Development of the Emotion Dysregulation Inventory: A PROMIS®ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder
Carla A Mazefsky, Taylor N Day, Matthew Siegel, Susan W White, Lan Yu, Paul A Pilkonis, Autism and Developmental Disabilities Inpatient Research Collaborative (ADDIRC), Carla A Mazefsky, Taylor N Day, Matthew Siegel, Susan W White, Lan Yu, Paul A Pilkonis, Autism and Developmental Disabilities Inpatient Research Collaborative (ADDIRC)
Abstract
The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS®) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability.
Keywords: Autism Inpatient Collection; Autism spectrum disorder (ASD); Emotion regulation; Patient-Reported Outcomes Measurement Information System (PROMIS®); Psychiatric inpatients; Questionnaire development.
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Source: PubMed