Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association

Michael J Goldfarb, Christine Bechtel, Quinn Capers 4th, Ann de Velasco, John A Dodson, Jamie L Jackson, Lisa Kitko, Ileana L Piña, Erin Rayner-Hartley, Nanette K Wenger, Martha Gulati, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health, Michael J Goldfarb, Christine Bechtel, Quinn Capers 4th, Ann de Velasco, John A Dodson, Jamie L Jackson, Lisa Kitko, Ileana L Piña, Erin Rayner-Hartley, Nanette K Wenger, Martha Gulati, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health

Abstract

Family engagement empowers family members to become active partners in care delivery. Family members increasingly expect and wish to participate in care and be involved in the decision-making process. The goal of engaging families in care is to improve the care experience to achieve better outcomes for both patients and family members. There is emerging evidence that engaging family members in care improves person- and family-important outcomes. Engaging families in adult cardiovascular care involves a paradigm shift in the current organization and delivery of both acute and chronic cardiac care. Many cardiovascular health care professionals have limited awareness of the role and potential benefits of family engagement in care. Additionally, many fail to identify opportunities to engage family members. There is currently little guidance on family engagement in any aspect of cardiovascular care. The objective of this statement is to inform health care professionals and stakeholders about the importance of family engagement in cardiovascular care. This scientific statement will describe the rationale for engaging families in adult cardiovascular care, outline opportunities and challenges, highlight knowledge gaps, and provide suggestions to cardiovascular clinicians on how to integrate family members into the health care team.

Keywords: AHA Scientific Statements; cardiovascular; family engagement; patient– and family–centered care.

Figures

Figure 1. Opportunities for family engagement in…
Figure 1. Opportunities for family engagement in cardiovascular care.
Figure 2. Future directions for family engagement.
Figure 2. Future directions for family engagement.

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