431400100203
    1. Chou W-YS, Stokes SC, Citko J, Davies B. Improving end-of-life care through community-based grassroots collaboration: development of the Chinese-American Coalition for Compassionate Care. Journal of Palliative Care. 2008; 24(1): 31–40. DOI: 10.1177/082585970802400105
    1. Sallnow L, Kumar S, Numpeli M. Home-based palliative care in Kerala, India: the Neighbourhood Network in Palliative Care. Progress in Palliative Care. 2010; 18(1): 14–17. DOI: 10.1179/096992610X12624290276142
    1. de Zulueta P. Developing compassionate leadership in health care: an integrative review. Journal of Healthcare Leadership. 2015; 1. DOI: 10.2147/JHL.S93724
    1. Flores SL, Molina EH, Osuna JB, Vargas RM, Vicuña MN. All with You: a new method for developing compassionate communities—experiences in Spain and Latin-America. Annals of Palliative Medicine. 2018; 7(S2): S15–S31. DOI: 10.21037/apm.2018.03.02
    1. Luzinski CH, Stockbridge E, Craighead J, Bayliss D, Schmidt M, Seideman J. The Community Case Management Program: For 12 Years, Caring at Its Best. Geriatric Nursing. 2008; 29(3): 207–215. DOI: 10.1016/j.gerinurse.2008.01.010

Source: PubMed

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